Links to Other Websites on Developmental Disabilities
Administration on Intellectual and Developmental Disabilities (AIDD)External
AIDD seeks to improve and increase services for individuals with developmental disabilities that promote independence and inclusion in society. This website contains information on AIDD’s programs and other helpful resources, such as a developmental disabilities program directory by state and grants and funding information.
American Academy of PediatricsExternal
The American Academy of Pediatrics comprises pediatricians committed to the health of infants, children, adolescents, and young adults. The website contains general information about children’s health, as well more specific information about guidelines, policies, and publications. This organization also hosts a website specifically for parents: HealthyChildren.orgExternal.
American Association on Intellectual and Developmental Disabilities (AAIDD)External
The AAIDD is an interdisciplinary organization of professionals and citizens working to support individuals with disabilities by promoting policy, research, and practice.
Association of University Centers on Disabilities (AUCD)External
The AUCD is a network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, as well as their families and communities.
Center for Parent Information and Resources (CPIR)External
The CPIR serves as a central resource of information and products to the community of Parent Training Information Centers and the Community Parent Resource Centers, so that they can focus their efforts on serving families of children with disabilities.
Department of EducationExternal
The U.S. Department of Education (DOE) has resources to assist with the educational needs of children with developmental disabilities.
- The DOE’s Technical Assistance and Dissemination Network (TA&D Network)External links to a variety of other websites and online resources that focus on special education issues, such as policy, technology, curricula and parent trainings.
- The DOE’s Office of Special Education and Rehabilitative Services (OSERS)External provides support to parents and individuals, school districts, and states in three main areas:
- Special education: Office of Special Education Programs (OSEP)External
- Vocational rehabilitation: Rehabilitation Services Administration (RSA)External
DisabilityMeasures.org is an online resource with measurement tools for assessment, screening, and research concerning individuals with disabilities.
Diagnostic and Statistical Manual of Mental DisordersExternal
The Diagnostic and Statistical Manual of Mental Disorders (DSM), published by the American Psychiatric Association, is the standard classification of mental disorders used by mental health professionals in the United States.
Disability.gov offers comprehensive information on disability programs and services in communities nationwide. The site links to more than 14,000 resources from federal, state, and local government agencies; academic institutions; and nonprofit organizations.
First Signs is dedicated to educating parents and professionals about early identification and intervention for children at risk for developmental delays and disorders, including autism.
Insure Kids Now!External
Each state provides no-cost or low-cost health insurance coverage for eligible children through Medicaid and the Children’s Health Insurance Program. This website has basic facts about these programs. It also has links to each state’s insurance program for children, where you can learn who is eligible for the programs, how to apply, and what services are covered. Information is available in English and Spanish.
International Classification of Functioning, Disability, and Health
The International Classification of Functioning, Disability, and Health provides a unifying framework for classifying the consequences of disease and for measuring health and disability at both individual and population levels.
MedlinePlus, a service of the U.S. National Library of Medicine and the National Institutes of Health, provides information on many different types of developmental disabilities, as well as resources on prevention and screening, research, statistics, law and policy, and more.
My Child Without LimitsExternal
My Child Without Limits provides resources for families of young children from birth through 5 years of age with developmental delays or disabilities, as well as for professionals who work with these individuals. The site also has a national resource locator where visitors can find local service providers, community organizations, and government agencies.
National Association of Councils on Developmental Disabilities (NACDD)External
The NACDD supports state and territorial councils in implementing the Developmental Disabilities Assistance and Bill of Rights Act and promoting the interests and rights of individuals with disabilities and their families.
National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR)External
NIDILRR is a federal government grants-making agency that sponsors grantees to generate new disability and rehabilitation knowledge and promote its use and adoption.
National Institutes of Health (NIH)External
Several institutes within the NIH conduct and fund research about developmental disabilities. They also offer information to the public and educational programs for health professionals. They include:
- National Eye Institute (NEI)External
The NEI studies ways to prevent and treat eye diseases and vision problems and to improve the lives of people with these conditions.
- National Institute of Child Health and Human Development (NICHD)External
The NICHD conducts and supports research on all stages of human development to better understand the health of children, adults, families, and communities, including those with developmental disabilities.
- National Institute on Deafness and Other Communication Disorders (NIDCD)External
The NIDCD studies hearing loss, deafness, and problems with speech and language.
- National Institute of Mental Health (NIMH)External
The NIMH studies mental illness and behavior problems, including such conditions as autism, attention-deficit/hyperactivity disorder, and learning disabilities.
- National Institute of Neurological Disorders and Stroke (NINDS)External
NINDS studies the causes, diagnosis, treatment, and prevention of brain and nervous system disorders such as cerebral palsy and epilepsy.
PBS Parents: Children with DisabilitiesExternal
PBS Parents provides information about child development from birth through the early school years. The Children with Disabilities page covers topics such as inclusive education, assistive technology, and advocating for your child.
The Arc is a national, community-based organization advocating for individuals with intellectual and developmental disabilities and their families through public policy and provision of supports and services.
The International Classification of Diseases
The International Classification of Diseases, Ninth Revision, Clinical Modification (ICD-9-CM) is the official system of codes for diagnoses and procedures in the United States. The International Classification of Diseases, Tenth Revision (ICD-10)External is used internationally.
The State of the World’s Children 2013: Children with DisabilitiesExternal
The 2013 edition of this report focuses on the situation of children with disabilities across the world.