Real Stories from People Living with Hemophilia
Living with the complications of hemophilia can be challenging. However, with treatment, people with hemophilia can manage their bleeding symptoms. Read these personal stories from people living with hemophilia.
Mikey is an active teenager who does not let hemophilia stop him from playing competitive sports. He shares his story to inspire others with bleeding disorders to live life to their fullest potential.
Hemophilia primarily affects men, but women can have hemophilia too. Shellye experienced the symptoms of a bleeding disorder but was not tested and diagnosed until later in life. Read about her journey from symptoms to diagnosis.
Having a child with hemophilia can be challenging for parents, especially if their child has an inhibitor. Jane describes the difficult times her son and family have gone through as well as the positive life experiences her son has had.
“Every time a bleed happens, I hold my breath to see if Thomas’s body is going to respond to treatment.” Sonji shares the challenges and concerns she’s experienced while raising her son with hemophilia.
Debbie’s son Matt has hemophilia and experienced a life-threatening blood clot. Read her story to learn how Matt had to fight for his life during this challenging time.
How do you treat a toddler with hemophilia? Read Ashley’s story to learn the challenges and moments of resilience she’s experienced while raising her son Jackson with severe hemophilia.