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Scientific Articles by Topic

Browse selected scientific articles published in journals and books. Articles are organized by topic.

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Access to Care

Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442. DOI: 10.15585/mmwr.mm6715a1. html

Centers for Disease Control and Prevention Epilepsy Program. Among adults with epilepsy reporting recent seizures, one of four on antiseizure medication and three of four not on medication had not seen a neurologist/epilepsy specialist within the last year, the 2010 and 2013 US National Health Interview Surveys. Epilepsy Behav. 2016;61:78-79. doi: 10.1016/j.yebeh.2016.04.031.

Thurman DJ, Kobau R, Luo Y, Helmers S, Zack MM. Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013. Epilepsy Behav. 2015, ePub before print. DOI: 10.1016/j.yebeh.2015.10.028.

Kobau R, Luo YH, PhD, Zack MM, Helmers S, Thurman DJ. Epilepsy in adults and access to care — United States, 2012. MMWR. 2012;61(45);909-913. html. Accessed October 10, 2014.pdf [863KB].

Escoffery C, DiIorio C, Yeager KA, et al. Use of computers and the Internet for health information by patients with epilepsy. Epilepsy Behav. 2008;12(1):109–14. Abstract. Accessed October 10, 2014.

Ferguson PL, Chiprich J, Smith G, et al. Prevalence of self-reported epilepsy, health care access, and health behaviors among adults in South Carolina. Epilepsy Behav. 2008:13(3):529-34. DOI: 10.1016/j.yebeh.2008.05.005.

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Comorbidity

Zack M, Luncheon C. Adults with an epilepsy history, especially those 45 years or older, those with lower family incomes, and those with a history of hypertension, report a history of stroke five times as often as adults without such a history-2010, 2013, and 2015 U.S. National Health Interview Survey. Epilepsy Behav. 2018;83:236-238. DOI: 10.1016/j.yebeh.2018.02.028.

Wagner JL, Wilson DA, Smith G, Malek A, Selassie AW. Neurodevelopmental and mental health comorbidities in children and adolescents with epilepsy and migraine: a response to identified research gaps. Dev Med Child Neurol. 2015;57(1):45-52. DOI: 10.1111/dmcn.12555.

Selassie AW, Wilson DA, Martz GU, Smith G, Wagner JL, Wannamaker B. Epilepsy beyond seizure: A population-based study of comorbidities. Epilepsy Res. 2014;108:305-315. DOI: 10.1016/j.eplepsyres.2013.12.002.

Kadima NT, Kobau R, Zack MM, Helmers S. Comorbidity in Adults with Epilepsy — United States, 2010. MMWR. 2013;62(43):849-853. html. Accessed October 10, 2014.[pdf – 546KB].

Strine TW, Kobau R, Chapman DP, Thurman DJ, Price PH, Balluz L. Psychological distress, comorbidities, and health behaviors among US adults with seizures: results from the 2002 National Health Interview Survey. Epilepsia. 2005:46(7):1133–1139. Abstract. Accessed October 10, 2014.

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Cost

Begley CE, Famulari M, Annegers JF, et al. The cost of epilepsy in the United States: an estimate from population-based clinical and survey data. Epilepsia.. 2000;41(3):342-351. Abstract. Accessed October 10, 2014.

Miller GF, Coffield E, Leroy Z, Wallin R. Prevalence and costs of five chronic conditions in children. J Sch Nurs. 2016;32(5):357-364. DOI: 10.1177/1059840516641190.

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Cysticercosis & Neurocysticercosis

Croker C, Redelings M, Reporter R, Sorvillo F, Mascola L, et al. The impact of neurocysticercosis in California: a review of hospitalized cases. PLOS Negl Trop Dis 2012;6(1). DOI: 10.1371/journal.pntd.0001480.

Sorvillo F, Wilkins P, Shafir S, Eberhard M. Public health implications of cysticercosis acquired in the United States. Emerg Infect Dis. 2011;17(1):1-6. DOI: 10.3201/eid1701.101210.

Handali S, Klarman M, Gaspard AN, Dong XF, Laborde R et al. Development and evaluation of a magnetic immunochromatographic test to detect Taenia solium, which causes taeniasis and neurocysticercosis in humans. Clin Vaccine Immunol. 2010;17(4):631-7. DOI: 10.1128/CVI.00511-09.

DeGiorgio C, Pietsch-Escueta S, Tsang V, et al. Sero-prevalence of Taenia solium cysticercosis and Taenia solium taeniasis in California, USA. Acta Neurolo Scandi. 2005:111(2):84–88. Abstract. Accessed October 10, 2014.

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Disability

Pastor PN, Reuben CA, Kobau R, Helmers SL, Lukacs S. Functional difficulties and school limitations of children with epilepsy: findings from the 2009–2010 National Survey of Children with Special Health Care Needs. Disabil Health J. 2015. DOI: 10.1016/j.dhjo.2014.09.002.

Centers for Disease Control and Prevention. Prevalence of epilepsy and health-related quality of life and disability among adults with epilepsy – South Carolina, 2003 and 2004. MMWR. 2005;54(42):1080-1082. html. Accessed October 10, 2014.

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Epidemiology & Surveillance

Sapkota S, Kobau R, Pastula DM, Zack MM. Close to 1 million US adults aged 55 years or older have active epilepsy- National Health Interview Survey, 2010, 2013, and 2015. Epilepsy Behav. [published online August 2, 2018] DOI: 10.1016/j.yebeh.2018.06.030.

Zack M, Luncheon C. Adults with an epilepsy history, notably those 45–64 years old or at the lowest income levels, more often report heart disease than adults without an epilepsy history. Epilepsy Behav. 2018;86:208-210. DOI: 10.1016/j.yebeh.2018.05.021.

Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442. DOI: 10.15585/mmwr.mm6715a1. html

Zack M, Luncheon C. Adults with an epilepsy history, especially those 45 years or older, those with lower family incomes, and those with a history of hypertension, report a history of stroke five times as often as adults without such a history-2010, 2013, and 2015 U.S. National Health Interview Survey. Epilepsy Behav. 2018;83:236-238. DOI: 10.1016/j.yebeh.2018.02.028.

Middleton O, Atherton D, Bundock E, et al. National Association of Medical Examiners Position Paper: Recommendations for the Investigation and Certification of Deaths in People with Epilepsy. Academic Forensic Pathology. 2018; 8(1): 119-135. DOI: 10.23907/2018.009.

Sapkota S, Kobau R, Pastula DM, Zack MM. People with epilepsy are diagnosed most often with unspecified epilepsy, followed by focal epilepsy, generalized convulsive epilepsy, and generalized nonconvulsive epilepsy—US MarketScan data, 2010–2015.  Epilepsy Behav. 2018;79:244-246. DOI: 10.1016/j.yebeh.2017.11.004.

Pessoa A, van der Linden V, Yeargin-Allsopp M, et al.  Motor abnormalities and epilepsy in infants and children with evidence of congenital Zika virus infection. Pediatrics. 2018;141(s2):1-13. DOI: 10.1542/peds.2017-2038F.

Ip Q, Malone DC, Chong J, Harris RB, Labiner DM. An update on the prevalence and incidence of epilepsy among older adults. Epilepsy Research. 2018;139:107-112. doi: 10.1016/j.eplepsyres.2017.11.022.

Zack MM, Kobau R. National and state estimates of the numbers of adults and children with active epilepsy — United States, 2015. MMWR. 2017;66:821–825. DOI: 10.15585/mmwr.mm6631a1. html

Pastula DM, Yeargin-Allsopp M, Kobau R. Enhanced Epilepsy Surveillance and Awareness in the Age of Zika. JAMA Neurol. 2017;74(6):631-632. DOI:10.1001/jamaneurol.2017.0215.

Greenlund SF, Croft JB, Kobau R. Epilepsy by the Numbers: Epilepsy deaths by age, race/ethnicity, and gender in the United States significantly increased from 2005 to 2014. Epilepsy Behav. 2017;69:28-30.

Burns KM, Bienemann L, Camperlengo L, et al. The Sudden Death in the Young Case Registry: Collaborating to understand and reduce mortality. Pediatrics. 2017;139(3):e20162757.

Pugh MJ, Van Cott AC, Amuan M, et al. Epilepsy Among Iraq and Afghanistan War Veterans — United States, 2002–2015. MMWR. 2016;65:1224–1227. DOI: 10.15585/mmwr.mm6544a5.

Centers for Disease Control and Prevention Epilepsy Program. Nearly one in five adults with active epilepsy lives alone based on findings from the 2010 and 2013 US national health interview surveys. Epilepsy Behav. 2015;51:259–260. doi:10.1016/j.yebeh.2015.07.034.

Tian N, Cui W, Zack MM, Kobau R, Fowler KA, Hesdorffer DC. Suicide among people with epilepsy: A population-based analysis of data from the U.S. National Violent Death Reporting System, 17 states, 2003-2011. Epilepsy Behav. 2016;61:210-217. DOI: 10.1016/j.yebeh.2016.05.028.

Centers for Disease Control and Prevention Epilepsy Program. More than 40% of those not taking antiseizure medication with recent seizures reported that epilepsy or its treatment interfered with their recent activities, 2010 and 2013 US National Health Interview Surveys. Epilepsy Behav. 2016;62:129–131. doi:10.1016/j.yebeh.2016.06.013.

Garcia HH, Gonzalez AE, Tsang VCW, et al. Elimination of Taenia solium Transmission in Northern Peru. N Engl J Med. 2016;374:2335-2344. DOI: 10.1056/NEJMoa1515520.

Centers for Disease Control and Prevention Epilepsy Program. About one-half of adults with active epilepsy and seizures have annual family incomes under $25,000: The 2010 and 2013 US National Health Interview Survey. Epilepsy Behav. 2016;58(5):33–34. DOI: 10.1016/j.yebeh.2016.02.024.

Wilson DA, Malek AM, Wagner JL, Wannamaker BB, Selassie AW. Mortality in in people with epilepsy: A statewide retrospective cohort study. Epilepsy Res. 2016;122:7-14. DOI: 10.1016/j.eplepsyres.2016.01.008.

Wannamaker BB, Wilson DA, Malek AM, Selassie AW. Stroke after adult-onset epilepsy: a population-based retrospective cohort study. Epilepsy Behav. 2015;43:93-9. DOI: 10.1016/j.yebeh.2014.11.028.

Hawley SR, Ablah E, Hesdorffer D, et al. Prevalence of pediatric epilepsy in low-income rural Midwestern counties. Epilepsy Behav. 2015;53:190-6. DOI: 10.1016/j.yebeh.2015.09.014.

Tang DH, Malone DC, Warholak TL, et al. Prevalence and Incidence of Epilepsy in an Elderly and Low-Income Population in the United States. J Clin Neurol. 2015;11(3):252-61. DOI: dx.doi.org/10.3988/jcn.2015.11.3.252.

Cui W, Kobau R, Zack MM, Helmers S. Marshalyn Yeargin-Allsopp M. Seizures in children and adolescents aged 6–17 years – United States, 2010–2014. MMWR. 2015;64(43):1209-14. html. Accessed January 14, 2016.

LaFrance W, Ranieri R, Bamps Y, et al. Comparison of common data elements from the Managing Epilepsy Well (MEW) Network integrated database and a well-characterized sample with nonepileptic seizures. Epilepsy Behav. 2015;45:136-41. DOI:10.1016/j.yebeh.2015.02.021.

Selassie AW, Wilson DA, Wagner JL, et al. Population-based comparative analysis of risk of death in children and adolescents with epilepsy and migraine. Epilepsia. 2015;56(12):1957-65. DOI: 10.1111/epi.13219.

Sahoo S, Zhang GQ, Bamps Y, et al. Managing Information Well: Towards an Ontology-driven Informatics Platform for Data Sharing and Secondary Use in Epilepsy Self-Management Research Centers. Health Informatics Journal. 2015, ePub available before print. DOI: 10.1177/1460458215572924.

Thurman DJ, Kobau R, Luo Y, Helmers S, Zack MM. Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013. Epilepsy Behav. 2015, ePub before print. DOI: 10.1016/j.yebeh.2015.10.028.

Tian N, Shaw EC, Zack MM, Kobau R, Dykstra H, Covington TM. Cause-specific mortality among Children and Young Adults with Epilepsy: Results from the U.S. National Child Death Review Case Reporting System. Epilepsy Behav. 2015, ePub before print. DOI: 10.1016/j.yebeh.2015.02.006.

Selassie A, Wilson D, Malek A, et al. Premature deaths among children with epilepsy — South Carolina, 2000–2011. MMWR. 2014:63(44);989-94. html. Accessed December 23, 2014. [PDF 955K].

Kobau R, Cui W, Kadima N, Zack MM, et al. Tracking psychosocial health in adults with epilepsy—estimates from the 2010 National Health Interview Survey. Epilepsy Behav. 2014;41:66-73. DOI: 10.1016/j.yebeh.2014.08.002.

Thurman DJ, Beghi E, Begley CE, et al. ILAE Commission on Epidemiology. Standards for epidemiologic studies and surveillance of epilepsy. Epilepsia. 2012;52(7)437-43. DOI: 10.1111/j.1528-1167.2011.03121.x.

Kobau R, Zahran H, Thurman DJ, et al. Epilepsy surveillance among adults-19 states, Behavioral Risk Factor Surveillance System, 2005. MMWR. 2008;57(No.SS-6):1-20. html. PDF [900KB]. [View the errata for this article here]. 2008;57(32):876. Accessed October 10, 2014.

Parko K, Thurman DJ. Prevalence of epilepsy and seizures in the Navajo Nation 1998–2002. Epilepsia. 2009;50(10):2180-5. DOI: 10.1111/j.1528-1167.2009.02140.x.

Benn EK, Hauser WA, Shih T, et al. “Underlying cause of death in incident unprovoked seizures in the urban community of Northern Manhattan, New York City.” Epilepsia 2009;50(10):2296-300. DOI: 10.1111/j.1528-1167.2009.02133.x.

Benn EK, Hauser WA, Shih T, et al. Estimating the incidence of first unprovoked seizure and newly diagnosed epilepsy in the low-income urban community of Northern Manhattan, New York City. Epilepsia. 2008;49(8):1431-1439. DOI: 10.1111/j.1528-1167.2008.01564.x.

Kobau R, Zahran H, Thurman DJ, et al. Epilepsy surveillance among adults-19 states, Behavioral Risk Factor Surveillance System, 2005. MMWR. 2008;57(No.SS-6):1-20. html. PDF [900KB]. [View the errata for this article here]. 2008;57(32):876. Accessed October 10, 2014.

Hirtz D, Thurman DJ, Gwinn-Hardy K, et al. How common are the “common” neurological disorders? Neurology. 2007;68(5):326–37. Abstract.Accessed October 10, 2014.

Kelvin EA, Hesdorffer DC, Bagiella E, et al. Prevalence of self-reported epilepsy in a multiracial and multiethnic community in New York City. Epilepsy Res. 2007;77(2-3):141-150. Abstract.Accessed October 10, 2014.

Kobau R, Gilliam F, Thurman DJ. Prevalence of self-reported epilepsy or seizure disorder, and its associations with depression and anxiety—results from the 2004 HealthStyles Survey. Epilepsia 2006. Abstract. Accessed October 10, 2014.

Holden EW, Grossman E, Nguyen HT, et al. Developing a computer algorithm to identify epilepsy cases in managed care organizations. Dis Manag. 2005:8(1):1-14. Abstract. Accessed October 10, 2014.

Holden EW, Nguyen HT, Grossman E, et al. Estimating prevalence, incidence, and disease-related mortality for patients with epilepsy in managed care organizations. Epilepsia. 2005;46:311-319. Abstract. Accessed October 10, 2014.

Kobau R, DiIiorio CA, Price PH, et al. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy Behav. 2004;5:358–366. Abstract. Accessed October 10, 2014.

Centers for Disease Control and Prevention. Prevalence of self-reported epilepsy United States, 1986-1990. MMWR. 1994:43:810-811. html. Accessed October 10, 2014.

Centers for Disease Control and Prevention. Hospitalization for epilepsy: United States, 1988-1992. MMWR. 1994:44(43):818-823. html. Accessed October 10, 2014.

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Health-Related Quality of Life

Kobau R, Cui W, Zack M. Adults with an epilepsy history fare significantly worse on positive mental and physical health than adults with other common chronic conditions—Estimates from the 2010 National Health Interview Survey and Patient Reported Outcome Measurement System (PROMIS) Global Health Scale. Epilepsy Behavior. 2017;72:182-184. DOI: 10.1016/j.yebeh.2017.04.047

Manacheril R, Faheem U, Labiner D, et al. Psychosocial Impact of Epilepsy in Older Adults. Healthcare. 2015;3(4):1271-83. DOI: 10.3390/healthcare3041271.

Kobau R, Luncheon C, Zack MM, Shegog R, Price PH. Satisfaction with life domains in people with epilepsy. Epilepsy Behav. 2012;25(4):546-51. DOI: 10.1016/j.yebeh.2012.09.013.

Kobau R, Zahran H, Grant D, et al. Prevalence of active epilepsy and health-related quality of life among adults with self-reported epilepsy in California: California Health Interview Survey, 2003. Epilepsia. 2007:48:1904-1913. Abstract. Accessed October 10, 2014.

Centers for Disease Control and Prevention. Prevalence of epilepsy and health-related quality of life and disability among adults with epilepsy – South Carolina, 2003 and 2004. MMWR. 2005;54(42):1080-1082. html. Accessed October 10, 2014.

Martin R, Vogtle L, Gilliam F, Faught E. Health-related quality of life in seniors: What we know from clinical trials and directions for future research. Epilepsy Behav. 2003:4:626–634. Abstract. Accessed October 10, 2014.

Centers for Disease Control and Prevention. Prevalence. Health-related quality of life among persons with epilepsy Texas, 1998. MMWR. 2001;50(02):24-26,35. html. Accessed October 10, 2014.

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Knowledge, Attitudes & Stigma

Sajatovic M, Herrmann LK, Van Doren JR, et al. A randomized prospective pilot trial of Web-delivered epilepsy stigma reduction communications in young adults. Epilepsia. 2017;58(11):1946-1954. DOI: 10.1111/epi.13911

Hermann LK, Welter E, Berg AT, Perzynski AT, VanDoren JR, Sajatovic M. Epilepsy misconceptions and stigma reduction: Current status in Western countries. Epilepsy Behav. 2016;60(7):165–173. DOI: 10.1016/j.yebeh.2016.04.003.

Buelow J, Gattone P, Giles W, Kobau R. Epilepsy Foundation public awareness campaigns, 2001 – 2013. Epilepsy Behav. 2015, ePub available before print. DOI:10.1016/j.yebeh.2014.12.045.

Cui W, Kobau R, Zack MM, Buelow JM, Austin JK. Recent changes in attitudes of US adults toward people withepilepsy — Results from the 2005 SummerStyles and 2013 FallStyles surveys. Epilepsy Behav. 2015;52:108-18. DOI:10.1016/j.yebeh.2015.08.040

Kobau R, DiIorio C, Thompson N, St. Louis E, Bamps Y. Epilepsy, comorbidities, and consequences: implications for understanding and combating stigma. St Louis, E, Ficker D, O’Brien, T eds. Epilepsy and the Interictal State: Co-morbidities and Quality of Life. Wiley- Blackwell. 2015. 15-28. Print.

Price P, Kobau R, Austin J, Buelow J, Lowenberg K. Improving understanding, promoting social inclusion and fostering empowerment related to epilepsy: Epilepsy Foundation public awareness campaigns – 2001 through 2013. Epilepsy Behav. 2015;44;239-44. DOI: 10.1016/j.yebeh.2014.12.044.

Leaffer EB, Hesdorffer D, Begley C. Psychosocial and sociodemographic associates of felt stigma in epilepsy. Epilepsy Behav. 2014;37:104-9. doi: 10.1016/j.yebeh.2014.06.006.

Leaffer EB, Jacoby A, Benn E, et al. Associates of stigma in an incident epilepsy population from northern Manhattan, New York City. Epilepsy Behav. 2011;21(1):60-4. DOI: 10.1016/j.yebeh.2011.03.007.

Centers for Disease Control and Prevention. Announcement: National Epilepsy Awareness Month — November 2009. MMWR. 2009;58(42):1183. html. Accessed October 10, 2014.

Vogtle LK, Martin RC, Foushee HR, Faught RE. A comparison of physicians’ attitudes and beliefs regarding driving for persons with epilepsy. Epilepsy Behav. 2007;10(1) 55–62. Abstract. Accessed October 10, 2014.

Kobau R, DiIorio CA, Anderson LA, Price PH. Further validation and reliability testing of the Attitudes and Beliefs about Living with Epilepsy (ABLE) components of the CDC Epilepsy Program Instrument on Stigma. Epilepsy Behav. 2006;8(3):552–559. Epub 2006. Abstract. Accessed October 10, 2014.

Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P. Que es la epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy Behav. 2005;7:259–265. Abstract. Accessed October 10, 2014.

DiIorio CA, Kobau R, Holden EW, Berkowitz JM, et al. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy Behav. 2004;5:965–975. Abstract. Accessed October 10, 2014.

Kobau R, DiIiorio CA, Price PH, et al. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy Behav. 2004;5:358–366. Abstract. Accessed October 10, 2014.

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Mental Health

Baldin E, Hauser WA, Pack A, Hesdorffer DC.  Stress is associated with an increased risk of recurrent seizures in adults. Epilepsia. 2017;58(6):1037-1046. DOI: 10.1111/epi.13741.

Thompson, NJ, Patel A, Selwa LM, et al. The efficacy of Project UPLIFT for prevention: Distance delivery of mindfulness-based depression prevention. J Consult Clin Psych. 2015;83(2):304-13.

Walker ER, Engelhard Jr. G, Thompson NJ. Using Rasch measurement theory to assess three depression scales among adults with epilepsy. Seizure. 2012;21(6):437-443. DOI: 10.1016/j.seizure.2012.04.009.

Chaytor N, Ciechanowski P, Miller JW, Fraser R, Russo J, Unutzer J, Gilliam F. Long-term outcomes from the PEARLS randomized trial for the treatment of depression in patients with epilepsy. Epilepsy Behav. 2011;20(3):545-549. DOI: 10.1016/j.yebeh.2011.01.017.

Ciechanowski P, Chaytor N, Miller J, Fraser R, Russo J, Unutzer J, Gilliam F. PEARLS depression treatment for individuals with epilepsy: a randomized controlled trial. Epilepsy Behav. 2010;19(3):225-231. DOI: 10.1016/j.yebeh.2010.06.003.

Thompson NJ, Walker ER, Obolensky N, Winning A, Barmon C, DiIorio C, Compton M. Distance Delivery of Mindfulness-based Cognitive Therapy for Depression: Project UPLIFT. Epilepsy Behav. 2010;19(3):247-254. DOI: 10.1016/j.yebeh.2010.07.031.

Walker ER, Obolensky N, Dini S, Thompson, NJ. Formative and process evaluations of a CBT and mindfulness intervention for people with epilepsy and depression. Epilepsy Behav. 2010;19(3):239-246. DOI: 10.1016/j.yebeh.2010.07.032.

Kobau R, Gilliam F, Thurman DJ. Prevalence of self-reported epilepsy or seizure disorder, and its associations with depression and anxiety—results from the 2004 HealthStyles Survey. Epilepsia 2006. Abstract. Accessed October 10, 2014.

Strine TW, Kobau R, Chapman DP, Thurman DJ, Price PH, Balluz L. Psychological distress, comorbidities, and health behaviors among US adults with seizures: results from the 2002 National Health Interview Survey. Epilepsia. 2005:46(7):1133–1139. Abstract. Accessed October 10, 2014.

Thompson AW, Kobau R, Park R, Grant D. Epilepsy care and mental health care for people with epilepsy: California Health Interview Survey, 2005. Prev Chronic Dis. 2012;9:110140. http://dx.doi.org/10.5888/pcd9.110140. Accessed October 10, 2014.

Ciechanowski P, Wagner E, Schmaling K, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA. 2004;291(13):1569-77. Abstract. html. pdf [PDF 190K] Accessed October 10, 2014.

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National Efforts

Koh HK, Kobau R, Whittemore VH, et al. Toward an integrated public health approach for epilepsy in the 21st century. Prev Chronic Dis. 2014;11:E146. DOI: http://dx.doi.org/10.5888/pcd11.14027.

Austin JK, Carr DA, Hermann BP. Living Well II: a review of progress since 2003. Epilepsy Behav. 2006;9(3):386-93. Abstract. Accessed October 10, 2014.

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Quality of Care

Bokhour BG, Pugh MJ, Rao JK, et al. Identifying patient-centered indicators for quality epilepsy care. Med Care Res Rev. 2009;66(2):147-166. DOI: 10.1177/1077558708327174.

Pugh MJ, Berlowitz DR, Montouris G, Bokhour B, Cramer JA, et al. What constitutes high quality of care for adults with epilepsy? Neurology. 2007;69:2020–2027. abstract Accessed October 10, 2014.

Caplin DA, Rao JK, Filloux F, Bale JF, van Orman C. Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus recommendations based on the available evidence. Epilepsia 2006;47:2011–2019. Abstract. Accessed October 10, 2014.

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Self-management

Friedman D, Spruill TM, Liu H. Depressive symptoms and suicidality among individuals with epilepsy enrolled in self-management studies: Results from the US Centers for Disease Control and Prevention Managing Epilepsy Well (MEW) Network. Epilepsy Behav. [published online August 13, 2018] DOI: 10.1016/j.yebeh.2018.06.024.

Sajatovic M, Colon-Zimmermann K, Kahriman M, et al. A 6‐month prospective randomized controlled trial of remotely delivered group format epilepsy self‐management versus waitlist control for high‐risk people with epilepsy. Epilepsia. 2018; 00: 1-12. DOI: 10.1111/epi.14527.

Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442. DOI: 10.15585/mmwr.mm6715a1. html

Escoffery C, McGee R, Bidwell J, et al. A review of mobile apps for epilepsy self-management. Epilepsy Behav. 2018; 81: 62-69. DOI: 10.1016/j.yebeh.2017.12.010.

Kumar N, Colon-Zimmermann K, Fuentes-Casiano E, et al. Clinical correlates of negative health events in a research sample with epilepsy. Epilepsy Behavior. 2018;79:225-229. DOI: https://doi.org/10.1016/j.yebeh.2017.11.037

Sajatovic M, Tatsuoka C, Welter E, et al. Correlates of quality of life among individuals with epilepsy enrolled in self-management research. Epilepsy Behav. 2017;69:177–180. DOI: 10.1016/j.yebeh.2016.12.005.

Sajatovic M, Jobst BC, Shegog R, et al. The Managing Epilepsy Well Network: Advancing epilepsy self-management. Am J Prev Med. 2017;52(3S3):S241–S245.

Helmers SL, Kobau R, Sajatovic M, et al. Self-management in epilepsy: Why and how you should incorporate self-management in your practice. Epilepsy Behav. 2016. doi: http://dx.doi.org/10.1016/j.yebeh.2016.11.015

Sajatovic M, Tatsuoka C, Welter E, et al. Targeted Self-Management of Epilepsy and Mental Illness for individuals with epilepsy and psychiatric comorbidity. Epilepsy Behav. 2016;64(Pt A):152-9. DOI: 10.1016/j.yebeh.2016.08.012.

Sahoo SS, Ramesh P, Welter E, Bukach A, Valdeza J, Tatsuoka C, Bamps Y, Stoll S, Jobst BC, Sajatovic M. Insight: An ontology-based integrated database and analysis platform for epilepsy self-management research. Int J Med Inform. 2016;94:21-30. doi:10.1016/j.ijmedinf.2016.06.009.

Escoffery C, McGee RE, Bamps Y, Helmers SL. Differences in epilepsy self-management behaviors among young and older adults. Austin J Neurol Disord Epilepsy. 2016;3(1): 1015.

Caller TA, Ferguson RJ, Roth RM, Secore KL, Alexandre FP, Zhao W, et al. A cognitive behavioral intervention (HOBSCOTCH) improves quality of life and attention in epilepsy. Epilepsy Behav. 2016;57(Pt A):111-7. DOI: 10.1016/j.yebeh.2016.01.024.

Centers For Disease Control And Prevention Epilepsy Program. Internet use and looking up information online in adults with epilepsy varies by epilepsy status – 2013 National Health Interview Survey. Epilepsy Behav. 2016;54:47-9. DOI: 10.1016/j.yebeh.2015.10.019.

Begley C, Shegog R, Harding A, Goldsmith C, Hope O, Newmark M. Longitudinal feasibility of MINDSET: A clinic decision aid for epilepsy self-management. Epilepsy Behav. 2015;44C:143-150. doi: 10.1016/j.yebeh.2014.12.031.

Brady TJ, Anderson LA, Kobau R. Chronic disease self-management support: public health perspectives. Front Public Health. 2015. 2:234. DOI: 10.3389/fpubh.2014.00234.

Caller TA, Secore KL, Ferguson RJ, Roth RM, Alexandre FP, Henegan PL, Harrington JJ, Jobst BC. Design and feasibility of a memory intervention with focus on self-management for cognitive impairment in epilepsy. Epilepsy Behav. 2015;44:192–194. DOI: 10.1016/j.yebeh.2014.12.036.

Cui W, Zack MM, Kobau R, Helmers SL. Health behaviors among people with epilepsy—Results from the 2010 National Health Interview Survey. Epilepsy Behav. 2015;44:121–126. DOI: 10.1016/j.yebeh.2015.01.011.

Escoffery C, Bamps YA, LaFrance W, et al. Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy Behav. 2015. 2015;50:172-183. DOI: 10.1016/j.yebeh.2015.07.025.

Escoffery C, Bamps YA, LaFrance W, et al. Factor analyses of an Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy Behav. 2015. ePub available before print. DOI: 10.1016/j.yebeh.2015.07.026

Fraser RT, Johnson EK, Lashley S, et al. PACES in epilepsy: Results of a self-management randomized controlled trial. Epilepsia. 2015. DOI:10.1111/epi.13052.

LaFrance W, Ranieri R, Bamps Y, et al. Comparison of common data elements from the Managing Epilepsy Well (MEW) Network integrated database and a well-characterized sample with nonepileptic seizures. Epilepsy Behav. 2015;45:136-41. DOI:10.1016/j.yebeh.2015.02.021.

Sahoo S, Zhang GQ, Bamps Y, et al. Managing Information Well: Towards an Ontology-driven Informatics Platform for Data Sharing and Secondary Use in Epilepsy Self-Management Research Centers. Health Informatics Journal. 2015, ePub available before print. DOI: 10.1177/1460458215572924.

Thompson, NJ, Patel A, Selwa LM, et al. The efficacy of Project UPLIFT for prevention: Distance delivery of mindfulness-based depression prevention. J Consult Clin Psych. 2015;83(2):304-13.

Caller TA, Secore K, Ferguson R, Roth R, Alexandre F, Jobst BC. A pilot study of a self-management intervention for cognitive impairment in epilepsy. Clinical Neurophys. 2014;125(11)e50. DOI: 10.1016/j.clinph.2014.06.039.

Shegog R, Bamps YA, Patel A, Kakacek J, Escoffery C, Johnson EK, Ilozumba UO. Managing Epilepsy Well: Emerging e-Tools for epilepsy self-management. Epilepsy Behav. 2013;29:133-140. DOI: 10.1016/j.yebeh.2013.07.002.

Johnson EK, Fraser RT, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P. A comparison of epilepsy self-management needs: provider and patient perspectives. Epilepsy Behav. 2012;25(2):150-5. DOI: 10.1016/j.yebeh.2012.07.020.

Kobau R, Price P, Hawkins NA. News from the CDC: Translating epilepsy self-management research to practice. Transl Behav Med: Practice, Policy and Research. 2012;2(2):124–125. DOI: 10.1007/s13142-012-0122-y.

Walker ER, Bamps Y, Burdett A, DiIorio C, Rothkopf J. Social support for self-management behaviors among people with epilepsy: a content analysis of the WebEase program. Epilepsy Behav. 2012;23(3):285-90. DOI: 10.1016/j.yebeh.2012.01.006.

Fraser RT, Johnson EK, Miller JW, et al. Managing Epilepsy Well: a self-management needs assessment. Epilepsy Behav. 2011;20(2):291-298. 10.1016/j.yebeh.2010.10.010.

Begley CE, Shegog R, Iyagba B, Chen V, Dubinsky S, Newmark M, Ojukwu N, Friedman D. Socioeconomic status and self-management in epilepsy: comparison of diverse clinical populations in Houston, TX. Epilepsy Behav. 2010;19(3):232-238. DOI: 10.1016/j.yebeh.2010.08.020.

Clark NM, Stoll S, Sweetman M, Youatt EJ, Derry R, Gorelick A. Fostering epilepsy self-management: the perspectives of professionals. Epilepsy Behav. 2010;19(3):255-263. DOI: 10.1016/j.yebeh.2010.08.033.

DiIorio C, Bamps Y, Edwards AL, Escoffery C, Thompson NJ, Begley CE, Shegog R, Clark NM, Selwa L, Stoll S, Fraser RT, Ciechanowski P, Johnson EK, Kobau R, Price PH. (2010) The Prevention Research Centers’ Managing Epilepsy Well Network. Epilepsy Behav. 2010;19(3):218-224. DOI: 10.1016/j.yebeh.2010.07.027.

Kobau R, Price P, Giles HW, Pennell P, Hargis E. Forward/editorial: Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy Behav. 2010;19(3):216-217. 10.1016/j.yebeh.2010.08.016.

DiIorio C, Escoffery C, Yeager KA, McCarty F, Henry TR, Koganti A, et al. WebEase: development of a Web-based epilepsy self-management intervention. Prev Chronic Dis 2009;6(1). html. Accessed October 10, 2014.

DiIorio C, Escoffery C, McCarty F, et al. Evaluation of WebEase: an epilepsy self-management website. Health Educ Res. 2009 24(2):185:97. DOI: 10.1093/her/cyn012.

Pramuka M, Hendrickson R, Zinski A, Van Cott AC. A psychosocial self-management program for epilepsy: A randomized pilot study in adults. Epilepsy Behav. 2007;11(4):533–545. Abstract. Accessed August 30, 2018.

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Specific Populations

Cui W, Kobau R, Zack MM, Helmers S. Marshalyn Yeargin-Allsopp M. Seizures in children and adolescents aged 6–17 years – United States, 2010–2014. MMWR. 2015;64(43):1209-14. html. Accessed January 14, 2016.

Hawley SR, Ablah E, Hesdorffer D, et al. Prevalence of pediatric epilepsy in low-income rural Midwestern counties. Epilepsy Behav. 2015;53:190-6. DOI: 10.1016/j.yebeh.2015.09.014.

Manacheril R, Faheem U, Labiner D, et al. Psychosocial Impact of Epilepsy in Older Adults. Healthcare. 2015;3(4):1271-83. DOI: 10.3390/healthcare3041271.

Tang DH, Malone DC, Warholak TL, et al. Prevalence and Incidence of Epilepsy in an Elderly and Low-Income Population in the United States. J Clin Neurol. 2015;11(3):252-61. DOI: dx.doi.org/10.3988/jcn.2015.11.3.252.

Bambara JK, Griffith HR, Martin RC, Faught E, Wadley VG, Marson DC. Medical decision-making abilities in older adults with chronic partial epilepsy. Epilepsy Behav. 2007;10(1): 63–68. Abstract. Accessed October 10, 2014.

Ciechanowski P, Wagner E, Schmaling K, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA. 2004;291(13):1569-77. Abstract. html. pdf [PDF 190K] Accessed October 10, 2014.

Martin R, Griffith HR, Faught E, et al. Cognitive functioning in community dwelling older adults with intractable partial epilepsy. Epilepsia. 2005:46(2):298-303. Abstract. Accessed October 10, 2014.

Martin R, Vogtle L, Gilliam F, Faught E. What are the concerns of older adults living with epilepsy? Epilepsy Behav. 2005:7:297–300. Abstract. Accessed October 10, 2014.

Martin R, Vogtle L, Gilliam F, Faught E. Health-related quality of life in seniors: What we know from clinical trials and directions for future research. Epilepsy Behav. 2003:4:626–634. Abstract. Accessed October 10, 2014.

Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P. Que es la epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy Behav. 2005;7:259–265. Abstract. Accessed October 10, 2014.

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Traumatic Brain Injury

Ferguson PL, Smith GM, Wannamaker BB, Thurman DJ, Pickelsimer EE, Selassie AW. A population-based study of risk of epilepsy after hospitalization for traumatic brain injury. Epilepsia. 2010;51(5):891-8. DOI: 10.1111/j.1528-1167.2009.02384.x.

Wilson DA, Selassie AW. Risk of severe and repetitive traumatic brain injury in persons with epilepsy: A population-based case-control study. Epilepsy Behav. 2014;32:42-48.DOI: 10.1016/j.yebeh.2013.12.035.

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