Community Counts

Community Counts is a project funded by the Centers for Disease Control and Prevention through a cooperative agreement awarded to ATHN in partnership with the U.S. Hemophilia Treatment Center Network.

The purpose of this project is to gather and share information about common health issues, medical complications, and causes of death that affect people with bleeding disorders who receive care at U.S. Hemophilia Treatment Centers (HTCs).

Community Counts consists of three components:

The HTC Population Profile (HTC PP) gathers basic information on all HTC patients with a bleeding disorder or blood clots. The goal of the HTC PP is to determine the size and characteristics of the patient population that receives care at HTCs

The Registry for Bleeding Disorders Surveillance gathers detailed information on HTC patients with bleeding disorders on an annual basis. People who volunteer to participate will have routine medical information collected once a year during their comprehensive HTC visit. Participation in the Registry is voluntary.

The Mortality Reporting project tracks the characteristics, diagnoses, and causes of death of HTC patients with bleeding disorders who have died.