Designated Representative in the WTC Health Program

What is a designated representative in the WTC Health Program?

A designated representative is someone whom you appoint and authorize to act on your behalf and represent your administrative interests in the WTC Health Program.

A designated representative is allowed to provide and obtain personal information regarding your application to the WTC Health Program, your benefits, and your membership in the Program. A designated representative can also make a request or give direction to the Program regarding your eligibility, certification, or any other administrative issue under the WTC Health Program, including appeals.

By designating a representative, you are authorizing the WTC Health Program to disclose your information to the individual and authorizing that individual to do the following:

  • Serve as your representative in all matters pertaining to your membership in the WTC Health Program; and
  • Receive and/or provide information pertaining to your membership and participation in the WTC Health Program, including copies of factual and medical evidence contained in your records for the Program. Please note: Any requirement of the WTC Health Program to notify you in writing is fully satisfied if sent to the designated representative

However, this person may not make medical care (e.g., treatment) decisions on your behalf.


Who can be a designated representative?

A designated representative in the WTC Health Program can be anyone such as an attorney, family member, advocate, or friend, unless that individual's service as a representative would violate any applicable provision of law. A parent or guardian may act on behalf of a minor. A Federal employee may act as a representative only on behalf of the individuals specified in, and in the manner permitted by, 18 U.S.C. §§ 203 and 205¹.

A designated representative differs from any attorney or licensed representative involved in any workers’ compensation or other worker-related injury or illness claim you may have.


What do I do if I already have a healthcare proxy or have assigned healthcare power of attorney?

You may have appointed a healthcare proxy or assigned a healthcare power of attorney to a family member or other person so that they may obtain, use, and disclose your personal information, and/or make medical treatment decisions on your behalf.

A designated representative in the WTC Health Program may not make medical care (e.g., treatment) decisions on your behalf. If you would like your healthcare proxy or person with healthcare power of attorney to also serve as your WTC Health Program designated representative, please complete and submit the required forms available below.


How many designated representatives can I appoint?

The WTC Health Program will only recognize one designated representative at a given time, and the designated representative must be properly appointed in writing using the forms below.

An entire organization or group of people—such as a law firm or multiple family members—is not permitted.

Once your designated representative has been properly appointed, the WTC Health Program will not recognize another individual as a designated representative until the appointment of the first designated representative is withdrawn in writing.

Please note: Your Clinical Center of Excellence or the Nationwide Provider Network may have additional requirements and forms for medical records to be released to your designated representative.


How do I appoint a designated representative?

To designate a representative, you must fill out and submit both of the forms below to the WTC Health Program.


What if I need help or have additional questions about designated representatives?

If you need help or have additional questions, please call the WTC Health Program Help Line at 1-888-982-4748 or email WTC@cdc.gov



¹An employee may represent, with or without compensation, the following: the employee (self-representation); a parent, spouse or child of the employee; or a person or estate that the employee serves as a guardian, executor, administrator, trustee or personal fiduciary. See Compensation to Members of Congress, officers, others in matters affecting the Government.

²Health Insurance Portability and Accountability Act of 1996 (HIPAA). Learn more about HIPAA and the HIPAA Privacy Rule at https://www.hhs.gov/hipaa/index.html