Meetings

Young woman participating in a webinar conference call

CDC holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. CDC also co-sponsors and participates in the NIH Interagency ME/CFS Working Group meetings.

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call

September 23, 2020, 3:00 PM ET

Join by phone: 1-888-391-6584 (Participant code: 2051049)
Join by Adobe Connect Webinar
- Click the “Guest” option, type your name, and click the “Enter Room” button to join.
- If you have never attended an Adobe Connect meeting before, it is recommended that you test your connection and get a quick overviewexternal icon before the call.
Closed captioning is available by Federal Relayexternal icon (Event ID: 4537697)

Our next SEC Call will feature “Immune Dysfunction in ME/CFS” from Maureen Hanson, Ph.D., Liberty Hyde Bailey Professor in the Department of Molecular Biology & Genetics, Cornell University, Ithaca, New York. Participants will also hear CDC updates from Elizabeth Unger, PhD, MD, Branch Chief of CDC’s Chronic Viral Diseases Branch, as well as a question and answer session with Dr. Hanson and CDC.

If you would like to be notified of future calls, please send an email to MECFSSEC@cdc.gov.

Previous Meeting Materials

August 11, 2020

Interagency ME/CFS Working Group Meeting (Featuring updates from federal agencies including CDC, National Institutes of Health, Congressionally Directed Medical Research Programs, and Veterans Affairs)

More information on the Trans-NIH ME/CFS websiteexternal icon.

February 13, 2020

Drs. Elizabeth Unger, Nanda Issa, Dana Brimmer

Conference Call Transcript pdf icon[PDF – 98 KB, 508]

Conference Call Audio media icon[MP3 – 10 MB]

September 16, 2019

“The Biology of ME/CFS: Emerging Models”
Anthony L. Komaroff, M.D.
Simcox-Clifford-Higby Distinguished Professor of Medicine, Harvard Medical School
Senior Physician, Brigham and Women’s Hospital, Boston, Massachusetts

Conference Call Transcript pdf icon[PDF – 263KB, 508]

Conference Call Audio media icon[MP3 – 10MB]

The Biology of ME/CFS Emerging Models Presentation Slides pdf icon[PDF – 2 MB]

June 3, 2019

“Pacing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome & Fibromyalgia”
Alison C. Bested M.D. FRCPC
Diplomate, Integrative Medicine
Associate Professor and Chair Integrative Medicine
Institute for Neuro-Immune Medicine
Dr. Kiran Patel College of Osteopathic Medicine
Nova Southeastern University, Fort Lauderdale, Florida

Conference Call Transcript pdf icon[PDF – 186KB, 508]

Pacing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome & Fibromyalgia Presentation pdf icon[PDF – 3 MB]

March 11, 2019

“Orthostatic Intolerance: Research and Clinical Insights“
Benjamin H. Natelson, MD
Director, Pain & Fatigue Study Center, Mount Sinai Beth Israel, New York, New York
Professor of Neurology, Icahn School of Medicine at Mount Sinai, New York, New York

Conference Call Transcript pdf icon[PDF – 89KB, 508]

Conference Call Audio media icon[MP3 – 9 MB]

May 10, 2018

“ME/CFS: The Invisible Disease and its Educational Implications for Young People”

Faith Newton, Ed.D., Professor of Education, Coordinator of Middle Level Education, Delaware State University

Audio media icon[MP3 – 10MB] | Transcript pdf icon[PDF – 191KB]

ME/CFS–The Invisible Disease and its Educational Implications for Young People pdf icon[PDF – 149KB, 508]

November 2, 2017

“Take Home Messages from the 2015 Institute of Medicine Report on ME/CFS”

Lucinda Bateman MD: Founder and Medical Director of the Bateman Horne Center
Ellen Clayton, MD, JD: Craig-Weaver Professor of Pediatrics, Vanderbilt University Medical Center, Professor of Law, Vanderbilt University School of Law, Co-Founder, Center for Biomedical Ethics and Society
Peter Rowe, MD: Professor of Pediatrics, Johns Hopkins Children’s Center, Director, Children’s Center Chronic Fatigue Clinic

Audio File media icon[MP3 – 10MB] | Transcript pdf icon[PDF – 210KB]

May 25, 2017

“Metabolic Features of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)”

Robert K. Naviaux, MD, PhD
Professor of Genetics Biochemical Genetics and Metabolism Departments of Medicine, Pediatrics, and Pathology
Co-director The Mitochondrial and Metabolic Disease Center (MMDC)
University of California San Diego (UCSD) School of Medicine

Transcript for the 9th CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (ME/CFS-SEC) pdf icon[PDF – 250KB]

June 23, 2016

”Current and Future Research on ME/CFS Treatments – an Update from the Field”

Jarred Younger, Ph.D.
Associate Professor, Department of Psychology
Associate Professor, Department of Anesthesiology and Perioperative Medicine
Associate Professor, Division of Clinical Immunology and Rheumatology
Director of the Neuroinflammation, Pain and Fatigue Lab at UAB University of Alabama at Birmingham

October 8, 2015

”Managing ME/CFS/SEID: Learning to Pace”

Charles Lapp, MD
Medical Director, Hunter-Hopkins Center, Charlotte, NC

Bruce Campbell, PhD
Executive Director, CFIDS and Fibromyalgia Self-Help Program

February 23, 2015

“Stanford ME/CFS Initiative: Collaboration, Innovation and Discovery”

Jose Montoya, MD
Professor of Medicine
Department of Medicine, Division of Infectious Diseases and Geographic Medicine, 2016
School of Medicine Stanford University, Stanford, California

September 9, 2014

“Can ME/CFS and FM Sleep Research Help You Sleep?”

Lucinda Bateman MD
Director, Fatigue Consultation Clinic
Adjunct Assistant Professor, Anesthesiology – Operations, University of Utah
Adjunct Instructor, Family And Preventive Medicine, University of Utah

February 25, 2014

“CFS and Cognitive Function”

Gudrun Lange, Ph.D.
Consultant Clinical Neuropsychologist
Pain and Fatigue Study Center
Beth Israel Medical Center, NY, NY
Professor
Department of Physical Medicine and Rehabilitation Rutgers University

September 10, 2013

“Infection and Immunity in CFS”

W. Ian Lipkin, MD
John Snow Professor and Director
Center for Infection and Immunity
Mailman School of Public Health
Columbia University

January 14, 2013

“Redefining Exercise in CFS through Reconstruction of Aerobic Capacity”

Nancy Klimas, MD
Director, Institute for Neuro-Immune Medicine

Connie Sol, PhDc
Clinical Exercise Physiologist, Institute for Neuro-Immune Medicine

August 9, 2012

“Issues in Identifying Similar Participants for CFS Studies”

Leonard Jason, PhD
Director, Center for Community Research, DePaul University

Summary of the Second Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting held August 30, 2018

CDC held a second roundtable meeting on August 30, 2018 with stakeholders composed of ME/CFS patients, advocates, clinicians with ME/CFS expertise, healthcare professional organizations, medical educators, researchers/foundations, and other government agencies. Building on the first roundtable project, the goal of this project was to provide an opportunity for individuals to share their thoughts on ME/CFS educational materials for patients as well as materials focused on the needs of healthcare providers. The project included various phases using small conference calls and the face-to-face meeting.

Summary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting on September 26, 2016

CDC held a roundtable meeting on September 26, 2016 with stakeholders composed of ME/CFS patients, advocates, clinicians with ME/CFS expertise, healthcare professional organizations, medical educators, researchers/foundations, and other government agencies. The goal of the face-to-face meeting was to provide an opportunity for individuals to share thoughts on how the Institute of Medicine (IOM) Report could best be communicated through materials and content on the CDC website.

Page last reviewed: September 18, 2020

Content source: Centers for Disease Control and Prevention, National Center for Emerging and Zoonotic Infectious Diseases (NCEZID), Division of High-Consequence Pathogens and Pathology (DHCPP)