Meetings
THE CDC CFS Patient-Centered Outreach and Communication Activity (PCOCA) has been changed to:
CDC Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Stakeholder Engagement and Communication (MECFS-SEC)
CDC MECFS Stakeholder Engagement and Communication (SEC) Webinar/Conference Call
Date: June 3, 2019
Time: 3:00 pm – 4:00 pm Eastern Daylight Time
- Participants can either call in using the following information:
- Call number: 1-888-790-3359 | Participant Code: 4299828
- Or join the meeting using the webinar format by clicking the link, or copying and pasting it into your browser.
If you have never attended an Adobe Connect meeting before, it is recommended that you test the connection before the call date:
- Test your connection: https://adobeconnect.cdc.gov/common/help/en/support/meeting_test.htm
- Get a quick overview: http://www.adobe.com/products/adobeconnect.htmlexternal icon
| 3:00pm | Welcome and SEC Call Overview |
|---|---|
| 3:05pm | Updates from CDC – Elizabeth Unger, PhD, MD Branch Chief, Chronic Viral Diseases Branch Centers for Disease Control and Prevention |
| 3:15pm | “Pacing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome & Fibromyalgia” Alison C. Bested M.D. FRCPC Diplomate, Integrative Medicine Associate Professor and Chair Integrative Medicine Institute for Neuro-Immune Medicine Dr. Kiran Patel College of Osteopathic Medicine Nova Southeastern University, Fort Lauderdale, Florida |
| 3:45pm | Questions from MECFS SEC Call Mailbox for Guest Speaker and CDC |
Disclaimer: Although the content of calls is directed to patients, caregivers, health care professionals, and other interested parties, CDC has no control over who participates on the conference call. Therefore please exercise discretion on sensitive content and material, as confidentiality during these calls cannot be guaranteed
Previous Conference Calls
CDC held a roundtable meeting on September 26, 2016 with stakeholders composed of ME/CFS patients, advocates, clinicians with ME/CFS expertise, healthcare professional organizations, medical educators, researchers/foundations, and other government agencies. The goal of the face-to-face meeting was to provide an opportunity for individuals to share thoughts on how the Institute of Medicine (IOM) Report could best be communicated through materials and content on the CDC website.