Links to Other Websites on Developmental Disabilities
Administration on Intellectual and Developmental Disabilities (AIDD)external icon
AIDD seeks to improve and increase services for individuals with developmental disabilities that promote independence and inclusion in society. This website contains information on AIDD’s programs and other helpful resources, such as a developmental disabilities program directory by state and grants and funding information.
American Academy of Pediatricsexternal icon
The American Academy of Pediatrics comprises pediatricians committed to the health of infants, children, adolescents, and young adults. The website contains general information about children’s health, as well more specific information about guidelines, policies, and publications. This organization also hosts a website specifically for parents: HealthyChildren.orgexternal icon.
American Association on Intellectual and Developmental Disabilities (AAIDD)external icon
The AAIDD is an interdisciplinary organization of professionals and citizens working to support individuals with disabilities by promoting policy, research, and practice.
Association of University Centers on Disabilities (AUCD)external icon
The AUCD is a network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, as well as their families and communities.
Center for Parent Information and Resources (CPIR)external icon
The CPIR serves as a central resource of information and products to the community of Parent Training Information Centers and the Community Parent Resource Centers, so that they can focus their efforts on serving families of children with disabilities.
Department of Educationexternal icon
The U.S. Department of Education (DOE) has resources to assist with the educational needs of children with developmental disabilities.
- The DOE’s Technical Assistance and Dissemination Network (TA&D Network)external icon links to a variety of other websites and online resources that focus on special education issues, such as policy, technology, curricula and parent trainings.
- The DOE’s Office of Special Education and Rehabilitative Services (OSERS)external icon provides support to parents and individuals, school districts, and states in three main areas:
- Special education: Office of Special Education Programs (OSEP)external icon
- Vocational rehabilitation: Rehabilitation Services Administration (RSA)external icon
DisabilityMeasures.org is an online resource with measurement tools for assessment, screening, and research concerning individuals with disabilities.
Diagnostic and Statistical Manual of Mental Disordersexternal icon
The Diagnostic and Statistical Manual of Mental Disorders (DSM), published by the American Psychiatric Association, is the standard classification of mental disorders used by mental health professionals in the United States.
Disability.gov offers comprehensive information on disability programs and services in communities nationwide. The site links to more than 14,000 resources from federal, state, and local government agencies; academic institutions; and nonprofit organizations.
First Signsexternal icon
First Signs is dedicated to educating parents and professionals about early identification and intervention for children at risk for developmental delays and disorders, including autism.
Insure Kids Now!external icon
Each state provides no-cost or low-cost health insurance coverage for eligible children through Medicaid and the Children’s Health Insurance Program. This website has basic facts about these programs. It also has links to each state’s insurance program for children, where you can learn who is eligible for the programs, how to apply, and what services are covered. Information is available in English and Spanish.
International Classification of Functioning, Disability, and Health
The International Classification of Functioning, Disability, and Health provides a unifying framework for classifying the consequences of disease and for measuring health and disability at both individual and population levels.
MedlinePlus, a service of the U.S. National Library of Medicine and the National Institutes of Health, provides information on many different types of developmental disabilities, as well as resources on prevention and screening, research, statistics, law and policy, and more.
My Child Without Limitsexternal icon
My Child Without Limits provides resources for families of young children from birth through 5 years of age with developmental delays or disabilities, as well as for professionals who work with these individuals. The site also has a national resource locator where visitors can find local service providers, community organizations, and government agencies.
National Association of Councils on Developmental Disabilities (NACDD)external icon
The NACDD supports state and territorial councils in implementing the Developmental Disabilities Assistance and Bill of Rights Act and promoting the interests and rights of individuals with disabilities and their families.
National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)external icon
NIDILRR is a federal government grants-making agency that sponsors grantees to generate new disability and rehabilitation knowledge and promote its use and adoption.
National Institutes of Health (NIH)external icon
Several institutes within the NIH conduct and fund research about developmental disabilities. They also offer information to the public and educational programs for health professionals. They include:
- National Eye Institute (NEI)external icon
The NEI studies ways to prevent and treat eye diseases and vision problems and to improve the lives of people with these conditions.
- National Institute of Child Health and Human Development (NICHD)external icon
The NICHD conducts and supports research on all stages of human development to better understand the health of children, adults, families, and communities, including those with developmental disabilities.
- National Institute on Deafness and Other Communication Disorders (NIDCD)external icon
The NIDCD studies hearing loss, deafness, and problems with speech and language.
- National Institute of Mental Health (NIMH)external icon
The NIMH studies mental illness and behavior problems, including such conditions as autism, attention-deficit/hyperactivity disorder, and learning disabilities.
- National Institute of Neurological Disorders and Stroke (NINDS)external icon
NINDS studies the causes, diagnosis, treatment, and prevention of brain and nervous system disorders such as cerebral palsy and epilepsy.
The Arcexternal icon
The Arc is a national, community-based organization advocating for individuals with intellectual and developmental disabilities and their families through public policy and provision of supports and services.
The International Classification of Diseases
The International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM) is the official system of codes for diagnoses and procedures in the United States. The International Classification of Diseases, Tenth Revision (ICD-10)external icon is used internationally.
The State of the World’s Children 2013: Children with Disabilitiesexternal icon
The 2013 edition of this report focuses on the situation of children with disabilities across the world.