What to know
The Surveillance and Evaluation Data Resource Guide for Heart Disease and Stroke Prevention Programs is an at-a-glance compilation of data sources useful for heart disease and stroke prevention programs conducting policy or data surveillance and/or evaluation.
Overview
What is the Surveillance & Evaluation Guide?
The Surveillance and Evaluation Data Resource Guide for Heart Disease and Stroke Prevention Programs is an at-a-glance compilation of data sources useful for heart disease and stroke prevention programs conducting policy or data surveillance and/or evaluation.
This guide addresses the broad spectrum of programs supported by the Division for Heart Disease and Stroke Prevention (DHDSP) and not all sources are applicable to all programs.
Who should use the guide?
The guide can be used by program managers and evaluators in the planning and evaluation stages of heart disease and stroke prevention programs.
How should the guide be used?
Data from the guide can be used to compare program impact and outcomes with those of other states and the nation. The data sources are organized by major categories: national and state surveys and tools, registries and vital statistics, and topic-specific tools, such as National, State, and Local Policy tracking.
Acronyms seen in this guide
ACO | Affordable Care Organization | HCUP | Healthcare Cost and Utilization Project |
ACS | American Community Survey | HEDIS | Healthcare Effectiveness Data and Information Set |
AHA | American Heart Association | HHS | U.S. Department of Health and Human Services |
AHRQ | Agency for Healthcare Research and Quality | HRSA | Health Resources and Services Administration |
ATSDR | Agency for Toxic Substances and Disease Registry | MSPB | Medicare Spending Per Beneficiary (survey) |
BRFSS | Behavioral Risk Factor Surveillance System | NASA | National Aeronautics and Space Administration |
CARES | Center for Applied Research and Engagement Systems | NEMSIS | National Emergency Medical Services Information System |
CCW | Chronic Conditions Data Warehouse | NHANES | National Health and Nutritional Examination Survey |
CDC | Centers for Disease Control and Prevention | NHIS | National Health Interview Survey |
CMS | Centers for Medicare & Medicaid Services | NIH | National Institutes of Health |
CVD | Cardiovascular Disease | NVSS | National Vital Statistics System |
GBD | Global Burden of Disease | SAMHSA | Substance Abuse and Mental Health Services Administration |
GIS | Geographic Information System | WHO | World Health Organization |
Table 1. National and state surveys, systems, and tools
Resource name | Purpose | Heart disease/stroke prevention topics addressed | Sampling frame | Data ownership/ primary contact organization |
Cost | Methodology | Start date | Frequency |
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All-Payer Claims Databases(APCDs or APDs) |
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Adjudicated medical, pharmacy, and dental claims for all eligible members, with data about members and providers that are submitted by commercial payers, third-party administrators, and publicly administered programs | Individual state | Cost associated with the data | Each state that allows for public release of its claims data has its own data release policy and process. | 2007 | Continuously |
Behavioral Risk Factor Surveillance System (BRFSS) |
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Self-reported prevalence of CVD-related events | BRFSS collects data in all 50 states as well as the District of Columbia and three U.S. territories. BRFSS completes more than 400,000 adult interviews each year. | CDC | No cost |
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1984 | Annually |
CDC COVID Data Tracker | Disseminate current data and links to publicly available datasets that are related to COVID-19 |
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CDC collects and displays data about case rates, death rates, hospitalizations, and vaccinations. | CDC | No cost | Provides surveillance data from across the response, including hospitalizations, vaccinations, demographic information, and daily and cumulative case and death counts reported to CDC | Initiated on January 21, 2020 | Daily |
CDC National Center for Health Statistics (NCHS) COVID-19 Data | Act as the primary resource for COVID-19–related mortality data | COVID-19–related mortality data | Sample frames include the NCHS Research and Development Survey and partnership with the U.S. Census Bureau | NCHS | No cost | NCHS is providing the most recent data available on deaths, mental health, and access to health care, loss of work due to illness, and telemedicine from the vital statistics system, from the NCHS Research and Development Survey, and through a partnership with the U.S. Census Bureau. | Initiated in 2020 | Varies by dataset |
CDC WONDER |
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The sample frame will vary by data source. Topic areas include Census and Surveys of Population, Classifications and Codes, Mortality & Morbidity, Registries, Health Surveys, and General Datasets | CDC, NASA Applied Sciences Program | No cost | Varies by data source | Initiated in early 1990s | Varies by dataset |
CMS Chronic Conditions Data Warehouse (CCW) Virtual Resource Data Center | Provide timely access to Centers for Medicare & Medicaid Services (CMS) program data in a more efficient and cost-effective manner | Each data source includes a variety of CVD-related measures (e.g., hospitalizations, prescription medication, outpatient care) | Not applicable | CMS | Cost associated with the data | Varies by data source | Varies by data source | Varies by data source |
County Health Rankings & Roadmaps |
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Not applicable | University of Wisconsin Population Health Institute | No cost | Data from partner organizations, including CDC and CMS | 2008 | Annually |
HCUPnet |
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The largest collection of longitudinal hospital care data in the United States, with all-payer, discharge-level information |
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Agency for Healthcare Research and Quality (AHRQ) | Restricted-access, public-release nationwide databases and select state databases (when permitted by HCUP partners) may be purchased through the HCUP central distributor | AHRQ transforms administrative health care data acquired from HCUP partners into research-ready, uniform databases with a common set of data elements. | 1988 | Continuously |
Health and Retirement Study |
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Health status (hypertension, heart disease, heart attack, and stroke occurrence) | Approximately 20,000 Americans who are near, at, or older than retirement age in the United States | National Institute on Aging and Social Security Administration | No cost | Longitudinal household surveys (in-depth interviews) | 1990 | Biennially |
Local Trends in Heart Disease and Stroke Mortality Dashboard | Provide access to county (or equivalent) estimates of annual CVD death. Maps, graphs, and tables in the dashboard provide federal agencies, state and local health departments, nonprofit organizations, academic institutions, and the public with information to enhance CVD prevention and treatment activities, plan services, allocate resources, and develop policies. |
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Estimates of annual CVD (i.e., all diseases of the heart, coronary heart disease, heart failure, and stroke) death rates from 1999 to 2019 and trends from 1999 to 2010 and from 2010 to 2019 by age group, sex, and race or ethnicity | Not applicable | No cost | Users can display, share, and download maps and graphs of county-level trends in heart disease mortality. | Updated in September 2022 | Not applicable |
Medical Expenditure Panel Survey (MEPS) |
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Tract-level data for patients, providers, and employers | AHRQ | Cost associated with the data | Telephone surveys and mailed questionnaire | 1996 | Annually |
Medicare Current Beneficiary Survey |
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Nationally representative sample of Medicare beneficiaries | CMS | Cost associated with the data |
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1991 | Annually |
Multidimensional Deprivation in the United States |
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Social determinants of health | ACS 1-year estimates include data for areas with populations of 65,000 or more | U.S. Census Bureau | No cost | The Multidimensional Deprivation Index is constructed using the Alkire-Foster method, in which individual-level indicators of deprivation in multiple dimensions are used to identify who is deprived and to assess the intensity of their deprivation. Multiple datasets were used, but most of the data came from the 2017 ACS 1-year estimates. | 2017 | Not applicable |
National Emergency Medical Services Information System (NEMSIS) |
Standardize and collect state-by-state emergency medical services (EMS) data to more accurately assess EMS needs and performance and better support strategic planning for EMS systems | Access to quality emergency care for hypertension, stroke, cardiac arrest, and other heart problems | Not applicable | National data are owned by the National Highway and Traffic Safety Administration’s Office of EMS and in collaboration with the University of Utah | No cost |
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2006 | Annually |
National Environmental Public Health Tracking Network Query Tool | Provide a web-based data system to track environmental health factors over time, assess health issues specific to communities, share data visualization tools, and share information to inform prevention, evaluation, program planning efforts, and policy interventions |
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Data retrieved from:
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CDC | No cost | CDC’s Public Health Information Network tools to electronically exchange health data and information. | 2009 | Depends on state and data source |
National Health and Nutrition Examination Survey (NHANES) | Explore emerging public health issues by monitoring trends in the prevalence, treatment, and control of selected diseases and explore relationships between behavioral patterns and health outcome |
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Nationally representative sample of about 5,000 people each year | CDC | No cost | In-person interviews and physical examinations | 1960s | Continuously (data released in 2-year cycles) |
National Health Interview Survey (NHIS) | Provide data for analyzing health trends and tracking progress toward achieving national health objectives |
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Civilian non-institutionalized U.S. citizens | CDC | No cost | Confidential interviews conducted in households (cross-sectional surveys) | 1957 | Annually |
National Vital Statistics System (NVSS) | Provide registration of vital events, including birth, deaths, marriages, divorces, and fetal deaths |
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States | No cost |
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1890 | Depends on state |
PLACES: Local Data for Better Health |
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Data from census tracts with a population of 50 or more people | CDC | No cost | Data from BRFSS and the National Survey of Children’s Health | 2020 and an expansion of the original 500 Cities Project (2016) | Annually |
Pregnancy Risk Assessment Monitoring System |
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Women who have had a recent live birth | CDC | No cost | Mailed surveys and telephone interviews | 1987 | Annually |
Table 2. Health system registries
Resource name | Purpose | Heart disease/stroke prevention topics addressed | Sampling frame | Data ownership/ primary contact organization |
Cost | Methodology | Start date | Frequency |
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Cardiac Arrest Registry to Enhance Survival | Assist communities, measure performance, and identify how to improve cardiac arrest survival rates |
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Not applicable | Each participating hospital has access to its data and only its data. | No cost |
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2004 | Continuously |
Get With the Guidelines |
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Not applicable | American Heart Association (AHA, in partnership with American Stroke Association) | Cost associated with the data | Data submitted by health system, American Heart Association’s patient management tool | 1999 | Continuously |
National Cardiovascular Data Registry | The National Cardiovascular Data Registry (NDCR) displays the American College of Cardiology’s (ACC) suite of cardiovascular data registries helping hospitals and private practices measure and improve the quality of care they provide |
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Select participation by health systems | ACC Quality Improvement for Institutions Program | Cost associated with the data | Outpatient registries (electronic data submission) | 1997 | Continuously |
Table 3. Health systems data and reporting tools
Resource name | Purpose | Heart disease/stroke prevention topics addressed | Sampling frame | Data ownership/ primary contact organization |
Cost | Methodology | Start date | Frequency |
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CMS Provider Data Catalog | Show national, state, and hospital-level data for measures of heart attack care, heart failure care, pneumonia care, surgical care, emergency department care, preventive care, children’s asthma care, and stroke care |
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Not applicable | CMS | No cost |
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2005 | Annually |
Health Resources and Services Administration (HRSA) Uniform Data System (UDS) Training and Technical Assistance | Provide consistent information about health centers and look-alikes | Hypertension and CVD prevention, control, and treatment | Not applicable | HRSA Health Center Program | No cost | Health center grantees and look-alikes report on their performance using the measures defined in the UDS. | 2011 | Annually |
Hospital Value-Based Purchasing Program (HVBP) | Display hospitals participating in the Hospital Value-Based Purchasing Program and the quality of care they provide |
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Approximately 3,000 hospitals across the country and Inpatient Prospective Payment System (IPPS) | CMS | No cost | Hospital VBP is based on data collected through the Hospital Inpatient Quality Reporting Program (IQR). The Total Performance Score was derived from four domains in FY 2021: Clinical Outcomes, Person and Community Engagement, Safety, and Efficiency and Cost Reduction. | 2013 | Annually |
Medicaid Adult Health Care Quality Measures | Provide health care quality measures for Medicaid-eligible adults |
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Approximately 80 million Medicaid enrollees | CMS | No cost | States collect data on core set measures for enrollees of all delivery system types, including managed care and fee for service. | 2012 | Annually |
Medicare Advantage: Star Ratings | Combine scores for the types of services each plan offers. |
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Not applicable | CMS | No cost |
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2009 | Annually |
Medicare Hospital Spending by Claim (Beneficiary) | Show whether Medicare spends more, less, or about the same per Medicare patient treated in a specific hospital compared with how much Medicare spends per patient nationally | Medicare spending by hospital per Medicare claim type | Hospitals in the United States | CMS | No cost | A hospital’s Medicare Spending Per Beneficiary (MSPB) measure is calculated as the hospital’s average MSPB amount divided by the median MSPB amount across all hospitals. | 2012 | Annually |
Medicare Shared Savings Program/Affordable Care Organizations (ACOs) | Collect and report data based on 33 measures on physician quality for eligibility in Medicare Shared Savings and meaningful use |
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Eligible providers, hospitals, and suppliers who have created or participated in an ACO | CMS | No cost | ACOs report clinical quality measures through a web interface. | 2013 | Annually |
National Committee for Quality Assurance (NCQA): Healthcare Effectiveness Data and Information Set (HEDIS) | Provide a set of standardized performance measures designed to give purchasers and consumers the information they need to compare the performance of managed health care plans | Hypertension and CVD prevention, control, and treatment | Adults in the United States enrolled in health care plans that report HEDIS results | NCQA | Cost associated with the data |
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1991 | Continuously |
Table 4. National, state, and local policy tracking
Resource name | Purpose | Heart disease/stroke prevention topics addressed | Sampling frame | Data ownership/ primary contact organization |
Cost | Methodology | Start date | Frequency |
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Bloomberg Law: Health |
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Not applicable | Bloomberg Media | Cost associated with the data; demo available |
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2009 | Continuously |
CQ (FiscalNote) | Track federal- and state-level legislation, policy process, and relevant new issues affecting public health |
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Not applicable | FiscalNote | Cost associated with the data |
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1945 | Continuously |
GovTrack.us: U.S. Congress | Track federal legislation on issues affecting public health and federal health agencies | Health policy | Not applicable | U.S. government | No cost |
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Not applicable | Continuously |
LawAtlas: The Policy Surveillance Portal | Use policy surveillance to capture the characteristics of laws and policies of public health significance | Wide-ranging topics related to public health, including (among others) social determinants of health and chronic disease | Not applicable | Temple University Beasley School of Law; funded by Robert Wood Johnson Foundation | No cost |
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Not applicable | Continuously |
LexisNexis State Net | Track legislation and regulations at the federal, state, and local levels | All matters related to public health | Not applicable | LexisNexis | Cost associated with the data; demo available |
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1977 | Continuously |
National Conference of State Legislatures 50-State Searchable Bill Tracking Databases | Display 50-state information using searchable bill tracking databases | Numerous relevant topics, including, but not limited to, health innovations, emergency care, health care appropriations, prescription drugs, licensing, and environmental health | Not applicable | National Conference of State Legislatures | No cost | Tracks legislation and regulations in all 50 state legislatures and categorizes them by topic area | 1975 | Weekly |
POLITICO Pro Legislative and Regulatory Compass | Track and analyze legislation and regulations at the state and federal levels | Wide-ranging topics related to public health, including (among others) social determinants of health and chronic disease | Not applicable | Politico | Cost (subscription) associated with the data | Legislation and regulatory activity at the federal and state levels is tracked and updated. | Not applicable | Continuously |
State Education Policy Tracking | Track state education policy on a wide variety of education topics |
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Not applicable | Education Commission of the States | No cost |
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2000 | Continuously |
StateScape | Track and display state legislative and regulatory compliance software | Various topics related to public health | Not applicable | Not applicable | Cost associated with the data | Tracks public health legislation and regulations at the federal and state levels and categorizes them by issue area and congressional term | 1991 | Continuously |
Westlaw | Show pending and enacted state and federal legislation on all matters related to public health | Various topics related to public health | Not applicable | Thomson Reuters | Cost associated with the data; free trial available | Uses artificial intelligence and human researchers to conduct legal research, tracks legislation and regulations, and compares changes in legislation, regulations, and statutes at the federal and state levels | 1970s | Continuously |
Table 5. Media tracking
Resource name | Purpose | Heart disease/stroke prevention topics addressed | Sampling frame | Data ownership/ primary contact organization |
Cost | Methodology | Start date | Frequency |
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Adobe SiteCatalyst (previously known as Omniture) | Support real-time web analytics | Provides metrics to assess the impact of online marketing campaigns for benchmarking analysis and measures of success | Websites of client interest | Client | Cost associated with the data | Visitor data to the client website and on mobile devices is collected automatically. | Not applicable |
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Audience Insights | Share aggregate information about people connected to the client page and people on Facebook to aid in content management and audience recruitment | Client dependent | Client Facebook page viewers | Client | No cost |
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Not applicable |
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Cision | Provide media monitoring, relationship management, audiences and attribution, and analysis and reporting | Measures collected are client dependent | Consumers of client’s television, radio, social, and online media | Client | Cost associated with the data |
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Not applicable |
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Data for Good | Empower partners with privacy-preserving data that strengthen communities and advance social issues | Client dependent | Partners with organizations across every continent, including universities, nonprofit organizations, and international institutions | Client | No cost | Data collected from Facebook location features, satellite imagery, and census | Not applicable |
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Google Analytics | Collect data on the behavior patterns of website visitors |
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Client website | Client | No cost |
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Not applicable |
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Hootsuite | Provide comprehensive social media management using analytic tools and customizable reports | Includes features for publishing, engaging, monitoring, advertising, and analyzing social media | Not applicable | Client | Cost associated with client need; free demo available | Assesses data available from Facebook insights, Google analytics, Twitter profile statistics, Ow.ly click statistics, Google+ pages analytics, and client analytics | Not applicable |
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Keyhole |
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Not applicable | Client | Cost associated with plans; free trial available | Tracks social media engagement | Not applicable |
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Meltwater | Provide social media monitoring and analytics | Measures collected are client dependent | Consumers of client’s social media | Client | Cost associated with the data |
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Not applicable |
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Nielsen |
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Not applicable | Client | Cost associated with the data |
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Not applicable |
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Salesforce Marketing Cloud | Gather and monitor metrics set on social networks, websites, and mobile devices |
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Client social networks, websites, and mobile devices | Client | Cost associated with the data |
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Not applicable |
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Sprout Social | Provide a social media management platform | Client dependent | Data gathered from multiple social media channels | Client | Cost associated with the data; free demo available | Process information is collected automatically | Not applicable |
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YouTube Studio | Provide metrics on video traffic and viewers behavior |
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Client YouTube video viewers | Client |
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Not applicable |
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Table 6. Data visualization, interactive, and geographic information systems platforms
Resource name | Purpose | Heart disease/stroke prevention topics addressed | Sampling frame | Data ownership/ primary contact organization |
Cost | Methodology | Start date | Frequency |
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Agency for Healthcare Research Cardiovascular Treatment Outcomes Dashboard | Offer primary care practices a resource for calculating provider- and practice-level measures of blood pressure control, smoking cessation, and use of aspirin for heart disease | Primary care practices can use this Excel dashboard to calculate provider- and practice-level measures of blood pressure control, smoking cessation, and use of aspirin for heart disease. It also allows practices to graph their performance over time and to compare their progress to their goals. | Not applicable | Qualis Health | No cost | Sourced from Qualis Health and used with permission from Heart Healthy Northwest | March 2016 | Not applicable |
AHA Heart Disease and Stroke Statistics | Provide up-to-date statistics and publications on the core health behaviors and health factors that define cardiovascular health | Statistics on behaviors and health outcomes related to cardiovascular health that are disaggregated by demographics | Not applicable | AHA | No cost | AHA, in conjunction with CDC, NIH, and other government agencies, annually compiles up-to-date statistics on CVD. | Not applicable | Annually |
CDC Division for Heart Disease and Stroke Prevention Heart Disease and Stroke Maps and Data | Search for and view health indicators related to heart disease and stroke prevention | Various health indicators, including but not limited to Interactive Atlas of Heart Disease and Stroke, Data Trends and Maps, and Chronic Disease GIS | Not applicable | Not applicable | No cost | Multiple data sources, including BRFSS, CARES, the Paul Coverdell National Acute Stroke Program, HCUP, Medicare, the National Ambulatory Medical Care Survey and National Hospital Ambulatory Medical Care Survey, NHANES, NHIS, and NVSS | Not applicable | Continuously |
Census Bureau Data | Provide access to national, state, and local data via search or predefined datasets | Numerous surveys, including communities, housing, economics, and government | Not applicable | Not applicable | No cost | The Census Bureau conducts nearly 100 surveys and censuses every year. | Not applicable | Varies by survey; could be conducted quarterly, monthly, or annually |
Center for Applied Research and Engagement Systems (CARES) Engagement Network | Provide access to up-to-date data, maps, and community needs assessments |
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Data derived from mapping efforts | CARES provides access to data | No-cost and subscription-based options | Open access to CARES data warehouse to make maps and to build free community assessments | 1992 | Continuously |
Chronic Conditions Data Warehouse (CCW) | Provide researchers with Medicare and Medicaid beneficiary, claims, and assessment data linked by beneficiary across the continuum of care |
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Not applicable | CCW data files may be requested for any of the predefined chronic condition cohorts, or users may request a customized cohort(s) specific to research focus areas | No cost | The CCW data are linked by a unique, unidentifiable beneficiary key, which allows researchers to analyze information across the continuum of care. |
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Not applicable |
Chronic Disease GIS Exchange | Provide a forum for sharing specific examples, ideas, and techniques for using GIS to document geographic disparities, inform policy and program development, and build partnerships |
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Data derived from mapping efforts | Invites visitors to share maps that address chronic diseases | No cost | Open- exchange forum |
Not applicable | Continuously |
Chronic Disease Indicators | Enable public health professionals and policymakers to retrieve state and selected metropolitan-level data for chronic diseases and risk factors, including overarching conditions that are social determinants of health (SDOH) |
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Not applicable | Not applicable | No cost | Chronic Disease Indicators includes 124 indicators. A total of 201 individual measures are included for the 124 indicators, many of which overlap multiple chronic disease topic areas or are specific to a certain sex or age group. | Not applicable |
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Community Commons | Support those working to advance equitable community health and well-being by sharing tools, resources, data, and stories to support this work |
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Not applicable | Registration required to access data | No cost | Open- exchange forum to make and share maps with system collaborators |
Not applicable | Continuously |
CDC WONDER |
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Various online databases and public health data collections | CDC, NASA Applied Sciences Program | No cost | Varies by data source | Early 1990s | Depends on dataset |
FastStats | Provide quick access to statistics on more than 100 topics of public health importance |
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Not applicable | Not applicable | No cost | Not applicable | Not applicable | Last updated in May 2020 |
Health Resources and Services Administration: Area Health Resource Files | Provide a comprehensive set of data offering a broad range of health resources and socioeconomic indicators that affect demand for health care |
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Not applicable | HHS; sourced from numerous government and academic sources | No cost | The Area Health Resources Files include data on health care professions, health facilities, population characteristics, economics, health professions training, hospital utilization, hospital expenditures, and environment at the county, state, and national levels from more than 50 data sources. | Not applicable | Annually |
Institute for Health Metrics and Evaluation (IHME) Global Burden of Disease (GBD) | Deliver timely, relevant, and scientifically valid evidence to improve health policy and practice |
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Not applicable | Numerous projects to guide activities, data collection, visualization, and analytics | No cost | Includes a Core Analytic Team, a GBD Scientific Council, a GBD Management Team, and a robust network of GBD experts. | Not applicable |
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Interactive Atlas of Heart Disease and Stroke | Provide county-level information on maps for heart disease and stroke, along with maps of social environmental conditions and health services for the entire United States or for a chosen state or territory | Heart disease and failure, hypertension, stroke coronary heart disease, acute myocardial infarction, cardiac dysrhythmia deaths, hospitalizations, and hospital discharge status | Data derived from mapping efforts | Not applicable | No cost | Mortality data drawn from National Vital Statistics System Bridged-Race Postcensal Population Estimates (Vintage 2009) from National Center for Health Statistics | Not applicable | Continuously |
Local Trends in Heart Disease and Stroke Mortality Dashboard |
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Estimates of annual CVD (i.e., all diseases of the heart, coronary heart disease, heart failure, and stroke) disease death rates from 1999 to 2019 and trends from 1999 to 2010 and from 2010 to 2019 by age group, sex, and race or ethnicity | Not applicable | No cost | Users can display, share, and download maps and graphs of county-level trends in heart disease mortality. | Not applicable | Last updated in February 2022 |
National Environmental Public Health Tracking Network Query Tool |
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CDC | No cost | CDC’s Public Health Information Network Tools electronically exchange health data and information | 2009 | Depends on state and data source |
PolicyLink Community Mapping | Provide an overview of community mapping, with an emphasis on how mapping is used to support equitable development | Socioeconomic conditions, development opportunities, and neighborhood change | Data derived from community mapping efforts | Not applicable | Unknown | Community builds mapping collaborative surrounding identified issue | Not applicable | Continuously |
World Health Organization (WHO) Global Health Observatory |
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Not applicable | WHO, whenever possible, will provide member states the opportunity to review and comment on data and estimates as part of country consultations | No cost | Many of these datasets represent the best estimates of WHO, using methodologies for specific indicators that aim for comparability across countries and time; they are updated when more recent or revised data become available or when there are changes to the methodology being used. | Not applicable |
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Table 7. Social determinants of health
Resource name | Purpose | Heart disease/stroke prevention topics addressed | Sampling frame | Data ownership/ primary contact organization |
Cost | Methodology | Start date | Frequency |
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AHRQ Social Determinants of Health Database | Provide easily linkable SDOH-focused data to use in patient-centered outcomes research, inform approaches to address emerging health issues, and ultimately contribute to improved health outcomes |
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Variables in the files correspond to five key SDOH domains and can be linked to other data by geography (county and ZIP code) | Not applicable | No cost | These SDOH beta data files are curated from existing federal datasets and other publicly available data sources. The files make it easier to find a range of well-documented, readily linkable SDOH variables across domains without having to access multiple source files, facilitating SDOH research and analysis. | Not applicable | Data are currently available from 2009 to 2018. |
CDC Social Vulnerability Index (SVI) | The Agency for Toxic Substances and Disease Registry’s (ATSDR) Geospatial Research, Analysis and Services Program created the SVI to help emergency response planners and public health officials identify and map communities based on SDOH that will most likely need support before, during, and after a hazardous event. |
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Uses 15 U.S. Census variables | Not applicable | No cost | The CDC/ATSDR SVI ranks each tract on 15 social factors, including poverty, lack of vehicle access, and crowded housing, and groups them into four related themes. Each tract receives a separate ranking for each of the four themes as well as an overall ranking. | Not applicable | The CDC/ATSDR SVI is updated every 2 years based on U.S. Census Bureau data releases |
HDPulse: An Ecosystem of Health Disparities and Minority Health Resources | Provide an ecosystem to characterize health disparities to motivate action to reduce health disparities. Interactive graphics and maps provide visual support for deciding where to focus public health disparities control efforts. | HDPulse includes a range of socioeconomic variables, including crowding (households with more than one person or room), education, income, health insurance, household mobility, non-English language speakers in the household, poverty, and unemployment. | Not applicable | Managed by the National Institute on Minority Health and Health Disparities | No cost | The portal brings together data collected from public health surveillance systems by using either their published reports or public use files. | Not applicable | Not applicable |
Health Equity Report Card | Generate local data related to socioeconomic barriers and health to help drive positive community change |
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Not applicable | Salud America! Health Equity Report Card data are powered by CARES at the University of Missouri | No cost | Data are drawn from the CARES data warehouse. | Not applicable | Continuously |
National Equity Atlas |
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Not applicable | Produced by PolicyLink and the University of Southern California Equity Research Institute (ERI) | No cost | Data are drawn from the regional equity indicators database maintained by PolicyLink and the ERI. | Not applicable | Most datasets are updated annually |
National Healthcare Quality and Disparities Report | Measure trends in effectiveness of care, patient safety, timeliness of care, patient centeredness, and efficiency of care | Socioeconomic demographics, health care access, and health care quality | Not applicable | Supported HHS Interagency Workgroup | No cost |
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Not applicable | Updated yearly; last updated in 2019 |
Neighborhood Atlas® | Freely share measures of neighborhood disadvantage with the public, educational institutions, health systems, not-for-profit organizations, and government agencies to make these metrics available for use in research, program planning, and policy development |
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Not applicable | Supported by NIH and the University of Wisconsin | No cost | The Area Deprivation Index (ADI) uses ACS 5-year estimates in its construction. For example, the 2018 ADI uses the ACS data for 2018, which is a 5-year average of ACS data obtained from 2014 to 2018. | 2018 | Not applicable |
Racial Equity Tools | Help groups assess, learn from, and document their racial equity work, with special attention to issues of power and privilege in the work and in evaluation | Evaluation framework with a racial equity lens | Not applicable | Not applicable | No cost | This is not a dataset but an evaluation framework for collecting, analyzing, and sharing data. | Not applicable | Last updated in 2020 |
Substance Abuse and Mental Health Services Administration (SAMHSA) Behavioral Health Equity Report | Provide a summary of key behavioral health measures related to substance use and mental health |
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Not applicable | Published by SAMHSA | No cost | Data from the National Survey on Drug Use and Health, 2015–2019 | Published October 23, 2021 | Not applicable |
Vulnerable Populations Footprint | Identify the overlap between high concentrations of population living in poverty and populations living without a high school diploma |
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Not applicable | Center for Applied Research and Engagement System (CARES) at the University of Missouri | No cost | Uses American Community Survey data | Not applicable | American Community Survey data are released yearly |