Living with ME/CFS

Educational Video about Life with ME/CFS

Missing my life video clip

The “Missing My Life” video is a public service announcement developed by CDC to illustrate how much of an impact ME/CFS can have on life. In the video, an actress illustrates some of the challenges people with ME/CFS may face as they work to manage their illness.

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Voice of the Patient

Andrew's Story
man setting looking at body of water

I am a physician and had not heard of ME/CFS before I got it. I can’t tell you the specific day in August 1986 but many people with abrupt onset can. I didn’t know what hit me – it was awful. It was like a severe flu. In addition I could not tolerate loud sounds, bright lights, and my large leg muscles felt like jelly. I had no energy, no stability, and started to have sleep problems.

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Ann’s Story
stair case walking up in forest toward light

Right before I got sick, I was an international athlete and was going to graduate school. I was used to being busy and my body was reliable. I distinctly remember when I first became ill. There was an ice storm in my town and it shut down the power in my house. The crawl space became flooded and we spent many hours bailing out the water. The next day I woke up with the worst sore throat and felt sick overall, but I just kept going, thinking I would get better the next day. I developed bad vertigo, and also had fatigue and sleep problems.

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Liz's Story
woman laying in recliner on back deck

I remember the day I got sick – Monday April 15, 1991 – the day my life changed. At first I thought it was the flu or food poisoning, but I couldn’t kick it. I had a fever and an upper respiratory infection that required antibiotics, but nothing else helped. I crawled into bed and stayed there for about two-and-a-half years.

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Marlene’s Story
woman laying in recliner on back deck

It all happened around my 16th birthday. I started to throw-up, had a sore throat, and was very tired. My pediatrician did a test to check for mononucleosis (also known as mono) but it came back negative. Next I went to an ear, nose, and throat doctor for a second opinion and they did more blood work and eventually diagnosed me with mono.

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Disclaimer: The opinions and conclusions on this web page are those of the patients and other contributors, and do not necessarily represent the official position of the Centers for Disease Control and Prevention (CDC). The names of some contributors have been changed to protect their privacy.