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Meetings

THE CDC CFS Patient-Centered Outreach and Communication Activity (PCOCA) has been  changed to:

CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (MECFS-SEC)


CDC MECFS Stakeholder Engagement and Communication (SEC) Conference Call

November 2, 2017
3:00 –4:00 pm E.D.T.
Number: 1-888-790-3251
Participant Code: 3287773

Meeting Agenda

Time Description
3:00pm Welcome and Telephone Overview
3:05pm Updates from CDC – Elizabeth Unger, PhD, MD, Branch Chief, Chronic Viral Diseases Branch, Centers for Disease Control and Prevention
3:15pm

“Take Home Messages from the 2015 Institute of Medicine Report on ME/CFS”

  • Lucinda Bateman MD: Founder and Medical Director of the Bateman Horne Center
  • Ellen Clayton, MD, JD: Craig-Weaver Professor of Pediatrics, Vanderbilt University Medical Center, Professor of Law, Vanderbilt University School of Law, Co-Founder, Center for Biomedical Ethics and Society
  • Peter Rowe, MD: Professor of Pediatrics, Johns Hopkins Children’s Center,  Director, Children’s Center Chronic Fatigue Clinic
3:45pm Questions from MECFS SEC Call Mailbox for Guest Speaker and CDC

Previous Conference Calls

2017

May 25, 2017

“Metabolic Features of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)”

Robert K. Naviaux, MD, PhD
Professor of Genetics Biochemical Genetics and Metabolism Departments of Medicine, Pediatrics, and Pathology
Co-director The Mitochondrial and Metabolic Disease Center (MMDC)
University of California San Diego (UCSD) School of Medicine

Transcript for the 9th CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (ME/CFS-SEC) [PDF – 250KB]

2016

June 23, 2016

”Current and Future Research on ME/CFS Treatments – an Update from the Field”

Jarred Younger, Ph.D.
Associate Professor, Department of Psychology
Associate Professor, Department of Anesthesiology and Perioperative Medicine
Associate Professor, Division of Clinical Immunology and Rheumatology
Director of the Neuroinflammation, Pain and Fatigue Lab at UAB University of Alabama at Birmingham

2015

October 8, 2015

”Managing ME/CFS/SEID: Learning to Pace”

Charles Lapp, MD
Medical Director, Hunter-Hopkins Center, Charlotte, NC

Bruce Campbell, PhD
Executive Director, CFIDS and Fibromyalgia Self-Help Program

 

February 23, 2015

“Stanford ME/CFS Initiative: Collaboration, Innovation and Discovery”

Jose Montoya, MD
Professor of Medicine
Department of Medicine, Division of Infectious Diseases and Geographic Medicine, 2016
School of Medicine Stanford University, Stanford, California

2014

September 9, 2014

“Can ME/CFS and FM Sleep Research Help You Sleep?”

Lucinda Bateman MD
Director, Fatigue Consultation Clinic
Adjunct Assistant Professor, Anesthesiology – Operations, University of Utah
Adjunct Instructor, Family And Preventive Medicine, University of Utah

 

February 25, 2014

“CFS and Cognitive Function”

Gudrun Lange, Ph.D.
Consultant Clinical Neuropsychologist
Pain and Fatigue Study Center
Beth Israel Medical Center, NY, NY
Professor
Department of Physical Medicine and Rehabilitation Rutgers University

2013

September 10, 2013

 “Infection and Immunity in CFS”

 W. Ian Lipkin, MD
John Snow Professor and Director
Center for Infection and Immunity
Mailman School of Public Health
Columbia University

 

January 14, 2013

“Redefining Exercise in CFS through Reconstruction of Aerobic Capacity”

 Nancy Klimas, MD
Director, Institute for Neuro-Immune Medicine

Connie Sol, PhDc
Clinical Exercise Physiologist, Institute for Neuro-Immune Medicine

2012

August 9, 2012

“Issues in Identifying Similar Participants for CFS Studies”

 Leonard Jason, PhD
Director, Center for Community Research, DePaul University

Summary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting on September 26, 2016

CDC held a roundtable meeting on September 26, 2016 with stakeholders composed of ME/CFS patients, advocates, clinicians with ME/CFS expertise, healthcare professional organizations, medical educators, researchers/foundations, and other government agencies. The goal of the face-to-face meeting was to provide an opportunity for individuals to share thoughts on how the Institute of Medicine (IOM) Report could best be communicated through materials and content on the CDC website.

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