Meetings

Young woman participating in a webinar conference call

THE CDC CFS Patient-Centered Outreach and Communication Activity (PCOCA) has been  changed to:

CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (MECFS-SEC)


CDC MECFS Stakeholder Engagement and Communication (SEC) Webinar/Conference Call

Mark Your Calendars

March 11, 2019
3:00 pm-4:00 pm Eastern Time

Participants Please Call in Using the Following Information:

  • Call number: 1-888-603-8916
  • Participant Code: 7907006

Metting Agenda


3:00pm
Welcome and SEC Call Overview


3:05pm
Updates from CDC – Elizabeth Unger, PhD, MD
Branch Chief, Chronic Viral Diseases Branch
Centers for Disease Control and Prevention


3:15pm
 “Orthostatic Intolerance: Research and Clinical Insights
Benjamin H. Natelson, MD
Director, Pain & Fatigue Study Center, Mount Sinai Beth Israel, New York, New York
Professor of Neurology, Icahn School of Medicine at Mount Sinai, New York, New York


3:45pm
Questions from MECFS SEC Call Mailbox for Guest Speaker and CDC


Disclaimer: Although the content of calls is directed to patients, caregivers, health care professionals, and other interested parties, CDC has no control over who participates on the conference call. Therefore please exercise discretion on sensitive content and material, as confidentiality during these calls cannot be guaranteed.

Please note that questions for the Guest Speakers and CDC can be submitted only via email at MECFSSEC@cdc.gov. This mailbox cannot respond to inquiries received and is in use only for the scheduled MECFS-SEC calls. If you would like to be added to the call list, please send an email to MECFSSEC@cdc.gov.

Previous Conference Calls

May 10, 2018

“ME/CFS: The Invisible Disease and its Educational Implications for Young People”

Faith Newton, Ed.D., Professor of Education, Coordinator of Middle Level Education, Delaware State University

Audio Cdc-media[MP3 – 10MB] | Transcript Cdc-pdf[PDF – 191KB]

November 2, 2017

“Take Home Messages from the 2015 Institute of Medicine Report on ME/CFS”

Lucinda Bateman MD: Founder and Medical Director of the Bateman Horne Center
Ellen Clayton, MD, JD: Craig-Weaver Professor of Pediatrics, Vanderbilt University Medical Center, Professor of Law, Vanderbilt University School of Law, Co-Founder, Center for Biomedical Ethics and Society
Peter Rowe, MD: Professor of Pediatrics, Johns Hopkins Children’s Center,  Director, Children’s Center Chronic Fatigue Clinic

Audio File Cdc-media[MP3 – 10MB] | Transcript Cdc-pdf[PDF – 210KB]


May 25, 2017

“Metabolic Features of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)”

Robert K. Naviaux, MD, PhD
Professor of Genetics Biochemical Genetics and Metabolism Departments of Medicine, Pediatrics, and Pathology
Co-director The Mitochondrial and Metabolic Disease Center (MMDC)
University of California San Diego (UCSD) School of Medicine

Transcript for the 9th CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (ME/CFS-SEC) Cdc-pdf[PDF – 250KB]

June 23, 2016

”Current and Future Research on ME/CFS Treatments – an Update from the Field”

Jarred Younger, Ph.D.
Associate Professor, Department of Psychology
Associate Professor, Department of Anesthesiology and Perioperative Medicine
Associate Professor, Division of Clinical Immunology and Rheumatology
Director of the Neuroinflammation, Pain and Fatigue Lab at UAB University of Alabama at Birmingham

October 8, 2015

”Managing ME/CFS/SEID: Learning to Pace”

Charles Lapp, MD
Medical Director, Hunter-Hopkins Center, Charlotte, NC

Bruce Campbell, PhD
Executive Director, CFIDS and Fibromyalgia Self-Help Program

 

February 23, 2015

“Stanford ME/CFS Initiative: Collaboration, Innovation and Discovery”

Jose Montoya, MD
Professor of Medicine
Department of Medicine, Division of Infectious Diseases and Geographic Medicine, 2016
School of Medicine Stanford University, Stanford, California

September 9, 2014

“Can ME/CFS and FM Sleep Research Help You Sleep?”

Lucinda Bateman MD
Director, Fatigue Consultation Clinic
Adjunct Assistant Professor, Anesthesiology – Operations, University of Utah
Adjunct Instructor, Family And Preventive Medicine, University of Utah

 

February 25, 2014

“CFS and Cognitive Function”

Gudrun Lange, Ph.D.
Consultant Clinical Neuropsychologist
Pain and Fatigue Study Center
Beth Israel Medical Center, NY, NY
Professor
Department of Physical Medicine and Rehabilitation Rutgers University

September 10, 2013

 “Infection and Immunity in CFS”

 W. Ian Lipkin, MD
John Snow Professor and Director
Center for Infection and Immunity
Mailman School of Public Health
Columbia University

 

January 14, 2013

“Redefining Exercise in CFS through Reconstruction of Aerobic Capacity”

 Nancy Klimas, MD
Director, Institute for Neuro-Immune Medicine

Connie Sol, PhDc
Clinical Exercise Physiologist, Institute for Neuro-Immune Medicine

August 9, 2012

“Issues in Identifying Similar Participants for CFS Studies”

 Leonard Jason, PhD
Director, Center for Community Research, DePaul University

Summary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting on September 26, 2016

CDC held a roundtable meeting on September 26, 2016 with stakeholders composed of ME/CFS patients, advocates, clinicians with ME/CFS expertise, healthcare professional organizations, medical educators, researchers/foundations, and other government agencies. The goal of the face-to-face meeting was to provide an opportunity for individuals to share thoughts on how the Institute of Medicine (IOM) Report could best be communicated through materials and content on the CDC website.