Data Hosting: United States Cancer Statistics

The United States Cancer Statistics (USCS) are the official federal statistics on cancer, providing cancer information on the entire U.S. population. They combine cancer registry data from CDC’s National Program of Cancer Registries (NPCR) and the National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program. The restricted access USCS dataset provides researchers access to cancer incidence and population data for all 50 states, the District of Columbia, and Puerto Rico.

About NPCR

About SEERexternal icon

About U.S. Cancer Statistics

USCS Data Documentation

2020 USCS Restricted Accesspdf icon  [PDF – 715 KB]

Comparative Effectiveness Research (CER) Data

In response to the need for data to support comparative effectiveness research (CER), or patient-centered outcomes research, the Agency for Healthcare Research and Quality (AHRQ) and CDC’s National Program of Cancer Registries (NPCR) developed a special data collection enhancement project to help answer specific CER questions through the development of analytic datasets. This cancer specific CER dataset includes unique detailed treatment and biomarker data for 2011 breast, colon, and rectal cancers as well as chronic myeloid leukemia cases collected from ten geographically diverse registries.

More about CER

CER Data and Documentation

2011 CER Restricted Access Data-dictionarypdf icon [PDF – 5.9 MB]

Location of Access:

Proposal

Proposal review will take 12 weeks. Submit completed proposals to rdca@cdc.gov.

Proposal process

Proposal amendments, including changes to the research team or minor adjustments to research questions or output, require an updated proposal and full review by Review Committee. Revisions in the proposal must be highlighted; please do not use track changes.

User Fees

The standard RDC fees are waived for these data because NPCR has contributed funds to cover them. Please indicate “not applicable – NPCR” on the Funding line in the proposal format.

Confidentiality and Disclosure

After the proposal is approved, all members of the research team are required to complete the Confidentiality Training.  Please submit your Confidentiality Training certificate and signed, notarized non-disclosure affidavit to your RDC Analyst.

Output Review for Disclosures

All output submitted for review must be the near final product and match the output described in your approved proposal.  We will not review frequency distributions or other large volumes of output

Page last reviewed: January 19, 2022, 03:17 PM