Links to Other Resources on Birth Defects

American College of Medical Genetics (ACMG)External
The ACMG provides education, resources and a voice for the medical genetics profession. To make genetic services available to and improve the health of the public, the ACMG promotes the development and implementation of methods to diagnose, treat and prevent genetic diseases.

American Academy of PediatricsExternal
This organization is comprised of pediatricians committed to the health of infants, children, adolescents, and young adults. The website contains general information about children’s health as well more specific information about guidelines, policies, and publications. This organization also hosts a website specifically for parents called HealthyChildren.orgExternal.

American College of Obstetrics and GynecologyExternal
This organization is comprised of physicians committed to providing health care for women. Their website provides general information about women’s health issues during pregnancy including educational pamphlets about birth defects.

American Pregnancy AssociationExternal
The American Pregnancy Association is a national health organization focused on health during pregnancy through education, research, advocacy, and community awareness. The website also contains information on specific birth defects.

HHS Women’s Health Information CenterExternal
A web site and toll-free call center that provide free, reliable health information for women everywhere. The site contains a database of resources and contains topic areas such as pregnancy and medicationsExternal.

The U.S. Department of Health and Human Services has resources on a wide range of health topics selected from over 1,600 government and nonprofit groups.

Healthy Mothers Healthy BabiesExternal
Healthy Mothers Healthy Babies strives to improve the health and safety of mothers, babies and families through educational materials and collaborative partnerships.

Baby using a laptop computer

International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR)External
The mission of the ICBDMSR is to bring together birth defect programs from around the world with the aim of conducting worldwide surveillance and research to prevent birth defects and to ameliorate their consequences. Resources include annual reports, collaborative study publications, various presentations and the PROblem Solving electronic manual.

March of DimesExternal
The March of Dimes is dedicated to improving the health of babies by preventing birth defects, premature birth and infant mortality. Find information, resources, tools, and fact sheets.

Medline PlusExternal
Medline Plus has information available about pregnancy. Searching this website provides information on many different types of birth defects. It includes information on prevention and screening, research, organizations, and more.

National Birth Defects Prevention Network (NBDPN)
The mission of the NBDPN is to establish and maintain a national network of state and population-based programs for birth defects. Tools and resources include birth defects prevention month packets, surveillance guidelines, and folic acid information.

National Birth Defects Prevention Study
The National Birth Defects Prevention Study (NBDPS) looks at risk factors and potential causes ofbirth defects. Understanding the potential causes of birth defects can lead to recommendations, policy planning, and services to help prevent them.

National Environmental Public Health Tracking
The goal of environmental public health tracking is to protect communities by providing information to federal, state, and local agencies. Find a communications library, data resources, and publications.

Organization for Teratology Information SpecialistsExternal
This website focuses on medications and other exposures during pregnancy. They have a toll-free number (866-626-OTIS or 866-626-6847) that families and health care professionals can call to speak to one of the specialists. These calls are free of charge and confidential.