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Appendices

Appendix I: Potential optional variables

Report

Report
Variable number Category Variable name Explanation and instructions
1 Source of information Indicate the different data sources inside the hospital where a fetus or neonate with a congenital anomaly is identified (e.g. delivery room or surgery).

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Father

Father
Variable number Category Variable name Explanation and instructions
2 Occupation/work Code according to the 1988 International standard classification of occupations; see www.ilo.org/public/english/bureau/stat/ isco/index.htm.
3 Family health history Indicate if there is someone in the father’s family with a congenital anomaly/anomalies, including the father himself.

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Mother

Mother
Variable number Category Variable name Explanation and instructions
4 Demographic information Civil/marital status Indicate if the mother is married, single, separated, living with someone but not married, or a widow.
5 Occupation/ work at conception Code according to the 1988 International standard classification of occupations; see www.ilo.org/public/ english/bureau/stat/isco/index.htm.
6 Country identification number This corresponds to any legal document that identifies the mother in each country; use if available in country.
7 Weight (before pregnancy) Indicate the mother’s weight before the pregnancy in kilograms or pounds, according to what the country uses.
8 Education (years or highest level) Indicate the highest level of education achieved by the mother. Refer to the International standard classification of education for 1997 for information; see http://www.unesco.org/education/information/ nfsunesco/doc/isced_1997.htm.
9 Religion Indicate the religious affiliation of the mother, if applicable.
10 Socioeconomic status Indicate the socioeconomic status of the mother.

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Obstetric history

Obstetric history
Variable number Category Variable name Explanation and instructions
11 Health Chronic diseases Indicate any illness the mother has (e.g. diabetes, epilepsy or infections).
Date of last menstrual period Indicate the first day of the last normal menstrual period. Follow the system: day, month and year.
12 Prenatal tests Indicate if the mother received prenatal care services and at which month of pregnancy she started receiving the services.
13 Family health history Indicate if any of the following tests were performed: maternal serum alpha-fetoprotein, amniocentesis, chorionic villus sampling, sonogram or fetal echocardiogram.
14 Indicate if there is someone in the mother’s family with a congenital anomaly/anomalies, including the mother herself.

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Infant

Infant
Variable number Category Variable name Explanation and instructions
15 Birth information Type of delivery Indicate if the delivery was vaginal or a caesarean section; also indicate whether birth was induced.

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