HIV Case Reporting and Surveillance
CDC's National HIV Surveillance System (NHSS) is the primary source of data used for monitoring trends in HIV infection in the United States. The 50 states, the District of Columbia, and 6 U.S. dependent areas have regulatory authority and confidentiality protections to collect information on persons with diagnosed HIV infection, and in some of these areas information on perinatally exposed infants is also reported. Surveillance data are used by public health partners to monitor trends, focus prevention efforts, plan services, allocate resources, develop policy, and assess prevention efforts. The listed documents provide guidance about the surveillance case definition for HIV infection and reporting criteria for HIV infection and perinatal exposure to HIV infection. This guidance is intended for clinicians who diagnose persons with HIV infection, laboratories, HIV surveillance programs, and health department staff. Additional guidance for epidemiological analyses of HIV surveillance data are also listed.
HIV and Perinatal HIV Exposure Reporting Case Report Forms
The HIV and perinatal HIV exposure reporting case report forms are designed to collect information that promotes understanding of HIV infection morbidity and mortality and perinatal exposure to HIV. After the removal of personally identifiable information, data from the case reports are transmitted to CDC via a secure network. Some state and local health department HIV surveillance programs may require information to be reported in a different format or on a different form. Please refer to the appropriate state or local health department HIV surveillance program for specific guidance on reporting requirements in your local area. Completed case reports should be forwarded to the health departments and not be sent directly to CDC.
- Adult HIV Confidential Case Report Form (Patients ≥ 13 Years of Age at Time of Diagnosis) , CDC 2016
- Pediatric HIV Confidential Case Report Form (Patients < 13 Years of Age at Time of Diagnosis), CDC 2016
- Perinatal HIV Exposure Reporting Form , CDC 2016
HIV Case Reporting and Surveillance Additional Guidance
- Revised Surveillance Case Definition for HIV Infection — United States, 2014, MMWR 2014
- Dear Colleague Letter from Division of HIV/AIDS Prevention, Centers for Disease Control and Prevention, to HIV Surveillance coordinators, AIDS Directors, State Epidemiologists, State Health Officers, and State Public Health Lab Directors about laboratory reporting of HIV-related tests, including all CD4+ T-lymphocyte (CD4) results and all viral load test results, CDC 2013.
- U.S. Department of Health and Human Services, Implementation Guidance on Data Collection Standards for Race, Ethnicity, Sex, Primary Language, and Disability Status, October 2011
- Data security and confidentiality guidelines for HIV, viral hepatitis, sexually transmitted disease, and tuberculosis programs: Standards to facilitate sharing and use of surveillance data for public health action , CDC 2011
- HIPAA privacy rule and public health: Guidance from CDC and the U.S. Department of Health and Human Services, MMWR 2003
HIV Surveillance Data Analysis Guidance
- Page last reviewed: November 14, 2016
- Page last updated: November 14, 2016
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