Living with ME/CFS

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ME/CFS creates unique challenges for people living with the illness and for their loved ones. This page provides resources that may help people gain a better understanding of ME/CFS by reading stories from people living with the illness, viewing the Patient Toolkit, and watching videos to learn more about the illness.

Voice of the Patient

Collage of headshots of diverse people

Read stories from people with ME/CFS, told from their own unique point of view and in their own voices.

Read the Stories

Patient Toolkit

ME CFS Healthcare Visit Checklist

CDC has developed tools and resources to help people with ME/CFS, their caregivers, and families learn more about ME/CFS and manage their healthcare provider visits.

Get the Toolkit

CDC and WebMD Collaboration

WebMD anchorman sitting in front of screen with CDC campus building in background

CDC partnered with WebMD to publish an informational article, titled “Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): The Need to Raise Awareness.” Together, WebMD and CDC also produced a video that addresses the misconceptions around ME/CFS.

“Missing My Life” Educational Video

Opening screen shot of Missing My Life video

The “Missing My Life” video is a public service announcement developed by CDC to illustrate how much of an impact ME/CFS can have on life. In the video, an actress illustrates some of the challenges people with ME/CFS may face as they work to manage their illness.

Watch YouTube Video
Resources