Meetings
CDC holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. CDC co-sponsors and participates in the NIH Interagency ME/CFS Working Group meetings. CDC also holds Roundtable Meetings with stakeholders composed of ME/CFS patients, advocates, educators, clinicians, and researchers to gather vital stakeholder input on specific projects and products.
Upcoming Meetings
February 25, 2021 and February 26, 2021
1:00-5:00 PM ET and 1:00-3:00 PM ET
2nd Interagency ME/CFS Working Group Meeting
The working group will address workforce development and education of ME/CFS healthcare providers as well as share updates about current activities to address prolonged illness following COVID-19, also referred to as “long COVID.”
Register in advance for this webinar by clicking the link, or copying and pasting the link into your web browser:
Zoom Webinarexternal icon
On the registration page, please register for each day separately.
After registering, you will receive a confirmation email containing information about joining the webinar.
For closed captioning during the meeting:
Thursday, February 25: https://www.captionedtext.com/client/event.aspx?EventID=4716684&CustomerID=321external icon
Friday, February 26: https://www.captionedtext.com/client/event.aspx?EventID=4716686&CustomerID=321external icon
A recording of the meeting will be made available after the meeting.
AGENDA
February 25, 2021
1:00–5:00 PM Eastern Time
- Welcome
- Goals of the Working Group and Meeting
- ME/CFS Health Care Workforce Development: Documentation of Need
- Challenges from Clinician Viewpoint
- Description of Current Initiatives to Address and Discussion
- Other Business
- Discussion/Q&A
February 26, 2021
1:00–3:00 PM Eastern Time
- Welcome and Goal of Meeting
- What We’re Learning about Long COVID
- Research on Long COVID
- Other Activities
- Cross-agency Collaboration
- Discussion/Q&A
To ask a question within the Zoom webinar platform during the meeting, please:
- Click on the “Q&A” button.
- Type your question in the “Q&A” box.
- Submit your question.
If you would like to be notified of future calls, please send an email to MECFSSEC@cdc.gov.
Previous Meeting Materials
Roundtable Meetings
Building on the first roundtable project, the goal of this meeting was to provide an opportunity for stakeholders to share their input on ME/CFS educational materials for patients and healthcare providers.
- NEW Patient Tools – These handouts were developed based on feedback from stakeholders and serve as the final product from this meeting. These tools help patients and caregivers manage their healthcare provider visits.
- Roundtable Summary pdf icon[PDF – 118KB]
- Appendix 1: Call List pdf icon[PDF – 342KB]
- Appendix 2: Agenda pdf icon[PDF – 508KB]
- Appendix 3: Fred Fridinger, DrPH presentation pdf icon[PDF – 1.04MB]
- Appendix 3: Lily Chu, MD, MSHS presentation pdf icon[PDF – 333KB]
- Appendix 3: Christine E. Prue, MSPD, PhD, and Valerie Johnson, MPH, CHES presentation pdf icon[PDF – 1.65MB]
The goal of this face-to-face meeting was to provide an opportunity to gather stakeholder input on how the Institute of Medicine (IOM) Report could best be communicated through materials and content on the CDC website.