Real Stories from People Living with Hemophilia
Living with the complications of hemophilia can be challenging. However, with treatment, people with hemophilia can manage their bleeding symptoms. Read these personal stories from people living with hemophilia.
When Jennifer was diagnosed with hemophilia and VWD, there weren’t many resources for girls. Now she’s sharing her story to raise awareness.
With no family history of hemophilia, Eric’s diagnosis was completely unexpected. Now, his diagnosis gives him purpose and a community.
“Hemophilia? That’s where you can’t stop bleeding, right?” That was the extent of Matt’s and his wife, Anna’s, knowledge of hemophilia when they decided to foster Chris, a 7-month-old boy with severe hemophilia.
Mikey is an active teenager who does not let hemophilia stop him from playing competitive sports. He shares his story to inspire others with bleeding disorders to live life to their fullest potential.
“I look at hemophilia and see that it’s a part of me. I’m not going to work my way around it. I’m going to work with it. I’m not going to let it define me.” Read about Alden’s experience living with severe hemophilia and the added complication of an inhibitor.
Having a child with hemophilia can be challenging for parents, especially if their child has an inhibitor. Jane describes the difficult times her son and family have gone through as well as the positive life experiences her son has had.
Caeleb developed an inhibitor before he was 1 year old and spent years in and out of the hospital. Learn more about the complications he faced and why Caeleb is now happier than ever.
Debbie’s son Matt has hemophilia and experienced a life-threatening blood clot. Read her story to learn how Matt had to fight for his life during this challenging time.