3.5 Description Formats for Congenital Anomalies
As Fig. 3.9 illustrates, on the abstraction form, information about congenital anomalies is ideally captured using either a verbatim description, or a checkbox, although sometimes both may be used. From a quality standpoint, checkboxes alone are typically insufficient to achieve high data quality, both in initial data abstraction and in case review. However, if a country has the resources to collect data electronically, a checkbox could be useful as a first step, if there is a drop-down menu with more options to categorize the congenital anomaly. Nevertheless, having a field for verbatim descriptions allows details to be collected and the additional information may help clarify the diagnosis and classification, be used to plan the child’s health-care management, and help assess the accuracy and completeness of the information and coding during case review and ongoing quality assessment.
When coding the example case in Fig. 3.9, if the information available is limited to one of the checked boxes, the International statistical classification of diseases and related health problems, 10th revision (ICD-10) (12) code will be Q36.99 (cleft lip). However, if the verbatim description is available, the code will be more specific: Q36.9 (cleft lip, unilateral).