Meetings

CDC holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. CDC co-sponsors and participates in the NIH Interagency ME/CFS Working Group meetings. CDC also holds Roundtable Meetings with stakeholders composed of ME/CFS patients, advocates, educators, clinicians, and researchers to gather vital stakeholder input on specific projects and products.

Upcoming Meetings

Young woman participating in a webinar conference call

February 25, 2021 and February 26, 2021
1:00-5:00 PM ET and 1:00-3:00 PM ET

2nd Interagency ME/CFS Working Group Meeting

The working group will address workforce development and education of ME/CFS healthcare providers as well as share updates about current activities to address prolonged illness following COVID-19, also referred to as “long COVID.”

Register in advance for this webinar by clicking the link, or copying and pasting the link into your web browser:
Zoom Webinarexternal icon

On the registration page, please register for each day separately.
After registering, you will receive a confirmation email containing information about joining the webinar.

For closed captioning during the meeting:
Thursday, February 25: https://www.captionedtext.com/client/event.aspx?EventID=4716684&CustomerID=321external icon
Friday, February 26: https://www.captionedtext.com/client/event.aspx?EventID=4716686&CustomerID=321external icon

A recording of the meeting will be made available after the meeting.

AGENDA
February 25, 2021
1:00–5:00 PM Eastern Time

  1. Welcome
  2. Goals of the Working Group and Meeting
  3. ME/CFS Health Care Workforce Development: Documentation of Need
  4. Challenges from Clinician Viewpoint
  5. Description of Current Initiatives to Address and Discussion
  6. Other Business
  7. Discussion/Q&A

February 26, 2021
1:00–3:00 PM Eastern Time

  1. Welcome and Goal of Meeting
  2. What We’re Learning about Long COVID
  3. Research on Long COVID
  4. Other Activities
  5. Cross-agency Collaboration
  6. Discussion/Q&A

To ask a question within the Zoom webinar platform during the meeting, please:

  • Click on the “Q&A” button.
  • Type your question in the “Q&A” box.
  • Submit your question.

If you would like to be notified of future calls, please send an email to MECFSSEC@cdc.gov.

Previous Meeting Materials

September 23, 2020, 3:00 PM ET

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call – Featuring a presentation on “Immune Dysfunction in ME/CFS” from Maureen Hanson, PhD, Liberty Hyde Bailey Professor in the Department of Molecular Biology & Genetics, Cornell University, Ithaca, New York, CDC updates from Elizabeth Unger, PhD, MD, Branch Chief of CDC’s Chronic Viral Diseases Branch, and a question and answer session with Dr. Hanson and CDC.


August 11, 2020

Interagency ME/CFS Working Group Meeting – Featuring updates from federal agencies including CDC, National Institutes of Health, Congressionally Directed Medical Research Programs, and Veterans Affairs.

More information on the Trans-NIH ME/CFS websiteexternal icon.


February 13, 2020

Update on CDC ME/CFS program with Drs. Elizabeth Unger, Nanda Issa, Dana Brimmer

Conference Call Transcript pdf icon[PDF – 98 KB, 508]

Conference Call Audio media icon[MP3 – 10 MB]

Roundtable Meetings

Summary of the Second Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting held August 30, 2018

Building on the first roundtable project, the goal of this meeting was to provide an opportunity for stakeholders to share their input on ME/CFS educational materials for patients and healthcare providers.

Summary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting on September 26, 2016

The goal of this face-to-face meeting was to provide an opportunity to gather stakeholder input on how the Institute of Medicine (IOM) Report could best be communicated through materials and content on the CDC website.