Birth Defects Surveillance Toolkit

Birth Defects Surveillance Toolkit
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The Birth Defects Surveillance Toolkit serves as a resource for those looking to establish or enhance a surveillance programme for birth defects. It provides an overview of the purpose and importance of these types of programmes, and serves as a companion for planning, implementing, and evaluating a programme. The toolkit is a collaborative effort between the:

  • International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR),
  • National Center on Birth Defects and Developmental Disabilities from the US Centers for Disease Control and Prevention (CDC),
  • World Health Organization (WHO).

How to Use the Birth Defects Surveillance Toolkit
cute baby girl smiling
  • Get an overview of each chapter from the Birth Defects Surveillance: A Manual for Programme Managers by visiting the chapter summary pages where you can find a chapter description, contents, and features that supplement the information presented. Begin with the Chapter 1 Summary page.
  • Click through pages in the Chapters and Appendices sections to see what is in the manual.
  • Use the Photo Atlas and Quick Reference Handbook to view a resource for front-line health care professionals who are diagnosing and collecting data on congenital defects and infections. The Handbook includes illustrations and photos of different birth defects, as well as summaries of the guidance for diagnosis and data collection.
  • Explore the Facilitator’s Guide for training programme staff on the best practices for establishing a birth defects surveillance programme, and diagnosing and coding birth defects. This guide was developed and revised based on the implementation and evaluation of a training course provided in several countries.
  • Read definitions for terms used in the manual in the Glossary.
  • Download print versions of the manual, Photo Atlas, Quick Reference Handbook, and Facilitator’s Guide in the Resource Library.
  • Watch videos to learn more about creating a birth defects surveillance programme.
  • For further support on how to use this website, go to the Help Center page.