Articles by Year

Browse selected scientific articles published in journals and books. Articles on this page are organized by year.

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Sajatovic M, Wilson B, Shegog R, Briggs F.B.S, Escoffery C, Jobst B, Johnson E, Fraser R, Quarells R, Spruill T. The Managing Epilepsy Well (MEW) network database: Lessons learned in refining and implementing an integrated data tool in service of a national U.S. Research Collaborative. Epilepsy and Behavior. 2021; 115:107650. doi: 10.1016/j.yebeh.2020.107650external icon


Bensken WP, Navale SM, Andrew AS, Jobst BC, Sajatovic M, Koroukian SM. Delays and disparities in diagnosis for adults with epilepsy: Findings from U.S. Medicaid data. Epilepsy Res. 2020; 166:106406. doi: 10.1016/j.eplepsyres.2020.106406external icon

Burns KM, Cottengim C, Dykstra H, Faulkner M, Lambert ABE, MacLeod H, Novak A, Parks SE, Russell MW, Shapiro-Mendoza CK, Shaw E, Tian N, Whittemore V, Kaltman JR. Epidemiology of Sudden Death in a Population-Based Study of Infants and Children. Sudden Death in the Young Case Registry. J Pediatr X. 2020; 2:100023. doi: 10.1016/j.ympdx.2020.100023.external icon

Johnson EK, Fraser RT, Lashley S, Barber J, Brandling-Bennett EM, Vossler DG, Miller JW, Caylor L, Warheit-Niemi T. Program of Active Consumer Engagement in Self-Management in Epilepsy: Replication and extension of a self-management randomized controlled trial. Epilepsia. 2020; 61(6):1129-1141.doi: 10.1111/epi.16530.external icon

Ross S, Charles B, Jenny C, Refugio S, Robert A, Kimberly M, Omar R, Noelia H, David L. MINDSET: Clinic-based decision support demonstrates longitudinal efficacy for increased self-management adherence among Spanish speaking patients. Epilepsy & Behavior. 2020; 107552. icon

Sapkota S, Kobau R, Croft JB, King BA, Thomas C, Zack MM. Prevalence and Trends in Cigarette Smoking Among Adults with Epilepsy — United States, 2010–2017. MMWR Morb Mortal Wkly Rep 2020;69:1792–1796. doi: iconexternal icon


Thompson NJ, McGee RE, Garcia-Williams A, Selwa LM, Stoll SC, Johnson EK, Fraser RT. The impact of a depression self-management intervention on seizure activity. Epilepsy Behav. 2020; 103(Pt A):106504. doi: 10.1016/j.yebeh.2019.106504.external icon

Tian N, Croft JB, Kobau R, Zack MM, Greenlund KJ. CDC-supported epilepsy surveillance and epidemiologic studies: A review of progress since 1994. Epilepsy Behav. 2020; 109:107123. doi: 10.1016/j.yebeh.2020.107123.external icon

Tian N, Zack M, Wheaton AG, Greenlund KJ, Croft JB. Epilepsy and chronic obstructive pulmonary disease among U.S. adults: National Health Interview Survey 2013, 2015, and 2017. Epilepsy Behav. 2020; 110:107175. doi: 10.1016/j.yebeh.2020.107175.external icon


Khalid Z, Momotaz H, Briggs F, Cassidy KA, Chaytor NS, Fraser RT, Janevic MR, Jobst B, Johnson EK, Scal P, Spruill TM, Wilson BK, Sajatovic M. Depressive Symptoms in Older versus Younger People with Epilepsy: Findings from an Integrated Epilepsy Self-Management Clinical Research Dataset. J Multidiscip Healthc. 2019;12:981-988. doi: 10.2147/JMDH.S227184.external icon

Kobau R, Manderscheid R, Owens S, LaFrance WC Jr, Sajatovic M. Bridging the divide between epilepsy and mental health to drive solutions. Epilepsy Behav. 2019; 101(Pt A):106576. doi: 10.1016/j.yebeh.2019.106576.external icon

Kobau R, Sapkota S, Zack MM. Serious psychological distress among adults with active epilepsy in all racial/ethnic groups and among adults with inactive epilepsy in non-Hispanic whites is significantly higher than among adults without epilepsy-U.S. National Health Interview Survey, 2010, 2013, 2015, and 2017. Epilepsy Behav. 2019; 95:192-194. doi: 10.1016/j.yebeh.2019.01.043.external icon

Kobau R, Sapkota S, Koh HK, Zack MM. National declines in the percentages of uninsured among adults aged 18-64 years with active epilepsy, 2010 and 2013 to 2015 and 2017-U.S. National Health Interview Survey. Epilepsy Behav. 2019; 97:316-318. doi: 10.1016/j.yebeh.2019.05.022.external icon

McGee RE, Sajatovic M, Quarells RC, Johnson EK, Liu H, Spruill TM, Fraser RT, Janevic M, Escoffery C, Thompson NJ. Depression and quality of life among African Americans with epilepsy: Findings from the Managing Epilepsy Well (MEW) Network integrated database. Epilepsy Behav. 2019; 94:301-306. doi: 10.1016/j.yebeh.2019.02.026.external icon

Sajatovic M, Johnson EK, Fraser RT, Cassidy KA, Liu H, Pandey DK, Quarells RC, Scal P, Schmidt S, Shegog R, Spruill TM, Janevic MR, Tatsuoka C, Jobst BC. Self-management for adults with epilepsy: Aggregate Managing Epilepsy Well Network findings on depressive symptoms. Epilepsia. 2019; 60(9):1921-1931. doi: 10.1111/epi.16322. Epub 2019 Sep 5.

Tian N, Zack MM, Hesdorffer DC. Timing of suicide in people with epilepsy: A population-based study from 18 states of the United States, 2003-2014.Epilepsy Behav. 2019; 99:106421. doi: 10.1016/j.yebeh.2019.07.022external icon


Begley C, Chong J, Shegog R, et al. MINDSET: Clinical feasibility of utilizing the revised epilepsy self-management tool for Spanish speaking patients. Epilepsy Behav. 2018;88:218-226. doi: 10.1016/j.yebeh.2018.09.021.

Begley C, Shegog R, Liu H, et al. Correlates of epilepsy self-management in MEW Network participants: From the Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy Behav. 2018;85:243-347. doi: 10.1016/j.yebeh.2018.04.011.

Chen E, Sajatovic M, Liu H, Bukach A, Tatsuoka C, Welter E, Schmidt SS, Bamps YA, Stoll SC, Spruill TM, Friedman D, Begley CE, Shegog R, Fraser RT, Johnson EK, Jobst BC. Demographic and Clinical Correlates of Seizure Frequency: Findings from the Managing Epilepsy Well Network Database. J Clin Neurol. 2018 ;14(2):206-211. doi: 10.3988/jcn.2018.14.2.206.external icon

Escoffery C, McGee R, Bidwell J, et al. A review of mobile apps for epilepsy self-management. Epilepsy Behav. 2018; 81: 62-69. doi: 10.1016/j.yebeh.2017.12.010.

Friedman D, Spruill TM, Liu H. Depressive symptoms and suicidality among individuals with epilepsy enrolled in self-management studies: Results from the US Centers for Disease Control and Prevention Managing Epilepsy Well (MEW) Network. Epilepsy Behav. [published online August 13, 2018] doi: 10.1016/j.yebeh.2018.06.024.

Grinspan ZM, Tian N, Yozawitz EG, McGoldrick PE, Wolf SM, McDonough TL, Nelson A, Hafeez B, Johnson SB, Hesdorffer DC. Common terms for rare epilepsies: Synonyms, associated terms, and links to structured vocabularies. Epilepsia Open. 2018 ;3(1):91-97. doi: 10.1002/epi4.12095.external icon

Ip Q, Malone DC, Chong J, Harris RB, Labiner DM. An update on the prevalence and incidence of epilepsy among older adults. Epilepsy Research. 2018;139:107-112. doi: 10.1016/j.eplepsyres.2017.11.022.

Jamal-Omidi S, Collins C, Fulchiero E, et al. Assessing depression severity with a self-rated vs. rater-administered instrument in patients with epilepsy. Epilepsy Behav. 2018;85:52-57. doi: 10.1016/j.yebeh.2018.05.018.

Kumar N, Colon-Zimmermann K, Fuentes-Casiano E, et al. Clinical correlates of negative health events in a research sample with epilepsy. Epilepsy Behav. 2018;79:225-229. doi: 10.1016/j.yebeh.2017.11.037.

Middleton O, Atherton D, Bundock E, et al. National Association of Medical Examiners Position Paper: Recommendations for the Investigation and Certification of Deaths in People with Epilepsy. Academic Forensic Pathology. 2018; 8(1): 119-135. doi: 10.23907/2018.009.

Pessoa A, van der Linden V, Yeargin-Allsopp M, et al.  Motor abnormalities and epilepsy in infants and children with evidence of congenital Zika virus infection. Pediatrics. 2018;141(s2):1-13. doi: 10.1542/peds.2017-2038F.

Sajatovic M, Colon-Zimmermann K, Kahriman M, et al. A 6‐month prospective randomized controlled trial of remotely delivered group format epilepsy self‐management versus waitlist control for high‐risk people with epilepsy. Epilepsia. 2018; 00: 1-12. doi: 10.1111/epi.14527.

Sajatovic M, Needham K, Colón-Zimmermann K, et al. The Community-targeted Self-management of Epilepsy and Mental Illness (C-TIME) initiative: A research, community, and healthcare administration partnership to reduce epilepsy burden. Epilepsy Behav. 2018;89:175-180. doi: 10.1016/j.yebeh.2018.10.004.

Sapkota S, Kobau R, Pastula DM, Zack MM. Close to 1 million US adults aged 55 years or older have active epilepsy- National Health Interview Survey, 2010, 2013, and 2015. Epilepsy Behav. [published online August 2, 2018] doi: 10.1016/j.yebeh.2018.06.030.

Sapkota S, Kobau R, Pastula DM, Zack MM. People with epilepsy are diagnosed most often with unspecified epilepsy, followed by focal epilepsy, generalized convulsive epilepsy, and generalized nonconvulsive epilepsy—US MarketScan data, 2010–2015.  Epilepsy Behav. 2018; 79:244-246. doi: 10.1016/j.yebeh.2017.11.004.

Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442. doi: 10.15585/mmwr.mm6715a1. html

Wilson DA, Wannamaker BB, Malek AM, Selassie AW. Myocardial infarction after epilepsy onset: A population-based retrospective cohort study. Epilepsy Behav. 2018;88:181-188. doi: 10.1016/j.yebeh.2018.09.009.

Zack M, Luncheon C. Adults with an epilepsy history, notably those 45–64 years old or at the lowest income levels, more often report heart disease than adults without an epilepsy history. Epilepsy Behav. 2018;86:208-210. doi: 10.1016/j.yebeh.2018.05.021.

Zack M, Luncheon C. Adults with an epilepsy history, especially those 45 years or older, those with lower family incomes, and those with a history of hypertension, report a history of stroke five times as often as adults without such a history-2010, 2013, and 2015 U.S. National Health Interview Survey. Epilepsy Behav. 2018;83:236-238. doi: 10.1016/j.yebeh.2018.02.028.


Baldin E, Hauser WA, Pack A, Hesdorffer DC.  Stress is associated with an increased risk of recurrent seizures in adults. Epilepsia. 2017;58(6):1037-1046. doi: 10.1111/epi.13741.

Burns KM, Bienemann L, Camperlengo L, et al. The Sudden Death in the Young Case Registry: Collaborating to understand and reduce mortality. Pediatrics. 2017;139(3):e20162757.

Greenlund SF, Croft JB, Kobau R. Epilepsy by the Numbers: Epilepsy deaths by age, race/ethnicity, and gender in the United States significantly increased from 2005 to 2014. Epilepsy Behav. 2017;69:28-30.

Helmers SL, Kobau R, Sajatovic M, et al. Self-management in epilepsy: Why and how you should incorporate self-management in your practice. Epilepsy Behav. 2016. doi: 10.1016/j.yebeh.2016.11.015.

Kobau R, Cui W, Zack M. Adults with an epilepsy history fare significantly worse on positive mental and physical health than adults with other common chronic conditions—Estimates from the 2010 National Health Interview Survey and Patient Reported Outcome Measurement System (PROMIS) Global Health Scale. Epilepsy Behavior. 2017;72:182-184. doi: 10.1016/j.yebeh.2017.04.047.

Kumar N, Colon-Zimmermann K, Fuentes-Casiano E, et al. Clinical correlates of negative health events in a research sample with epilepsy. Epilepsy Behavior. 2018;79:225-229. doi:

Pastula DM, Yeargin-Allsopp M, Kobau R. Enhanced epilepsy surveillance and awareness in the age of Zika. JAMA Neurol. 2017;74(6):631-632. doi:10.1001/jamaneurol.2017.0215.

Perzynski AT, Ramsey RK, Colon-Zimmermann K, et al. Barriers and facilitators to epilepsy self-management for patients with physical and psychological comorbidity. Chronic Illn. 2017;13(3):188-203. doi: 10.1542/peds.2017-2038F.

Sajatovic M, Herrmann LK, Van Doren JR, et al. A randomized prospective pilot trial of Web-delivered epilepsy stigma reduction communications in young adults. Epilepsia. 2017;58(11):1946-1954. doi: 10.1111/epi.13911

Sajatovic M, Tatsuoka C, Welter E, et al. Correlates of quality of life among individuals with epilepsy enrolled in self-management research. Epilepsy Behav. 2017;69:177–180. doi: 10.1016/j.yebeh.2016.12.005.

Sajatovic M, Jobst BC, Shegog R, et al. The Managing Epilepsy Well Network: Advancing epilepsy self-management. Am J Prev Med. 2017;52(3S3):S241–S245.

Shegog R, Begley CE. Clinic-based mobile health decision support to enhance adult epilepsy self-management: An intervention mapping approach. Front Public Health. 2017;5:256. doi: 10.3389/fpubh.2017.00256.

Zack MM, Kobau R. National and state estimates of the numbers of adults and children with active epilepsy — United States, 2015. MMWR. 2017;66:821–825. doi: 10.15585/mmwr.mm6631a1. html


Caller TA, Ferguson RJ, Roth RM, Secore KL, Alexandre FP, Zhao W, et al. A cognitive behavioral intervention (HOBSCOTCH) improves quality of life and attention in epilepsy. Epilepsy Behav. 2016;57(Pt A):111-7. doi: 10.1016/j.yebeh.2016.01.024.

Centers for Disease Control and Prevention Epilepsy Program. Among adults with epilepsy reporting recent seizures, one of four on antiseizure medication and three of four not on medication had not seen a neurologist/epilepsy specialist within the last year, the 2010 and 2013 US National Health Interview Surveys. Epilepsy Behav. 2016;61:78-79. doi: 10.1016/j.yebeh.2016.04.031.

Centers for Disease Control and Prevention Epilepsy Program. More than 40% of those not taking antiseizure medication with recent seizures reported that epilepsy or its treatment interfered with their recent activities, 2010 and 2013 US National Health Interview Surveys. Epilepsy Behav. 2016;62:129–131. doi:10.1016/j.yebeh.2016.06.013.

Centers for Disease Control and Prevention Epilepsy Program. About one-half of adults with active epilepsy and seizures have annual family incomes under $25,000: The 2010 and 2013 US National Health Interview Survey. Epilepsy Behav. 2016;58(5):33–34. doi: 10.1016/j.yebeh.2016.02.024.

Centers For Disease Control And Prevention Epilepsy Program. Internet use and looking up information online in adults with epilepsy varies by epilepsy status – 2013 National Health Interview Survey. Epilepsy Behav. 2016;54:47-9. doi: 10.1016/j.yebeh.2015.10.019.

Escoffery C, McGee RE, Bamps Y, Helmers SL. Differences in epilepsy self-management behaviors among young and older adults. Austin J Neurol Disord Epilepsy. 2016;3(1): 1015.

Garcia HH, Gonzalez AE, Tsang VCW, et al. Elimination of Taenia solium transmission in Northern Peru. N Engl J Med. 2016;374:2335-2344. doi: 10.1056/NEJMoa1515520.

Hermann LK, Welter E, Berg AT, Perzynski AT, VanDoren JR, Sajatovic M. Epilepsy misconceptions and stigma reduction: Current status in Western countries. Epilepsy Behav. 2016;60(7):165–173. doi: 10.1016/j.yebeh.2016.04.003.

Miller GF, Coffield E, Leroy Z, Wallin R. Prevalence and costs of five chronic conditions in children. J Sch Nurs. 2016;32(5):357-364. doi: 10.1177/1059840516641190.

Pugh MJ, Van Cott AC, Amuan M, et al. Epilepsy among Iraq and Afghanistan war veterans — United States, 2002–2015. MMWR. 2016;65:1224–1227. doi: 10.15585/mmwr.mm6544a5.

Sahoo SS, Ramesh P, Welter E, et al. Insight: An ontology-based integrated database and analysis platform for epilepsy self-management research. Int J Med Inform. 2016;94:21-30. doi:10.1016/j.ijmedinf.2016.06.009.

Sajatovic M, Tatsuoka C, Welter E, et al. Targeted self-management of epilepsy and mental illness for individuals with epilepsy and psychiatric comorbidity. Epilepsy Behav. 2016;64(Pt A):152-9. doi: 10.1016/j.yebeh.2016.08.012.

Tian N, Cui W, Zack MM, Kobau R, Fowler KA, Hesdorffer DC. Suicide among people with epilepsy: A population-based analysis of data from the U.S. National Violent Death Reporting System, 17 states, 2003-2011. Epilepsy Behav. 2016;61:210-217. doi: 10.1016/j.yebeh.2016.05.028.

Wilson DA, Malek AM, Wagner JL, Wannamaker BB, Selassie AW. Mortality in in people with epilepsy: A statewide retrospective cohort study. Epilepsy Res. 2016;122:7-14. doi: 10.1016/j.eplepsyres.2016.01.008.


Begley C, Shegog R, Harding A, Goldsmith C, Hope O, Newmark M. Longitudinal feasibility of MINDSET: A clinic decision aid for epilepsy self-management. Epilepsy Behav. 2015;44C:143-150. doi: 10.1016/j.yebeh.2014.12.031.

Buelow J, Gattone P, Giles W, Kobau R. Epilepsy Foundation public awareness campaigns, 2001 – 2013. Epilepsy Behav. 2015, ePub available before print. doi:10.1016/j.yebeh.2014.12.045.

Caller TA, Secore KL, Ferguson RJ, Roth RM, Alexandre FP, Henegan PL, Harrington JJ, Jobst BC. Design and feasibility of a memory intervention with focus on self-management for cognitive impairment in epilepsy. Epilepsy Behav. 2015;44:192–194. doi: 10.1016/j.yebeh.2014.12.036.

Centers for Disease Control and Prevention Epilepsy Program. Nearly one in five adults with active epilepsy lives alone based on findings from the 2010 and 2013 US national health interview surveys. Epilepsy Behav. 2015;51:259–260. doi:10.1016/j.yebeh.2015.07.034.

Cui W, Kobau R, Zack MM, Buelow JM, Austin JK. Recent changes in attitudes of US adults toward people with epilepsy — Results from the 2005 SummerStyles and 2013FallStyles surveys. Epilepsy Behav. 2015;52:108-18. doi:10.1016/j.yebeh.2015.08.040

Cui W, Kobau R, Zack MM, Helmers S. Marshalyn Yeargin-Allsopp M. Seizures in children and adolescents aged 6–17 years – United States, 2010–2014. MMWR. 2015;64(43):1209-14. html. Accessed January 14, 2016.

Cui W, Zack MM, Kobau R, Helmers SL. Health behaviors among people with epilepsy—Results from the 2010 National Health Interview Survey. Epilepsy Behav. 2015;44:121–126. doi: 10.1016/j.yebeh.2015.01.011.

Escoffery C, Bamps YA, LaFrance W, et al. Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy Behav. 2015;50:172-183. doi: 10.1016/j.yebeh.2015.07.025.

Escoffery C, Bamps YA, LaFrance W, et al. Factor analyses of an Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy Behav. 2015. ePub available before print. doi: 10.1016/j.yebeh.2015.07.026.

Fraser RT, Johnson EK, Lashley S, et al. PACES in epilepsy: Results of a self-management randomized controlled trial. Epilepsia. 2015. doi:10.1111/epi.13052.

Hawley SR, Ablah E, Hesdorffer D, et al. Prevalence of pediatric epilepsy in low-income rural Midwestern counties. Epilepsy Behav. 2015;53:190-6. doi: 10.1016/j.yebeh.2015.09.014.

Kobau R, DiIorio C, Thompson N, St. Louis E, Bamps Y. Epilepsy, comorbidities, and consequences: implications for understanding and combating stigma. St Louis, E, Ficker D, O’Brien, T eds. Epilepsy and the Interictal State: Co-morbidities and Quality of Life. Wiley- Blackwell. 2015. 15-28. Print.

LaFrance W, Ranieri R, Bamps Y, et al. Comparison of common data elements from the Managing Epilepsy Well (MEW) Network integrated database and a well-characterized sample with nonepileptic seizures. Epilepsy Behav. 2015;45:136-41. doi:10.1016/j.yebeh.2015.02.021.

Manacheril R, Faheem U, Labiner D, et al. Psychosocial Impact of Epilepsy in Older Adults. Healthcare. 2015;3(4):1271-83. doi: 10.3390/healthcare3041271.

Pastor PN, Reuben CA, Kobau R, Helmers SL, Lukacs S. Functional difficulties and school limitations of children with epilepsy: findings from the 2009–2010 National Survey of Children with Special Health Care Needs. Disabil Health J. 2015. doi: 10.1016/j.dhjo.2014.09.002.

Price P, Kobau R, Austin J, Buelow J, Lowenberg K. Improving understanding, promoting social inclusion and fostering empowerment related to epilepsy: Epilepsy Foundation public awareness campaigns – 2001 through 2013. Epilepsy Behav. 2015;44;239-44. doi: 10.1016/j.yebeh.2014.12.044.

Sahoo S, Zhang GQ, Bamps Y, et al. Managing Information Well: Towards an Ontology-driven Informatics Platform for Data Sharing and Secondary Use in Epilepsy Self-Management Research Centers. Health Informatics Journal. 2015;22(3):548-61. doi: 10.1177/1460458215572924.

Selassie AW, Wilson DA, Wagner JL, et al. Population-based comparative analysis of risk of death in children and adolescents with epilepsy and migraine. Epilepsia. 2015;56(12):1957-65. doi: 10.1111/epi.13219.

Tang DH, Malone DC, Warholak TL, et al. Prevalence and Incidence of Epilepsy in an Elderly and Low-Income Population in the United States. J Clin Neurol. 2015;11(3):252-61. doi: 10.3988/jcn.2015.11.3.252.

Thompson, NJ, Patel A, Selwa LM, et al. The efficacy of Project UPLIFT for prevention: Distance delivery of mindfulness-based depression prevention. J Consult Clin Psych. 2015;83(2):304-13.

Thurman DJ, Kobau R, Luo Y, Helmers S, Zack MM. Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013. Epilepsy Behav. 2016;55:184-8. doi: 10.1016/j.yebeh.2015.10.028.

Tian N, Shaw EC, Zack MM, Kobau R, Dykstra H, Covington TM. Cause-specific mortality among Children and Young Adults with Epilepsy: Results from the U.S. National Child Death Review Case Reporting System. Epilepsy Behav. 2015;45:31-4. doi: 10.1016/j.yebeh.2015.02.006.

Wannamaker BB, Wilson DA, Malek AM, Selassie AW. Stroke after adult-onset epilepsy: a population-based retrospective cohort study. Epilepsy Behav. 2015;43:93-9. doi: 10.1016/j.yebeh.2014.11.028.


Brady TJ, Anderson LA, Kobau R. Chronic disease self-management support: public health perspectives. Front Public Health. 2015. 2:234. doi: 10.3389/fpubh.2014.00234.

Caller TA, Secore K, Ferguson R, Roth R, Alexandre F, Jobst BC. A pilot study of a self-management intervention for cognitive impairment in epilepsy. Clinical Neurophys. 2014;125(11)e50. doi: 10.1016/j.clinph.2014.06.039.

Kobau R, Cui W, Kadima N, Zack MM, et al. Tracking psychosocial health in adults with epilepsy—estimates from the 2010 National Health Interview Survey. Epilepsy Behav. 2014;41:66-73. doi: 10.1016/j.yebeh.2014.08.002.

Koh HK, Kobau R, Whittemore VH, et al. Toward an integrated public health approach for epilepsy in the 21st century. Prev Chronic Dis. 2014;11:E146. doi: 10.5888/pcd11.14027.

Leaffer EB, Hesdorffer D, Begley C. Psychosocial and sociodemographic associates of felt stigma in epilepsy. Epilepsy Behav. 2014;37:104-9. doi: 10.1016/j.yebeh.2014.06.006.

Selassie AW, Wilson DA, Martz GU, Smith G, Wagner JL, Wannamaker B. Epilepsy beyond seizure: A population-based study of comorbidities. Epilepsy Res. 2014;108:305-315. doi: 10.1016/j.eplepsyres.2013.12.002.

Selassie A, Wilson D, Malek A, et al. Premature deaths among children with epilepsy — South Carolina, 2000–2011. MMWR. 2014:63(44);989-94. html. Accessed December 23, 2014. pdf icon[PDF 956K].

Wagner JL, Wilson DA, Smith G, Malek A, Selassie AW. Neurodevelopmental and mental health comorbidities in children and adolescents with epilepsy and migraine: a response to identified research gaps. Dev Med Child Neurol. 2015;57(1):45-52. doi: 10.1111/dmcn.12555.

Wilson DA, Selassie AW. Risk of severe and repetitive traumatic brain injury in persons with epilepsy: A population-based case-control study. Epilepsy Behav. 2014;32:42-48. doi: 10.1016/j.yebeh.2013.12.035.


Kadima NT, Kobau R, Zack MM, Helmers S. Comorbidity in Adults with Epilepsy — United States, 2010. MMWR. 2013;62(43):849-853. html Accessed August 24, 2017. pdfpdf icon[pdf – 546KB]

Shegog R, Bamps YA, Patel A, Kakacek J, Escoffery C, Johnson EK, Ilozumba UO. Managing Epilepsy Well: Emerging e-Tools for epilepsy self-management. Epilepsy Behav. 2013;29:133-140. doi: 10.1016/j.yebeh.2013.07.002.


Croker C, Redelings M, Reporter R, Sorvillo F, Mascola L, et al. The impact of neurocysticercosis in California: a review of hospitalized cases. PLOS Negl Trop Dis 2012;6(1). doi: 10.1371/journal.pntd.0001480. htmlexternal icon

Johnson EK, Fraser RT, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P. A comparison of epilepsy self-management needs: provider and patient perspectives. Epilepsy Behav. 2012;25(2):150-5. doi: 10.1016/j.yebeh.2012.07.020.

Kobau R, Luncheon C, Zack MM, Shegog R, Price PH. Satisfaction with life domains in people with epilepsy. Epilepsy Behav. 2012;25(4):546-51. doi: 10.1016/j.yebeh.2012.09.013.

Kobau R, Luo YH, PhD, Zack MM, Helmers S, Thurman DJ. Epilepsy in adults and access to care — United States, 2012. MMWR. 2012;61(45);909-913. html. Accessed October 10, 2014. pdfpdf icon[863KB].

Kobau R, Price P, Hawkins NA. News from the CDC: Translating epilepsy self-management research to practice. Transl Behav Med: Practice, Policy and Research. 2012;2(2):124–125. doi: 10.1007/s13142-012-0122-y.

Thompson AW, Kobau R, Park R, Grant D. Epilepsy care and mental health care for people with epilepsy: California Health Interview Survey, 2005. Prev Chronic Dis. 2012;9:110140. doi: 10.5888/pcd9.110140.

Walker ER, Bamps Y, Burdett A, DiIorio C, Rothkopf J. Social support for self-management behaviors among people with epilepsy: a content analysis of the WebEase program. Epilepsy Behav. 2012;23(3):285-90. doi: 10.1016/j.yebeh.2012.01.006.

Walker ER, Engelhard Jr. G, Thompson NJ. Using Rasch measurement theory to assess three depression scales among adults with epilepsy. Seizure. 2012;21(6):437-443. doi: 10.1016/j.seizure.2012.04.009.


Chaytor N, Ciechanowski P, Miller JW, et al. Long-term outcomes from the PEARLS randomized trial for the treatment of depression in patients with epilepsy. Epilepsy Behav. 2011;20(3):545-549. doi: 10.1016/j.yebeh.2011.01.017.

Fraser RT, Johnson EK, Miller JW, et al. Managing Epilepsy Well: a self-management needs assessment. Epilepsy Behav. 2011;20(2):291-298. doi: 10.1016/j.yebeh.2010.10.010.

Leaffer EB, Jacoby A, Benn E, et al. Associates of stigma in an incident epilepsy population from northern Manhattan, New York City. Epilepsy Behav. 2011;21(1):60-4. doi: 10.1016/j.yebeh.2011.03.007.

Sorvillo F, Wilkins P, Shafir S, Eberhard M. Public health implications of cysticercosis acquired in the United States. Emerg Infect Dis. 2011;17(1):1-6. doi: 10.3201/eid1701.101210.

Thurman DJ, Beghi E, Begley CE, et al. ILAE Commission on Epidemiology. Standards for epidemiologic studies and surveillance of epilepsy. Epilepsia. 2012;52(7)437-43. doi: 10.1111/j.1528-1167.2011.03121.x.


Begley CE, Shegog R, Iyagba B, et al. Socioeconomic status and self-management in epilepsy: comparison of diverse clinical populations in Houston, TX. Epilepsy Behav. 2010;19(3):232-238. doi: 10.1016/j.yebeh.2010.08.020.

Ciechanowski P, Chaytor N, Miller J, et al. PEARLS depression treatment for individuals with epilepsy: a randomized controlled trial. Epilepsy Behav. 2010;19(3):225-231. doi: 10.1016/j.yebeh.2010.06.003.

Clark NM, Stoll S, Sweetman M, Youatt EJ, Derry R, Gorelick A. Fostering epilepsy self-management: the perspectives of professionals. Epilepsy Behav. 2010;19(3):255-263. doi: 10.1016/j.yebeh.2010.08.033.

DiIorio C, Bamps Y, Edwards AL, Escoffery C, Thompson NJ, Begley CE, Shegog R, Clark NM, Selwa L, Stoll S, Fraser RT, Ciechanowski P, Johnson EK, Kobau R, Price PH. (2010) The Prevention Research Centers’ Managing Epilepsy Well Network. Epilepsy Behav. 2010;19(3):218-224. doi: 10.1016/j.yebeh.2010.07.027.

Ferguson PL, Smith GM, Wannamaker BB, Thurman DJ, Pickelsimer EE, Selassie AW. A population-based study of risk of epilepsy after hospitalization for traumatic brain injury. Epilepsia. 2010;51(5):891-8. doi: 10.1111/j.1528-1167.2009.02384.x.

Handali S, Klarman M, Gaspard AN, Dong XF, Laborde R et al. Development and evaluation of a magnetic immunochromatographic test to detect Taenia solium, which causes taeniasis and neurocysticercosis in humans. Clin Vaccine Immunol. 2010;17(4):631-7. doi: 10.1128/CVI.00511-09.

Kobau R, Price P, Giles HW, Pennell P, Hargis E. Forward/editorial: Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy Behav. 2010;19(3):216-217. doi: 10.1016/j.yebeh.2010.08.016.

Thompson NJ, Walker ER, Obolensky N, Winning A, Barmon C, DiIorio C, Compton M. Distance Delivery of Mindfulness-based Cognitive Therapy for Depression: Project UPLIFT. Epilepsy Behav. 2010;19(3):247-254. doi: 10.1016/j.yebeh.2010.07.031.

Walker ER, Obolensky N, Dini S, Thompson, NJ. Formative and process evaluations of a CBT and mindfulness intervention for people with epilepsy and depression. Epilepsy Behav. 2010;19(3):239-246. doi: 10.1016/j.yebeh.2010.07.032.


Benn EK, Hauser WA, Shih T, et al. “Underlying cause of death in incident unprovoked seizures in the urban community of Northern Manhattan, New York City.” Epilepsia. 2009;50(10):2296-300. doi: 10.1111/j.1528-1167.2009.02133.x.

Bokhour BG, Pugh MJ, Rao JK, et al. Identifying patient-centered indicators for quality epilepsy care. Med Care Res Rev. 2009;66(2):147-166. doi: 10.1177/1077558708327174.
Centers for Disease Control and Prevention. Announcement: National Epilepsy Awareness Month — November 2009. MMWR. 2009;58(42):1183. html. Accessed October 10, 2014.

DiIorio C, Escoffery C, McCarty F, et al. Evaluation of WebEase: an epilepsy self-management website. Health Educ Res. 2009 24(2):185:97. doi: 10.1093/her/cyn012.

DiIorio C, Escoffery C, Yeager KA, McCarty F, Henry TR, Koganti A, et al. WebEase: development of a Web-based epilepsy self-management intervention. Prev Chronic Dis 2009;6(1). html. Accessed October 10, 2014.

Parko K, Thurman DJ. Prevalence of epilepsy and seizures in the Navajo Nation 1998–2002. Epilepsia. 2009;50(10):2180-5. DOI: 10.1111/j.1528-1167.2009.02140.x.


Benn EK, Hauser WA, Shih T, et al. Estimating the incidence of first unprovoked seizure and newly diagnosed epilepsy in the low-income urban community of Northern Manhattan, New York City. Epilepsia. 2008;49(8):1431-1439. doi: 10.1111/j.1528-1167.2008.01564.x.

Escoffery C, DiIorio C, Yeager KA, et al. Use of computers and the Internet for health information by patients with epilepsy. Epilepsy Behav. 2008;12(1):109–14. Abstractexternal icon. Accessed October 10, 2014.

Ferguson PL, Chiprich J, Smith G, et al. Prevalence of self-reported epilepsy, health care access, and health behaviors among adults in South Carolina. Epilepsy Behav. 2008;13(3):529-34. doi: 10.1016/j.yebeh.2008.05.005.

Kobau R, Zahran H, Thurman DJ, et al. Epilepsy surveillance among adults-19 states, Behavioral Risk Factor Surveillance System, 2005. MMWR. 2008;57(No.SS-6):1-20. html. PDFpdf icon[900KB]. [View the errata for this article here]. 2008;57(32):876. Accessed October 10, 2014.


Bambara JK, Griffith HR, Martin RC, Faught E, Wadley VG, Marson DC. Medical decision-making abilities in older adults with chronic partial epilepsy. Epilepsy Behav. 2007;10(1): 63–68. Abstract.external icon Accessed October 10, 2014.

Hirtz D, Thurman DJ, Gwinn-Hardy K, et al. How common are the “common” neurological disorders? Neurology. 2007;68(5):326–37. Abstract.external icon Accessed October 10, 2014.

Kelvin EA, Hesdorffer DC, Bagiella E, et al. Prevalence of self-reported epilepsy in a multiracial and multiethnic community in New York City. Epilepsy Res. 2007;77(2-3):141-150. Abstract. external iconAccessed October 10, 2014.

Kobau R, Zahran H, Grant D, et al. Prevalence of active epilepsy and health-related quality of life among adults with self-reported epilepsy in California: California Health Interview Survey, 2003. Epilepsia. 2007;48:1904-1913. doi:10.1111/j.1528-1167.2007.01161.xexternal icon

Pramuka M, Hendrickson R, Zinski A, Van Cott AC. A psychosocial self-management program for epilepsy: A randomized pilot study in adults. Epilepsy Behav. 2007;11(4):533–545. doi:10.1016/j.yebeh.2007.06.013external icon

Pugh MJ, Berlowitz DR, Montouris G, Bokhour B, Cramer JA, et al. What constitutes high quality of care for adults with epilepsy? Neurology. 2007;69:2020–2027. doi:10.1212/01.WNL.0000291947.29643.9fexternal icon

Vogtle LK, Martin RC, Foushee HR, Faught RE. A comparison of physicians’ attitudes and beliefs regarding driving for persons with epilepsy. Epilepsy Behav. 2007;10(1) 55–62. doi:10.1016/j.yebeh.2006.09.003external icon


Austin JK, Carr DA, Hermann BP. Living Well II: a review of progress since 2003. Epilepsy Behav. 2006;9(3):386-93. Abstractexternal icon. Accessed October 10, 2014. doi:10.1016/j.yebeh.2006.08.015external icon

Caplin DA, Rao JK, Filloux F, Bale JF, van Orman C. Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus recommendations based on the available evidence. Epilepsia 2006;47:2011–2019. doi:10.1111/j.1528-1167.2006.00853.xexternal icon

Kobau R, DiIorio CA, Anderson LA, Price PH. Further validation and reliability testing of the Attitudes and Beliefs about Living with Epilepsy (ABLE) components of the CDC Epilepsy Program Instrument on Stigma. Epilepsy Behav. 2006;8(3):552–559. Epub 2006. doi:10.1016/j.yebeh.2006.01.008external icon

Kobau R, Gilliam F, Thurman DJ. Prevalence of self-reported epilepsy or seizure disorder, and its associations with depression and anxiety—results from the 2004 HealthStyles Survey. Epilepsia 2006. doi:10.1111/j.1528-1167.2006.00612.xexternal icon


Centers for Disease Control and Prevention. Prevalence of epilepsy and health-related quality of life and disability among adults with epilepsy – South Carolina, 2003 and 2004. MMWR. 2005;54(42):1080-1082. html. Accessed August 24, 2017.

DeGiorgio C, Pietsch-Escueta S, Tsang V, et al. Sero-prevalence of Taenia solium cysticercosis and Taenia solium taeniasis in California, USA. Acta Neurolo Scandi. 2005:111(2):84–88. doi:10.1111/j.1600-0404.2005.00373.xexternal icon

Holden EW, Grossman E, Nguyen HT, et al. Developing a computer algorithm to identify epilepsy cases in managed care organizations. Dis Manag. 2005:8(1):1-14. doi:10.1089/dis.2005.8.1

Holden EW, Nguyen HT, Grossman E, et al. Estimating prevalence, incidence, and disease-related mortality for patients with epilepsy in managed care organizations. Epilepsia. 2005;46:311-319. doi:10.1111/j.0013-9580.2005.30604.x

Martin R, Griffith HR, Faught E, et al. Cognitive functioning in community dwelling older adults with intractable partial epilepsy. Epilepsia. 2005:46(2):298-303. doi: 10.1111/j.0013-9580.2005.02104.x

Martin R, Vogtle L, Gilliam F, Faught E. What are the concerns of older adults living with epilepsy? Epilepsy Behav. 2005:7:297–300. doi: 10.1016/j.yebeh.2005.05.003

Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P. Que es la epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy Behav. 2005;7:259–265. doi: 10.1016/j.yebeh.2005.04.015

Strine TW, Kobau R, Chapman DP, Thurman DJ, Price PH, Balluz L. Psychological distress, comorbidities, and health behaviors among US adults with seizures: results from the 2002 National Health Interview Survey. Epilepsia. 2005:46(7):1133–1139. doi: 10.1111/j.1528-1167.2005.01605.x


Ciechanowski P, Wagner E, Schmaling K, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA. 2004;291(13):1569-77. doi: 10.1001/jama.291.13.1569

DiIorio CA, Kobau R, Holden EW, Berkowitz JM, et al. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy Behav. 2004;5:965–975. doi: 10.1016/j.yebeh.2004.08.020

Kobau R, DiIiorio CA, Price PH, et al. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. doi: 10.1016/j.yebeh.2004.02.007


Kobau R, Price PH. Knowledge of epilepsy and familiarity with this disorder in the U.S. population: results from the 2002 Health Styles Survey. Epilepsia. 2003:44(11):1449–1454. Abstract. external iconAccessed August 24, 2017.

Martin R, Vogtle L, Gilliam F, Faught E. Health-related quality of life in seniors: What we know from clinical trials and directions for future research. Epilepsy Behav. 2003:4:626–634. Abstract.external icon Accessed August 24, 2017.


Centers for Disease Control and Prevention. Prevalence. Health-related quality of life among persons with epilepsy Texas, 1998. MMWR. 2001;50(02):24-26,35. html. Accessed August 24, 2017.


Begley CE, Famulari M, Annegers JF, et al. The cost of epilepsy in the United States: an estimate from population-based clinical and survey data. Epilepsia. 2000;41(3):342-351. Abstractexternal icon. Accessed August 24, 2017.


Centers for Disease Control and Prevention. Hospitalization for epilepsy United States, 1988-1992. MMWR. 1994:44(43):818-823. html. Accessed August 24, 2017.

Centers for Disease Control and Prevention. Prevalence of self-reported epilepsy United States, 1986-1990. MMWR. 1994:43:810-811. html. Accessed August 24, 2017.