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CDC holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. CDC co-sponsors and participates in the NIH Interagency ME/CFS Working Group meetings. CDC also holds Roundtable Meetings with partners composed of ME/CFS patients, advocates, educators, clinicians, and researchers to gather vital partner input on specific projects and products.

Upcoming Meetings

The next CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Stakeholder Engagement and Communication (SEC) Conference Call will be held on Friday, May 13, 2022, 3 p.m. Eastern Time.

Meeting Agenda:

Welcome and SEC Call Overview

Updates from CDC:
Elizabeth Unger, PhD, MD
Branch Chief, Chronic Viral Diseases Branch, Centers for Disease Control and Prevention

ME/CFS Program Update pdf icon[PDF - 7 pages]

Guest Speaker:
Stephen Gluckman, MD
Professor of Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA
"The Management Options (yes there are management options) for People with ME/CFS"

Participants can join the Zoom webinar by clicking this link:

https://cdc.zoomgov.com/j/1610234560?pwd=d2ZTOStBL05lNnhaZjUremFNd2wrZz09external icon

When the Zoom page opens, click on the “launch meeting” button, enter your email address and name, then click on the “join webinar” button.

Participants can also join by phone using one of the following numbers (when prompted, please enter the meeting id and passcode):

TELEPHONE: 1-669-254-5252 or 1-646-828-7666

MEETING ID: 161 023 4560

Passcode: 55637917

International numbers available:

https://cdc.zoomgov.com/u/aejSZoFrLHexternal icon

Question and Answer (Q&A)

To ask a question during the meeting within the Zoom webinar platform, please:

  • Click on the “Raise Hand” button.
  • Ask your question when prompted.

To ask a question during the meeting by phone, please:

  • Enter *9 to add yourself to the queue.
  • Ask your question when prompted.

For closed captioning, please click the following link:

https://www.streamtext.net/player?event=4480MECFSStakeholdersEngagementCommunicationsexternal icon

If you would like to be notified of future calls, please send an email to MECFSSEC@cdc.gov.

Previous Meetings

Stakeholder Engagement and Communication (SEC) Calls

December 16, 2021, 3:00 PM ET

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call—Featuring a presentation titled, “Is ME/CFS Another Face of Long Covid?” by Dr. Hector Bonilla, Clinical Associate Professor of Infectious Diseases at Stanford University’s School of Medicine and updates from Elizabeth Unger, Ph.D., MD, Branch Chief of CDC’s Chronic Viral Disease Branch, and a question and answer with Dr. Bonilla and CDC.

May 13, 2021, 3:00 PM ET

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call—Featuring a presentation on “Exercise Testing in the MCAM Study” by Dr. Dane Cook, Professor of Exercise Psychology from the University of Wisconsin-Madison School of Education and updates from Elizabeth Unger, Ph.D., MD, Branch Chief of CDC’s Chronic Viral Disease Branch, and a question and answer with Dr. Cook and CDC.

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Interagency ME/CFS Working Group Meetings

February 25, 2021 and February 26, 2021

The working group addressed workforce development and education of ME/CFS healthcare providers and shared updates about current activities to address prolonged illness following COVID-19, also referred to as “long COVID.”

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Roundtable Meetings

Summary of the Third Roundtable Meeting on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) held October 12 and 14, 2021

Building on the format of the last two roundtable meetings, the third roundtable provided an opportunity for participants to share successful partnership experiences with the theme of Working Better Together.

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Page last reviewed: May 12, 2022
Content source: Centers for Disease Control and Prevention, National Center for Emerging and Zoonotic Infectious Diseases (NCEZID), Division of High-Consequence Pathogens and Pathology (DHCPP)