Meetings

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CDC holds regular Stakeholder Engagement and Communication (SEC) calls to update the ME/CFS community on CDC activities and facilitate presentations from guest speakers. CDC co-sponsors and participates in the NIH Interagency ME/CFS Working Group meetings. CDC also holds Roundtable Meetings with stakeholders composed of ME/CFS patients, advocates, educators, clinicians, and researchers to gather vital stakeholder input on specific projects and products.

Upcoming Meetings

There are no meetings scheduled at this time.

If you would like to be notified of future calls, please send an email to MECFSSEC@cdc.gov.

Previous Meeting Materials

September 23, 2020, 3:00 PM ET

CDC ME/CFS Stakeholder Engagement and Communication (SEC) Call – Featuring a presentation on “Immune Dysfunction in ME/CFS” from Maureen Hanson, PhD, Liberty Hyde Bailey Professor in the Department of Molecular Biology & Genetics, Cornell University, Ithaca, New York, CDC updates from Elizabeth Unger, PhD, MD, Branch Chief of CDC’s Chronic Viral Diseases Branch, and a question and answer session with Dr. Hanson and CDC.

August 11, 2020

Interagency ME/CFS Working Group Meeting – Featuring updates from federal agencies including CDC, National Institutes of Health, Congressionally Directed Medical Research Programs, and Veterans Affairs.

More information on the Trans-NIH ME/CFS websiteexternal icon.

February 13, 2020

Update on CDC ME/CFS program with Drs. Elizabeth Unger, Nanda Issa, Dana Brimmer

Conference Call Transcript pdf icon[PDF – 98 KB, 508]

Conference Call Audio media icon[MP3 – 10 MB]

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Roundtable Meetings

Summary of the Second Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting held August 30, 2018

Building on the first roundtable project, the goal of this meeting was to provide an opportunity for stakeholders to share their input on ME/CFS educational materials for patients and healthcare providers.

Summary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Roundtable Meeting on September 26, 2016

The goal of this face-to-face meeting was to provide an opportunity to gather stakeholder input on how the Institute of Medicine (IOM) Report could best be communicated through materials and content on the CDC website.

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Page last reviewed: November 20, 2020
Content source: Centers for Disease Control and Prevention, National Center for Emerging and Zoonotic Infectious Diseases (NCEZID), Division of High-Consequence Pathogens and Pathology (DHCPP)