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Birth Defects Surveillance Toolkit
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    Manual

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    Explore the manual by reading it from the beginning or selecting any chapter. You can download a copy from the Resource Library to search, save, or print.

    Chapter 1: Surveillance of Congenital Anomalies
    Chapter 1: Surveillance of Congenital Anomalies
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    Chapter 2: Planning Activities and Tools
    Chapter 2: Planning Activities and Tools
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    Chapter 3: Approaches to Surveillance
    Chapter 3: Approaches to Surveillance
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    Chapter 4: Diagnosing and Coding Congenital Anomalies
    Chapter 4: Diagnosing and Coding Congenital Anomalies
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    Chapter 5: Coding
    Chapter 5: Coding
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    Appendices
    Appendices
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    Page last reviewed: October 30, 2019
    Content source: Division of Birth Defects and Developmental Disabilities, NCBDDD, Centers for Disease Control and Prevention
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    • Manual expand
      • Objectives
      • 1. Surveillance of Congenital Anomalies expand
        • 1.1 Introduction
        • 1.2 Purpose of congenital anomalies surveillance
        • 1.3 Types of surveillance programmes
        • 1.4 Congenital anomalies – definitions
      • 2. Planning Activities and Tools expand
        • 2.1 Logic models
        • 2.2 Partners and funding
        • 2.3 Legislation
        • 2.4 Privacy and confidentiality issues
        • 2.5 Data dissemination
        • 2.6 Communicating with parents
      • 3. Approaches to Surveillance expand
        • 3.1 Population coverage
        • 3.2 Case ascertainment
        • 3.3 Case finding
        • 3.4 Case inclusion
        • 3.5 Description formats for congenital anomalies
        • 3.6 Age of inclusion
        • 3.7 Inclusion of pregnancy outcomes
        • 3.8 Coding system
        • 3.9 Potential inclusion/exclusion criteria
        • 3.10 Core ascertainment variables
        • 3.11 Data-collection methods and tools
        • 3.12 Data management and protocols
        • 3.13 Data collection and management
      • 4. Diagnosing and Coding Congenital Anomalies expand
        • 4.1 Initial list of congenital anomalies to consider for monitoring
        • 4.2 Congenital malformations of the nervous system
        • 4.3 Cleft lip and cleft palate
        • 4.4 Congenital malformations of genital organs
        • 4.5 Congenital malformations and deformations of the musculoskeletal system
      • 5. Coding expand
        • 5.1 Coding of congenital anomalies
        • 5.2 International Classification of Diseases
        • 5.3 Personnel responsible for diagnosing and coding
        • 5.4 Effect of the certainty of diagnosis on coding
        • 5.5 Coding multiple congenital anomalies
        • 5.6 Use of codes for surveillance, data analysis and presentation
      • Appendices expand
        • Appendix A
        • Appendix B
        • Appendix C
        • Appendix D
        • Appendix E
        • Appendix F
        • Appendix G
        • Appendix H
        • Appendix I
        • Appendix J
        • Appendix K
    • Photo Atlas expand
      • Objectives
      • Congenital malformations of the nervous system
      • Cleft palate and cleft lip
      • Congenital malformations of genital organs
      • Congenital malformations and deformations of the musculoskeletal system
    • Facilitator’s Guide expand
      • Birth Defects Surveillance Course Overview
      • Module 1: Introduction to Congenital Anomalies Surveillance expand
        • 1.1 Public Health and Surveillance of Congenital Anomalies
        • 1.2 Congenital Anomalies
        • 1.3 Surveillance
        • 1.4 Evaluation Questions 1
      • Module 2: Introduction to Planning Activities and Tools expand
        • 2.1 Logic Models
        • 2.2 Legislation
        • 2.3 Privacy and Confidentiality Issues
        • 2.4 Partnerships and Funding
        • 2.5 Communicating with Parents
        • 2.6 Evaluation Questions 2
      • Module 3: Introduction to Surveillance Approaches expand
        • 3.1 Epidemiology
        • 3.2 Population Coverage
        • 3.3 Case Ascertainment
        • 3.4 Case-Finding
        • 3.5 Case Inclusion
        • 3.6 Inclusion Criteria
        • 3.7 Inclusion of Pregnancy Outcomes
        • 3.8 Description Formats for Congenital Anomalies
        • 3.9 Core Ascertainment Variables
        • 3.10 Data-Collection Methods and Tools
        • 3.11 Data Collection/Management
        • 3.12 Data-Management Protocol
        • 3.13 Data Analysis
        • 3.14 Data Dissemination
        • 3.15 Evaluation Questions 3
      • Module 4: Introduction to Diagnosis of Selected Congenital Anomalies expand
        • 4.1 External Major Congenital Anomalies for Monitoring
        • 4.2 Evaluation Questions 4
      • Module 5: Introduction to Coding expand
        • 5.1 International Classification of Diseases
        • 5.2 Certainty of Diagnosis
        • 5.3 Personnel Responsible for Diagnosis and Coding
        • 5.4 Coding Multiple Congenital Anomalies
        • 5.5 Coding of Congenital Anomalies
        • 5.6 Evaluation Questions 5
    • Resource Library expand
      • Manual (PDF)
      • Facilitator’s Guide (PDF)
      • Photo Atlas (PDF)
      • Downloads
      • References
      • Glossary
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