Real Stories: Living with Spina Bifida

Spina bifida is a condition that affects the spine and is usually apparent at birth. It is a type of neural tube defect (NTD). To learn what it’s like to live with this condition or how families are affected, read these real stories from people living with spina bifida.

Randi with forearm crutches

Living with Pressure Sores

Spina bifida don't stop me... I'm her living proof

Professional and Personal Success

Daily

Proving Everyone Wrong

Eli

The Power of Twins

Elley

The Life of a Social Butterfly

Katie

Appreciating the Small Things in Life

Zach

My Son Is My Inspiration

Beth

My Struggles Give Me Strength

Henry in a wagon

The Smile Child

Renee

Caring for My Daughter

Clark

A Nurse and a Mother

Photo: Anifa's Family

An International Story