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CDC holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. CDC co-sponsors and participates in the NIH Interagency ME/CFS Working Group meetings. CDC also holds Roundtable Meetings with partners composed of ME/CFS patients, advocates, educators, clinicians, and researchers to gather vital partner input on specific projects and products.

Stakeholder Engagement and Communication (SEC) Calls

December 16, 2021, 3:00 PM ET

Participants can join the Zoom webinar by clicking this link:
https://cdc.zoomgov.com/j/1604731665?pwd=cmoyQllSQ0tmMVVWNFI0RDBEbUpIdz09external icon

When the Zoom page opens:

  • Click on the “Launch Meeting” button
  • Enter your email address and name
  • Click on the “Join Webinar” button

Participants can also join by phone using one of the following numbers:

  • Telephone: 1-669-254-5252 or 1-646-828-7666
    • Meeting ID: 160 473 1665
    • Passcode: 00127230

International numbers available: https://cdc.zoomgov.com/u/amrAMO4Qbexternal icon

Meeting Agenda

Welcome and SEC Call Overview

Updates from CDC

Elizabeth Unger, Ph.D., MD
Branch Chief, Chronic Viral Diseases Branch
Centers for Disease Control and Prevention

"Is ME/CFS Another Face of Long Covid?"

Hector Bonilla, MD
Clinical Associate Professor, Medicine - Infectious Diseases
Stanford University

Question and Answer (Q&A)

To ask a question during the meeting within the Zoom webinar platform, please:

  • Click on the “Raise Hand” button.
  • Ask your question when prompted.

To ask a question during the meeting by phone, please:

  • Enter *9 to add yourself to the queue.
  • Ask your question when prompted.

Disclaimer: Although the content of calls is directed to patients, caregivers, healthcare professionals, and other interested parties, CDC has no control over who participates on the conference call. Therefore, please exercise discretion on sensitive content and material, as confidentiality during these calls cannot be guaranteed.

If you would like to be added to the call list, please send an email to MECFSSEC@cdc.gov.

Previous SEC Calls

May 13, 2021, 3:00 PM ET

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call—Featuring a presentation on “Exercise Testing in the MCAM Study” by Dr. Dane Cook, Professor of Exercise Psychology from the University of Wisconsin-Madison School of Education and updates from Elizabeth Unger, Ph.D., MD, Branch Chief of CDC’s Chronic Viral Disease Branch, and a question and answer with Dr. Cook and CDC.

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Interagency ME/CFS Working Group Meetings

February 25, 2021 and February 26, 2021

The working group addressed workforce development and education of ME/CFS healthcare providers and shared updates about current activities to address prolonged illness following COVID-19, also referred to as “long COVID.”

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Roundtable Meetings

The Third Roundtable Meeting on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)—Working Better Together

CDC hosted its third roundtable meeting on ME/CFS in mid-October 2021. Building on the format of the last two roundtable meetings, the third roundtable provided an opportunity for participants to share successful partnership experiences and use these discussions to improve health outcomes for people living with ME/CFS.

The summary report will be coming soon!

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Page last reviewed: November 17, 2021
Content source: Centers for Disease Control and Prevention, National Center for Emerging and Zoonotic Infectious Diseases (NCEZID), Division of High-Consequence Pathogens and Pathology (DHCPP)