Appendices
Appendix I: Potential optional variables
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Report
| Variable number | Category | Variable name | Explanation and instructions |
|---|---|---|---|
| 1 | Source of information | Indicate the different data sources inside the hospital where a fetus or neonate with a congenital anomaly is identified (e.g. delivery room or surgery). |
Father
| Variable number | Category | Variable name | Explanation and instructions |
|---|---|---|---|
| 2 | Occupation/work | Code according to the 1988 International standard classification of occupations; see www.ilo.org/public/english/bureau/stat/ isco/index.htm.external icon | |
| 3 | Family health history | Indicate if there is someone in the father’s family with a congenital anomaly/anomalies, including the father himself. |
Mother
| Variable number | Category | Variable name | Explanation and instructions |
|---|---|---|---|
| 4 | Demographic information | Civil/marital status | Indicate if the mother is married, single, separated, living with someone but not married, or a widow. |
| 5 | Occupation/ work at conception | Code according to the 1988 International standard classification of occupations; see www.ilo.org/public/ english/bureau/stat/isco/index.htm.external icon | |
| 6 | Country identification number | This corresponds to any legal document that identifies the mother in each country; use if available in country. | |
| 7 | Weight (before pregnancy) | Indicate the mother’s weight before the pregnancy in kilograms or pounds, according to what the country uses. | |
| 8 | Education (years or highest level) | Indicate the highest level of education achieved by the mother. Refer to the International standard classification of education for 1997 for information; see http://www.unesco.org/education/information/ nfsunesco/doc/isced_1997.htm.external icon | |
| 9 | Religion | Indicate the religious affiliation of the mother, if applicable. | |
| 10 | Socioeconomic status | Indicate the socioeconomic status of the mother. |
Obstetric history
| Variable number | Category | Variable name | Explanation and instructions |
|---|---|---|---|
| 11 | Health | Chronic diseases | Indicate any illness the mother has (e.g. diabetes, epilepsy or infections). |
| Date of last menstrual period | Indicate the first day of the last normal menstrual period. Follow the system: day, month and year. | ||
| 12 | Prenatal tests | Indicate if the mother received prenatal care services and at which month of pregnancy she started receiving the services. | |
| 13 | Family health history | Indicate if any of the following tests were performed: maternal serum alpha-fetoprotein, amniocentesis, chorionic villus sampling, sonogram or fetal echocardiogram. | |
| 14 | Indicate if there is someone in the mother’s family with a congenital anomaly/anomalies, including the mother herself. |
Infant
| Variable number | Category | Variable name | Explanation and instructions |
|---|---|---|---|
| 15 | Birth information | Type of delivery | Indicate if the delivery was vaginal or a caesarean section; also indicate whether birth was induced. |
Page last reviewed: October 30, 2019