Real Stories from People Living with Hemophilia
Living with the complications of hemophilia can be challenging. However, with treatment, people with hemophilia can manage their bleeding symptoms. Read these personal stories from people living with hemophilia.
Maya faced many obstacles during her journey to control her bleeding symptoms and get a diagnosis. Learn more about how she persevered to get where she is today.
When Jennifer was diagnosed with hemophilia and VWD, there weren’t many resources for girls. Now she’s sharing her story to raise awareness.
“Hemophilia? That’s where you can’t stop bleeding, right?” That was the extent of Matt’s and his wife, Anna’s, knowledge of hemophilia when they decided to foster Chris, a 7-month-old boy with severe hemophilia.
“I look at hemophilia and see that it’s a part of me. I’m not going to work my way around it. I’m going to work with it. I’m not going to let it define me.” Read about Alden’s experience living with severe hemophilia and the added complication of an inhibitor.
“Every time a bleed happens, I hold my breath to see if Thomas’s body is going to respond to treatment.” Sonji shares the challenges and concerns she’s experienced while raising her son with hemophilia.
Caeleb developed an inhibitor before he was 1 year old and spent years in and out of the hospital. Learn more about the complications he faced and why Caeleb is now happier than ever.
How do you treat a toddler with hemophilia? Read Ashley’s story to learn the challenges and moments of resilience she’s experienced while raising her son Jackson with severe hemophilia.