Links to Other Zika and Pregnancy Resources

Mother Cuddling Baby Daughter At Home

The resources on this page can provide guidance and support for families and caregivers of infants affected by Zika virus infection during pregnancy.

Support for Families of Babies Affected by Zika

Families of babies affected by Zika virus (Zika) may be overwhelmed, worried, and unsure of next steps in caring for their baby.  A baby affected by Zika virus may be born with significant health issues, like microcephaly. Others may not have apparent symptoms at birth, but may develop them over time. Because we are still learning about the long term effects of Zika infection during pregnancy, it is important that parents work with their doctors to manage the medical care of their baby.

Parents, you know your baby best. If you think there is a problem or are concerned about your baby’s health and development, talk to your baby’s doctor and share your concerns. In addition, there are services, like early intervention, that can help with your baby’s development and support programs that can help connect you with other families. The resources below can provide guidance and support for families and caregivers.

General Zika Information

CDC: What Parents Should Know about Zika

HealthyChildren.orgExternal
The Healthy Children website is a resource for families from the American Academy of Pediatrics. This webpage provides general information about what parents should know about Zika virus.

March of DimesExternal
This March of Dimes website provides families with general information about Zika virus infection during pregnancy. It also includes links to other related resources.

Family Support

Family VoicesExternal
Family Voices provides information and education about the care of children with special health needs. The website includes links to resources and information on advocacy and Family to Family Health Information CentersExternal.

Center for Parent Information and ResourcesExternal
Find information to help support you in caring for your child with a disability, or helping children with disabilities achieve their full potential.

Parent to Parent-USAExternal
Parent to Parent programs provide emotional and informational support to families of children who have special needs, most notably by matching parents seeking support with an experienced, trained ‘support parent’.

Partnerships for ParentsExternal
Partnership for Parents was created by parents, for parents. It is a resource to share stories and experiences, get support, and find guidance through a child’s illness.

KidsHealth Support for Parents of Kids with Special NeedsExternal
Find tips and information on caring for a child with special needs.

Monitoring a Child’s Development

Please keep in mind these resources do not specifically address Zika virus, but are helpful in monitoring a child’s development.

CDC’s “Learn the Signs. Act Early.” Program
The campaign aims to promote an awareness of healthy developmental milestones in early childhood, the importance of tracking each child’s development and the importance of acting early if there are concerns. Visit the “Learn the Signs. Act Early.” website to download or order free tools and resources to help parents and other caregivers keep track of their child’s development and get help if they are concerned.

Birth to 5: Watch Me ThriveExternal
A coordinated federal effort to encourage healthy child development, behavioral and developmental screening for children, and support for the families and providers who care for them.

Physical Developmental DelaysExternal: What to Look For (Tool)
An interactive web-based tool developed by the American Academy of Pediatrics  that provides information on what parents should look for when monitoring their child for a physical developmental delay.

CDC’s Hearing Loss Resources
This website has tools and information about hearing loss for families.

Children and VisionExternal
The American Optometric Association website provides information about vision screening for infants.

CDC’s Developmental Disabilities Resources
Find links to websites with information on developmental disabilities.

Resources and Services

Zika Care Connect
Zika Care Connect (ZCC) aims to improve access to specialty healthcare services for the management of Zika virus infection during pregnancy and outcomes in infants caused by Zika. Developed by CDC and maintained in collaboration with March of Dimes, ZCC establishes a network of specialized healthcare providers who can care for patients and families affected by Zika virus. ZCC will help families find specialty healthcare services and identify providers whose practice meets their needs (e.g., location, language, insurance).

Early Intervention
Early intervention (before school age) can have a significant impact on a child’s ability to learn new skills and the support families have to help the child. Early intervention includes a range of targeted services to help young children who have developmental delays or specific health conditions. Services can include special instruction, physical and occupational therapy, speech and language therapy, and other services to help young children. Every US state and territory provides these services through its own comprehensive, coordinated program. Federally funded early intervention services may be offered for free or at low cost to families.

  • Families can contact their local early intervention system to learn how to access these services. Visit CDC’s Early Intervention Contacts page for early intervention contacts by state, commonwealth or territory.

Early Head StartExternal
Early Head Start provides early, continuous, intensive, and comprehensive child development and family support services to low-income infants, toddlers and their families, along with pregnant women and their families.

Early and Periodic Screening, Diagnostics and Treatment (EPSDT)External
The EPSDT program provides health screenings, diagnostic tests, and treatment of health problems for children and adolescents under the age of 21 covered under Medicaid.