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CDC holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. CDC co-sponsors and participates in the NIH Interagency ME/CFS Working Group meetings. CDC also holds Roundtable Meetings with partners composed of ME/CFS patients, advocates, educators, clinicians, and researchers to gather vital partner input on specific projects and products.

Stakeholder Engagement and Communication (SEC) Calls

May 13, 2021, 3:00 PM ET

Please note the change in how to access the meeting. Participants can join the call using Zoom by clicking on the link or copying and pasting it into your web browser.

Https://cdc.zoomgov.com/j/1603630197?Pwd=chuvnlztru9qumkyzfhjm2jibjk5zz09

When the Zoom page opens, click on the “launch meeting” button, enter your email address and name, then click on the “join webinar” button.

Participants can also join by telephone and call in using the following number: 1-669-254-5252

Meeting ID: 160 363 0197
Passcode: 07936277

To ask a question during the meeting within the Zoom webinar platform, please:

  • Click on the “Q&A” button.
  • Type your question in the “Q&A” box.
  • Submit your question.

Meeting Agenda

Welcome and SEC Call Overview

Updates from CDC

Elizabeth Unger, Ph.D., MD
Branch Chief, Chronic Viral Diseases Branch
Centers for Disease Control and Prevention
“Exercise Testing in the MCAM Study”
Dane B. Cook, Ph.D.
Professor, Exercise Psychology
University of Wisconsin-Madison School of Education

Questions for Guest Speaker and CDC

Disclaimer: Although the content of calls is directed to patients, caregivers, healthcare professionals, and other interested parties, CDC has no control over who participates on the conference call.  Therefore, please exercise discretion on sensitive content and material, as confidentiality during these calls cannot be guaranteed.

If you would like to be added to the call list, please send an email to MECFSSEC@cdc.gov.

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Interagency ME/CFS Working Group Meetings

February 25, 2021 and February 26, 2021

The working group addressed workforce development and education of ME/CFS healthcare providers and shared updates about current activities to address prolonged illness following COVID-19, also referred to as “long COVID.”

August 11, 2020

Featuring updates from federal agencies including CDC, National Institutes of Health, Congressionally Directed Medical Research Programs, and Veterans Affairs.

More information on the Trans-NIH ME/CFS websiteexternal icon.

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Roundtable Meetings

Summary of the Second Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting held August 30, 2018

Building on the first roundtable project, the goal of this meeting was to provide an opportunity for partners to share their input on ME/CFS educational materials for patients and healthcare providers.

Summary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting on September 26, 2016

The goal of this face-to-face meeting was to provide an opportunity to gather partner input on how the Institute of Medicine (IOM) Report could best be communicated through materials and content on the CDC website.

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Page last reviewed: April 23, 2021
Content source: Centers for Disease Control and Prevention, National Center for Emerging and Zoonotic Infectious Diseases (NCEZID), Division of High-Consequence Pathogens and Pathology (DHCPP)