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Youth Research Cohort Update: Public Comment and Request for Information Deadlines Extended

August 18, 2023

The World Trade Center (WTC) Health Program has announced the following actions related to the establishment of the WTC Health Program Youth Research Cohort.

Public Comments

The public comment period has been extended 60 days for interested parties to submit comments about the World Trade Center (WTC) Health Program youth research cohort. This extension is in response to requests for more time to respond.

The original deadline was August 24, 2023. The new deadline is October 23, 2023.

The WTC Health Program is asking for feedback on the preferred approach for establishing a youth research cohort from any interested party including, but not limited to:

  • Educators
  • Researchers
  • Clinicians
  • Community members
  • WTC Health Program members
  • Treatment providers, and
  • Government agencies at all levels (Federal, State, Territorial, local, and Tribal).

For more on the official public Request for Information and deadline extension, visit the Federal Register Notice posted on August 18, 2023.

Request for Information Response

Effective August 11, 2023, the deadline to submit a Request for Information (RFI) response related to the development of the WTC Health Program Youth Research Cohort has been extended. The deadline is now October 31, 2023, at 3pm ET.

Through this RFI , the WTC Health Program is seeking input on best practices and methods for assembling and engaging a cohort of individuals with sufficient representation of this population of 9/11-impacted youth.

For more on the official Request for Information and deadline extension, visit the SAMS RFI updated on August 11, 2023.

About the Youth Research Cohort

The youth research cohort will enable future studies on health, social, and educational impacts among persons exposed to the September 11, 2001, terrorist attacks who were aged 21 years or younger at the time of their exposures.

In December 2022, the Consolidated Appropriations Act, 2023, amended section 3341 of the Public Health Service Act to direct the Administrator of the WTC Health Program, in consultation with the Secretary of Education, to establish this new research cohort.

For more information on the cohort, including proposed approach and resources, visit the Youth Cohort page.