Links to Other Resources on Birth Defects
American College of Medical Genetics (ACMG)
The ACMG provides education, resources and a voice for the medical genetics profession. To make genetic services available to and improve the health of the public, the ACMG promotes the development and implementation of methods to diagnose, treat and prevent genetic diseases.
American Academy of Pediatrics
This organization is comprised of pediatricians committed to the health of infants, children, adolescents, and young adults. The website contains general information about children’s health as well more specific information about guidelines, policies, and publications. This organization also hosts a website specifically for parents called HealthyChildren.org.
American College of Obstetrics and Gynecology
This organization is comprised of physicians committed to providing health care for women. Their website provides general information about women’s health issues during pregnancy including educational pamphlets about birth defects.
HHS Women’s Health Information Center
A web site and toll-free call center that provide free, reliable health information for women everywhere. The site contains a database of resources and contains topic areas such as pregnancy and medications.
The U.S. Department of Health and Human Services has resources on a wide range of health topics selected from over 1,600 government and nonprofit groups.
International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR)
The ICBDSR brings together birth defect programs from around the world with the aim of conducting worldwide surveillance and research to prevent birth defects and to ameliorate their consequences.
March of Dimes
The March of Dimes is dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality. Find information, resources, tools, and fact sheets.
Medline Plus has information available about pregnancy. Searching this website provides information on many different types of birth defects. It includes information on prevention and screening, research, organizations, and more.
MotherToBaby, a service of the non-profit Organization of Teratology Information Specialists, provides evidence-based information to mothers, health care professionals, and the general public about medications and other exposures during pregnancy and while breastfeeding. Talk directly to the experts behind the most up-to-date research!
National Birth Defects Prevention Network (NBDPN)
The mission of the NBDPN is to establish and maintain a national network of state and population-based programs for birth defects. Tools and resources include birth defects prevention month packets, surveillance guidelines, and folic acid information.
National Birth Defects Prevention Study
The National Birth Defects Prevention Study (NBDPS) looks at risk factors and potential causes of birth defects. Understanding the potential causes of birth defects can lead to recommendations, policy planning, and services to help prevent them.
National Environmental Public Health Tracking
The goal of environmental public health tracking is to protect communities by providing information to federal, state, and local agencies. Find a communications library, data resources, and publications.