CDC holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. CDC co-sponsors and participates in the NIH Interagency ME/CFS Working Group meetings. CDC also holds Roundtable Meetings with partners composed of ME/CFS patients, advocates, educators, clinicians, and researchers to gather vital partner input on specific projects and products.

Interagency ME/CFS Working Group Meetings

February 25, 2021 and February 26, 2021

The working group addressed workforce development and education of ME/CFS healthcare providers and shared updates about current activities to address prolonged illness following COVID-19, also referred to as “long COVID.”

August 11, 2020

Featuring updates from federal agencies including CDC, National Institutes of Health, Congressionally Directed Medical Research Programs, and Veterans Affairs.

More information on the Trans-NIH ME/CFS websiteexternal icon.

Roundtable Meetings

Summary of the Second Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting held August 30, 2018

Building on the first roundtable project, the goal of this meeting was to provide an opportunity for partners to share their input on ME/CFS educational materials for patients and healthcare providers.

Summary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting on September 26, 2016

The goal of this face-to-face meeting was to provide an opportunity to gather partner input on how the Institute of Medicine (IOM) Report could best be communicated through materials and content on the CDC website.