Videos on Hemophilia
Learn about hemophilia
Since inhibitors can prevent clotting factor treatments (factor) from working for some people with hemophilia or von Willebrand Disease (VWD) type 3, it’s important that this patient population get tested for an inhibitor at least once a year. These National Hemophilia Foundation (NHF)external icon produced videos feature perspectives from a mother whose infant developed an inhibitor, an adult who developed an inhibitor as a teenager, and from several healthcare providers. Click on the links below to watch each video, and share them with patients with hemophilia or VWD type 3 and providers to help raise awareness about inhibitor testing.
- Rhea’s Story: Rhea’s son developed an inhibitor at 7 months old. She shares how she discovered her son’s inhibitor.
- Mosi’s Story. Mosi developed an inhibitor as a teen. Now an adult, Mosi shares his experience about getting tested for an inhibitor.
- Get Tested For An Inhibitor: A Physical Therapist’s Perspective. Physical therapist Ruth Mulvany, PT, DTP, MS, who works with hemophilia patients, explains why inhibitor testing is so important.
- Get Tested For An Inhibitor: A Doctor’s Perspective. Dr. Amy Dunn explains why inhibitor testing is important to help minimize joint damage and stay healthy.
- Get Tested For An Inhibitor: A Nurse’s Perspective. Maria Tovar-Herrera, RN, BSN, explains why getting tested for an inhibitor is important for all patients, no matter their age or inhibitor history.
Playing it Safe With Hemophilia
Friends with hemophilia talk about playing sports growing up and the importance of making smart decisions.
Starting the Conversation: Hemophilia
How to talk to your friends about hemophilia. A group of friends ask their friend Billy questions about his hemophilia.
Blood Roots Documentaryexternal icon
This documentary highlights the impetus and benefits of comprehensive hemophilia care in the United States. The video features the HTC clinician pioneers from the Western, Mountain and Pacific Northwest States who initiated the -then radical – concept of team based care. The documentary also features an HTC patient. These pioneers tell an important historic story vital to today’s health care reform efforts which seek to integrate care through the patient centered medical home model.