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CDC holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. CDC co-sponsors and participates in the NIH Interagency ME/CFS Working Group meetings. CDC also holds Roundtable Meetings with partners composed of ME/CFS patients, advocates, educators, clinicians, and researchers to gather vital partner input on specific projects and products.

The next CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (MECFS-SEC) Conference Call will be held on Tuesday, December 6, 2022, 3:00 pm Eastern Time.

Meeting Agenda

Welcome and SEC Call Overview

Updates from CDC [156 KB, 7 pages]:
Elizabeth Unger, PhD, MD
Branch Chief, Chronic Viral Diseases Branch, Centers for Disease Control and Prevention

Guest Speaker:
David M. Systrom, Jr., MD
Brigham and Women’s Hospital
Assistant Professor of Medicine, Harvard Medical School
Director of the Massachusetts General Hospital Cardiopulmonary Laboratory
"Neurovascular Dysregulation Underlies Exercise Intolerance in ME/CFS"

Participants can join the Zoom webinar by clicking the link below:

Join the Zoom Webinar

  • Zoom Webinar URL: https://cdc.zoomgov.com/j/1602725945?pwd=ZXZxcGJ2bTh1MjFKUURIcjlUS0crdz09

When the Zoom page opens:

  1. Click on the “launch meeting” button.
  2. Enter your email address and name.
  3. Click on the “join webinar” button.

Join by phone using one of the following numbers (when prompted, please enter the meeting id and passcode):

Telephone: 1-669-254-5252 or 1-646-828-7666

Meeting ID: 160 272 5945

Passcode: 71633915

View International numbers

Question and Answer (Q&A)

To ask a question during the meeting within the Zoom webinar platform, please:

  • Click on the “Raise Hand” button.
  • Ask your question when prompted.

To ask a question during the meeting by phone, please:

  • Enter *9 to add yourself to the queue.
  • Ask your question when prompted.

To access closed captioning, please click the following link:

Launch closed captioning

  • Closed captioning URL: https://www.streamtext.net/player?event=11599StakeholderEngagementCall

If you would like to be notified of future calls, please send an email to MECFSSEC@cdc.gov.

Previous Meetings

Stakeholder Engagement and Communication (SEC) Calls

December 6, 2022, 3:00 PM ET

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call—Featuring a presentation titled, “Neurovascular Dysregulation During Exercise in ME/CFS & Long COVID,” by Dr. David Systrom, Brigham and Women’s Hospital and Harvard Medical School. Also featuring program updates from Drs. Elizabeth Unger and Jennifer Cope and a question-and-answer session with Drs. Systrom and Unger.

May 13, 2022, 3:00 PM ET

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call—Featuring a presentation titled, “Myalgic Encephalomyelitits/Chronic Fatigue Syndrome Management Options,” by Dr. Stephen Gluckman, Professor of Medicine, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA and updates from Elizabeth Unger, Ph.D., MD, Branch Chief of CDC’s Chronic Viral Disease Branch, and a question and answer with Dr. Gluckman.

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Interagency ME/CFS Working Group Meetings

February 25, 2021 and February 26, 2021

The working group addressed workforce development and education of ME/CFS healthcare providers and shared updates about current activities to address prolonged illness following COVID-19, also referred to as “long COVID.”

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Roundtable Meetings

Summary of the Third Roundtable Meeting on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) held October 12 and 14, 2021

Building on the format of the last two roundtable meetings, the third roundtable provided an opportunity for participants to share successful partnership experiences with the theme of Working Better Together.

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