3.11 Data Collection/Management

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This section focuses on data collection and management. Valid and reliable data collection, storage, management and analysis are critical to congenital anomalies surveillance programmes.


Possible responses:

  • Promotes high-data quality and secure data storage
  • Provides systematic collection of data
  • Provides ability to link congenital anomalies data with other available information for surveillance, research and prevention purposes
  • Facilitates timely dissemination of prevalence estimates to those who need to know
  • Allows reliable comparisons with data from other congenital anomalies programmes
  • Allows evaluation of the information that is sent by participating sites to the central surveillance system