Scientific Articles by Topic

Browse selected scientific articles published in journals and books. Articles are organized by topic.

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Access to Care

Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442. doi: 10.15585/mmwr.mm6715a1. html

Centers for Disease Control and Prevention Epilepsy Program. Among adults with epilepsy reporting recent seizures, one of four on antiseizure medication and three of four not on medication had not seen a neurologist/epilepsy specialist within the last year, the 2010 and 2013 US National Health Interview Surveys. Epilepsy Behav. 2016;61:78-79. doi: 10.1016/j.yebeh.2016.04.031.

Thurman DJ, Kobau R, Luo Y, Helmers S, Zack MM. Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013. Epilepsy Behav. 2015, ePub before print. doi: 10.1016/j.yebeh.2015.10.028.

Kobau R, Luo YH, PhD, Zack MM, Helmers S, Thurman DJ. Epilepsy in adults and access to care — United States, 2012. MMWR. 2012;61(45);909-913. html. Accessed October 10, 2014.pdf pdf icon[863KB].

Smith G, Ferguson PL, Saunders LL, Wagner JL, Wannamaker BB, Selassie AW. Psychosocial factors associated with stigma in adults with epilepsy. Epilepsy Behav. 2009;16(3):484-490. doi: 10.1016/j.yebeh.2009.08.028

Escoffery C, DiIorio C, Yeager KA, et al. Use of computers and the Internet for health information by patients with epilepsy. Epilepsy Behav. 2008;12(1):109–14. Abstractexternal icon. Accessed October 10, 2014.

Ferguson PL, Chiprich J, Smith G, et al. Prevalence of self-reported epilepsy, health care access, and health behaviors among adults in South Carolina. Epilepsy Behav. 2008;13(3):529-34. doi: 10.1016/j.yebeh.2008.05.005

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Comorbidity

Tian N, Matthew Zack M, Wheaton AG, Greenlund  KJ, Croft JB. Epilepsy and chronic obstructive pulmonary disease among U.S. adults: National Health Interview Survey 2013, 2015, and 2017. Epilepsy Behav. 2020;110:107175. doi: 10.1016/j.yebeh.2020.107175

Zack M, Luncheon C. Adults with an epilepsy history, especially those 45 years or older, those with lower family incomes, and those with a history of hypertension, report a history of stroke five times as often as adults without such a history-2010, 2013, and 2015 U.S. National Health Interview Survey. Epilepsy Behav. 2018;83:236-238. doi: 10.1016/j.yebeh.2018.02.028

Wagner JL, Wilson DA, Smith G, Malek A, Selassie AW. Neurodevelopmental and mental health comorbidities in children and adolescents with epilepsy and migraine: a response to identified research gaps. Dev Med Child Neurol. 2015;57(1):45-52. doi: 10.1111/dmcn.12555

Selassie AW, Wilson DA, Martz GU, et al. Epilepsy beyond seizure: A population-based study of comorbidities. Epilepsy Res. 2014;108:305-315. doi: 10.1016/j.eplepsyres.2013.12.002

Kadima NT, Kobau R, Zack MM, Helmers S. Comorbidity in Adults with Epilepsy — United States, 2010. MMWR. 2013;62(43):849-853. html. Accessed October 10, 2014.pdf icon[pdf – 546KB].

Strine TW, Kobau R, Chapman DP, Thurman DJ, Price PH, Balluz L. Psychological distress, comorbidities, and health behaviors among US adults with seizures: results from the 2002 National Health Interview Survey. Epilepsia. 2005:46(7):1133–1139. Abstractexternal icon. Accessed October 10, 2014.

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Cost

Lindgren S, Lauer E, Momany E, et al. Disability, hospital care, and cost: utilization of emergency and inpatient care by children with intellectual and developmental disabilities (IDD). J Pediatr. 2021;229:259-266. doi: 10.1016/j.jpeds.2020.08.084

Begley CE, Famulari M, Annegers JF, et al. The cost of epilepsy in the United States: an estimate from population-based clinical and survey data. Epilepsia.. 2000;41(3):342-351. Abstractexternal icon. Accessed October 10, 2014.

Miller GF, Coffield E, Leroy Z, Wallin R. Prevalence and costs of five chronic conditions in children. J Sch Nurs. 2016;32(5):357-364. doi: 10.1177/1059840516641190

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Cysticercosis & Neurocysticercosis

Croker C, Redelings M, Reporter R, Sorvillo F, Mascola L, et al. The impact of neurocysticercosis in California: a review of hospitalized cases. PLOS Negl Trop Dis 2012;6(1). doi: 10.1371/journal.pntd.0001480

Sorvillo F, Wilkins P, Shafir S, Eberhard M. Public health implications of cysticercosis acquired in the United States. Emerg Infect Dis. 2011;17(1):1-6. doi: 10.3201/eid1701.101210

Handali S, Klarman M, Gaspard AN, Dong XF, Laborde R et al. Development and evaluation of a magnetic immunochromatographic test to detect Taenia solium, which causes taeniasis and neurocysticercosis in humans. Clin Vaccine Immunol. 2010;17(4):631-7. doi: 10.1128/CVI.00511-09

DeGiorgio C, Pietsch-Escueta S, Tsang V, et al. Sero-prevalence of Taenia solium cysticercosis and Taenia solium taeniasis in California, USA. Acta Neurolo Scandi. 2005:111(2):84–88. Abstractexternal icon. Accessed October 10, 2014.

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Disability

Horner-Johnson W, Lindner S, Levy A, et al. Time trends in emergency department use among adults with intellectual and developmental disabilities. Disabil and Health J. 2021;6:101225.

Lauer E, Lindgren S, Momany E, et al. Health service utilization patterns among Medicaid-insured adults with intellectual and developmental disabilities: implications for access needs in outpatient community-based medical services. J Ambul Care Manage. 2021;44(2):138-147. doi: 10.1097/JAC.0000000000000373

Pastor PN, Reuben CA, Kobau R, Helmers SL, Lukacs S. Functional difficulties and school limitations of children with epilepsy: findings from the 2009–2010 National Survey of Children with Special Health Care Needs. Disabil Health J. 2015. doi: 10.1016/j.dhjo.2014.09.002

Centers for Disease Control and Prevention. Prevalence of epilepsy and health-related quality of life and disability among adults with epilepsy – South Carolina, 2003 and 2004. MMWR. 2005;54(42):1080-1082. html. Accessed October 10, 2014.

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Epidemiology & Surveillance

Bensken WP, Navale SM, Andrew AS, Jobst BC, Sajatovic M, Koroukian SM. Delays and disparities in diagnosis for adults with epilepsy: Findings from U.S. Medicaid data. Epilepsy Res. 2020;166:106406. doi: 10.1016/j.eplepsyres.2020.106406

Burns KM, Cottengim C, Dykstra H, et al. Epidemiology of sudden death in a population-based study of infants and children. Sudden Death in the Young Case Registry. J Pediatr. 2020;2:100023. doi: 10.1016/j.ympdx.2020.100023

Tian N, Croft JB, Kobau R, Zack MM, Greenlund KJ. CDC-supported epilepsy surveillance and epidemiologic studies: A review of progress since 1994. Epilepsy Behav. 2020;109:107123. doi: 10.1016/j.yebeh.2020.107123

Bensken WP, Fernandez-Baca Vaca G, Jobst BC, et al. Burden of chronic and acute conditions and symptoms in people with epilepsy. Neurology. 2021;97(24):e2368-e2380.

Sajatovic, M., Wilson, B., Shegog, R., et al. The Managing Epilepsy Well (MEW) Network Database: lessons learned in refining and implementing an integrated data tool in service of a national U.S. research collaborative.  Epilepsy Behav. 2021;115:107650. doi: 10.1016/j.yebeh.2020.107650

Tian N, Wheaton AG, Zack M, Croft JB, Greenlund KJ. Sleep duration and quality among U.S. adults with epilepsy: National Health Interview Survey 2013, 2015, and 2017. Epilepsy Behav. 2021;122:108194. doi: 10.1016/j.yebeh.2021.108194

Grinspan ZM, Tian N, Yozawitz EG, et al. Common terms for rare epilepsies: Synonyms, associated terms, and links to structured vocabularies. Epilepsia Open. 2018 ;3(1):91-97. doi: 10.1002/epi4.12095

Kobau R, Sapkota S, Koh HK, Zack MM. National declines in the percentages of uninsured among adults aged 18-64 years with active epilepsy, 2010 and 2013 to 2015 and 2017-U.S. National Health Interview Survey. Epilepsy Behav. 2019; 97:316-318.doi: 10.1016/j.yebeh.2019.05.022

Tian N, Croft JB, Kobau R, Zack MM, Greenlund KJ. CDC-supported epilepsy surveillance and epidemiologic studies: A review of progress since 1994. Epilepsy Behav. 2020;109:107123. doi: 10.1016/j.yebeh.2020.107123

Tian N, Zack M, Wheaton AG, Greenlund KJ, Croft JB. Epilepsy and chronic obstructive pulmonary disease among U.S. adults: National Health Interview Survey 2013, 2015, and 2017. Epilepsy Behav. 2020; 110:107175. doi: 10.1016/j.yebeh.2020.107175

Burns KM, Cottengim C, Dykstra H, et al. Epidemiology of Sudden Death in a Population-Based Study of Infants and Children. Sudden Death in the Young Case Registry. J Pediatr X. 2020; 2:100023. doi: 10.1016/j.ympdx.2020.100023.

Bensken WP, Navale SM, Andrew AS, Jobst BC, Sajatovic M, Koroukian SM. Delays and disparities in diagnosis for adults with epilepsy: Findings from U.S. Medicaid data. Epilepsy Res. 2020; 166:106406. doi: 10.1016/j.eplepsyres.2020.106406

Sapkota S, Kobau R, Croft JB, King BA, Thomas C, Zack MM. Prevalence and Trends in Cigarette Smoking Among Adults with Epilepsy — United States, 2010–2017. MMWR Morb Mortal Wkly Rep 2020;69:1792–1796.

Wilson DA, Wannamaker BB, Malek AM, Selassie AW. Myocardial infarction after epilepsy onset: A population-based retrospective cohort study. Epilepsy Behav. 2018;88:181-188. doi: 10.1016/j.yebeh.2018.09.009

Sapkota S, Kobau R, Pastula DM, Zack MM. Close to 1 million US adults aged 55 years or older have active epilepsy- National Health Interview Survey, 2010, 2013, and 2015. Epilepsy Behav. [published online August 2, 2018] doi: 10.1016/j.yebeh.2018.06.030

Zack M, Luncheon C. Adults with an epilepsy history, notably those 45–64 years old or at the lowest income levels, more often report heart disease than adults without an epilepsy history. Epilepsy Behav. 2018;86:208-210. doi: 10.1016/j.yebeh.2018.05.021

Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442. doi: 10.15585/mmwr.mm6715a1. html

Zack M, Luncheon C. Adults with an epilepsy history, especially those 45 years or older, those with lower family incomes, and those with a history of hypertension, report a history of stroke five times as often as adults without such a history-2010, 2013, and 2015 U.S. National Health Interview Survey. Epilepsy Behav. 2018;83:236-238. doi: 10.1016/j.yebeh.2018.02.028

Middleton O, Atherton D, Bundock E, et al. National Association of Medical Examiners Position Paper: Recommendations for the Investigation and Certification of Deaths in People with Epilepsy. Academic Forensic Pathology. 2018; 8(1): 119-135. doi: 10.23907/2018.009

Sapkota S, Kobau R, Pastula DM, Zack MM. People with epilepsy are diagnosed most often with unspecified epilepsy, followed by focal epilepsy, generalized convulsive epilepsy, and generalized nonconvulsive epilepsy—US MarketScan data, 2010–2015.  Epilepsy Behav. 2018;79:244-246. doi: 10.1016/j.yebeh.2017.11.004

Pessoa A, van der Linden V, Yeargin-Allsopp M, et al.  Motor abnormalities and epilepsy in infants and children with evidence of congenital Zika virus infection. Pediatrics. 2018;141(s2):1-13. doi: 10.1542/peds.2017-2038F

Ip Q, Malone DC, Chong J, Harris RB, Labiner DM. An update on the prevalence and incidence of epilepsy among older adults. Epilepsy Research. 2018;139:107-112. doi: 10.1016/j.eplepsyres.2017.11.022

Zack MM, Kobau R. National and state estimates of the numbers of adults and children with active epilepsy — United States, 2015. MMWR. 2017;66:821–825. doi: 10.15585/mmwr.mm6631a1. html

Pastula DM, Yeargin-Allsopp M, Kobau R. Enhanced Epilepsy Surveillance and Awareness in the Age of Zika. JAMA Neurol. 2017;74(6):631-632. doi:10.1001/jamaneurol.2017.0215

Greenlund SF, Croft JB, Kobau R. Epilepsy by the Numbers: Epilepsy deaths by age, race/ethnicity, and gender in the United States significantly increased from 2005 to 2014. Epilepsy Behav. 2017;69:28-30.

Burns KM, Bienemann L, Camperlengo L, et al. The Sudden Death in the Young Case Registry: Collaborating to understand and reduce mortality. Pediatrics. 2017;139(3):e20162757.

Pugh MJ, Van Cott AC, Amuan M, et al. Epilepsy Among Iraq and Afghanistan War Veterans — United States, 2002–2015. MMWR. 2016;65:1224–1227. doi: 10.15585/mmwr.mm6544a5

Centers for Disease Control and Prevention Epilepsy Program. Nearly one in five adults with active epilepsy lives alone based on findings from the 2010 and 2013 US national health interview surveys. Epilepsy Behav. 2015;51:259–260. doi:10.1016/j.yebeh.2015.07.034

Tian N, Cui W, Zack MM, Kobau R, Fowler KA, Hesdorffer DC. Suicide among people with epilepsy: A population-based analysis of data from the U.S. National Violent Death Reporting System, 17 states, 2003-2011. Epilepsy Behav. 2016;61:210-217. doi: 10.1016/j.yebeh.2016.05.028

Centers for Disease Control and Prevention Epilepsy Program. More than 40% of those not taking antiseizure medication with recent seizures reported that epilepsy or its treatment interfered with their recent activities, 2010 and 2013 US National Health Interview Surveys. Epilepsy Behav. 2016;62:129–131. doi:10.1016/j.yebeh.2016.06.013

Garcia HH, Gonzalez AE, Tsang VCW, et al. Elimination of Taenia solium Transmission in Northern Peru. N Engl J Med. 2016;374:2335-2344. doi: 10.1056/NEJMoa1515520

Centers for Disease Control and Prevention Epilepsy Program. About one-half of adults with active epilepsy and seizures have annual family incomes under $25,000: The 2010 and 2013 US National Health Interview Survey. Epilepsy Behav. 2016;58(5):33–34. doi: 10.1016/j.yebeh.2016.02.024

Wilson DA, Malek AM, Wagner JL, Wannamaker BB, Selassie AW. Mortality in in people with epilepsy: A statewide retrospective cohort study. Epilepsy Res. 2016;122:7-14. doi: 10.1016/j.eplepsyres.2016.01.008

Wannamaker BB, Wilson DA, Malek AM, Selassie AW. Stroke after adult-onset epilepsy: a population-based retrospective cohort study. Epilepsy Behav. 2015;43:93-9. doi: 10.1016/j.yebeh.2014.11.028

Hawley SR, Ablah E, Hesdorffer D, et al. Prevalence of pediatric epilepsy in low-income rural Midwestern counties. Epilepsy Behav. 2015;53:190-6. doi: 10.1016/j.yebeh.2015.09.014

Tang DH, Malone DC, Warholak TL, et al. Prevalence and Incidence of Epilepsy in an Elderly and Low-Income Population in the United States. J Clin Neurol. 2015;11(3):252-61. doi: dx.doi.org/10.3988/jcn.2015.11.3.252

Cui W, Kobau R, Zack MM, Helmers S. Marshalyn Yeargin-Allsopp M. Seizures in children and adolescents aged 6–17 years – United States, 2010–2014. MMWR. 2015;64(43):1209-14. html. Accessed January 14, 2016.

LaFrance W, Ranieri R, Bamps Y, et al. Comparison of common data elements from the Managing Epilepsy Well (MEW) Network integrated database and a well-characterized sample with nonepileptic seizures. Epilepsy Behav. 2015;45:136-41. doi:10.1016/j.yebeh.2015.02.021.

Selassie AW, Wilson DA, Wagner JL, et al. Population-based comparative analysis of risk of death in children and adolescents with epilepsy and migraine. Epilepsia. 2015;56(12):1957-65. doi: 10.1111/epi.13219.

Sahoo S, Zhang GQ, Bamps Y, et al. Managing Information Well: Towards an Ontology-driven Informatics Platform for Data Sharing and Secondary Use in Epilepsy Self-Management Research Centers. Health Informatics Journal. 2015, ePub available before print. doi: 10.1177/1460458215572924.

Thurman DJ, Kobau R, Luo Y, Helmers S, Zack MM. Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013. Epilepsy Behav. 2015, ePub before print. doi: 10.1016/j.yebeh.2015.10.028.

Tian N, Shaw EC, Zack MM, Kobau R, Dykstra H, Covington TM. Cause-specific mortality among Children and Young Adults with Epilepsy: Results from the U.S. National Child Death Review Case Reporting System. Epilepsy Behav. 2015, ePub before print. doi: 10.1016/j.yebeh.2015.02.006

Selassie A, Wilson D, Malek A, et al. Premature deaths among children with epilepsy — South Carolina, 2000–2011. MMWR. 2014:63(44);989-94. html. Accessed December 23, 2014. pdf icon[PDF 955K].

Kobau R, Cui W, Kadima N, Zack MM, et al. Tracking psychosocial health in adults with epilepsy—estimates from the 2010 National Health Interview Survey. Epilepsy Behav. 2014;41:66-73. doi: 10.1016/j.yebeh.2014.08.002

Thurman DJ, Beghi E, Begley CE, et al. ILAE Commission on Epidemiology. Standards for epidemiologic studies and surveillance of epilepsy. Epilepsia. 2012;52(7)437-43. doi: 10.1111/j.1528-1167.2011.03121.x.

Kobau R, Zahran H, Thurman DJ, et al. Epilepsy surveillance among adults-19 states, Behavioral Risk Factor Surveillance System, 2005. MMWR. 2008;57(No.SS-6):1-20. html. PDF pdf icon[900KB]. [View the errata for this article here]. 2008;57(32):876. Accessed October 10, 2014.

Parko K, Thurman DJ. Prevalence of epilepsy and seizures in the Navajo Nation 1998–2002. Epilepsia. 2009;50(10):2180-5. doi: 10.1111/j.1528-1167.2009.02140.x.

Benn EK, Hauser WA, Shih T, et al. “Underlying cause of death in incident unprovoked seizures in the urban community of Northern Manhattan, New York City.” Epilepsia 2009;50(10):2296-300. doi: 10.1111/j.1528-1167.2009.02133.x

Benn EK, Hauser WA, Shih T, et al. Estimating the incidence of first unprovoked seizure and newly diagnosed epilepsy in the low-income urban community of Northern Manhattan, New York City. Epilepsia. 2008;49(8):1431-1439. doi: 10.1111/j.1528-1167.2008.01564.x

Kobau R, Zahran H, Thurman DJ, et al. Epilepsy surveillance among adults-19 states, Behavioral Risk Factor Surveillance System, 2005. MMWR. 2008;57(No.SS-6):1-20. html. PDF pdf icon[900KB]. [View the errata for this article here]. 2008;57(32):876. Accessed October 10, 2014.

Hirtz D, Thurman DJ, Gwinn-Hardy K, et al. How common are the “common” neurological disorders? Neurology. 2007;68(5):326–37. Abstract. external iconAccessed October 10, 2014.

Kelvin EA, Hesdorffer DC, Bagiella E, et al. Prevalence of self-reported epilepsy in a multiracial and multiethnic community in New York City. Epilepsy Res. 2007;77(2-3):141-150. Abstractexternal icon.Accessed October 10, 2014.

Kobau R, Gilliam F, Thurman DJ. Prevalence of self-reported epilepsy or seizure disorder, and its associations with depression and anxiety—results from the 2004 HealthStyles Survey. Epilepsia 2006. Abstract.external icon Accessed October 10, 2014.

Holden EW, Grossman E, Nguyen HT, et al. Developing a computer algorithm to identify epilepsy cases in managed care organizations. Dis Manag. 2005:8(1):1-14. Abstract.external icon Accessed October 10, 2014.

Holden EW, Nguyen HT, Grossman E, et al. Estimating prevalence, incidence, and disease-related mortality for patients with epilepsy in managed care organizations. Epilepsia. 2005;46:311-319. Abstractexternal icon. Accessed October 10, 2014.

Kobau R, DiIiorio CA, Price PH, et al. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy Behav. 2004;5:358–366. Abstract.external icon Accessed October 10, 2014.

Centers for Disease Control and Prevention. Prevalence of self-reported epilepsy United States, 1986-1990. MMWR. 1994:43:810-811. html. Accessed October 10, 2014.

Centers for Disease Control and Prevention. Hospitalization for epilepsy: United States, 1988-1992. MMWR. 1994:44(43):818-823. html. Accessed October 10, 2014.

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Health-Related Quality of Life

Kobau R, Cui W, Zack M. Adults with an epilepsy history fare significantly worse on positive mental and physical health than adults with other common chronic conditions—Estimates from the 2010 National Health Interview Survey and Patient Reported Outcome Measurement System (PROMIS) Global Health Scale. Epilepsy Behavior. 2017;72:182-184. doi: 10.1016/j.yebeh.2017.04.047

Manacheril R, Faheem U, Labiner D, et al. Psychosocial Impact of Epilepsy in Older Adults. Healthcare. 2015;3(4):1271-83. doi: 10.3390/healthcare3041271

Kobau R, Luncheon C, Zack MM, Shegog R, Price PH. Satisfaction with life domains in people with epilepsy. Epilepsy Behav. 2012;25(4):546-51. doi: 10.1016/j.yebeh.2012.09.013

Kobau R, Zahran H, Grant D, et al. Prevalence of active epilepsy and health-related quality of life among adults with self-reported epilepsy in California: California Health Interview Survey, 2003. Epilepsia. 2007:48:1904-1913. Abstractexternal icon. Accessed October 10, 2014.

Centers for Disease Control and Prevention. Prevalence of epilepsy and health-related quality of life and disability among adults with epilepsy – South Carolina, 2003 and 2004. MMWR. 2005;54(42):1080-1082. html. Accessed October 10, 2014.

Martin R, Vogtle L, Gilliam F, Faught E. Health-related quality of life in seniors: What we know from clinical trials and directions for future research. Epilepsy Behav. 2003:4:626–634. Abstract. external iconAccessed October 10, 2014.

Centers for Disease Control and Prevention. Prevalence. Health-related quality of life among persons with epilepsy Texas, 1998. MMWR. 2001;50(02):24-26,35. html. Accessed October 10, 2014.

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Knowledge, Attitudes & Stigma

Sajatovic M, Herrmann LK, Van Doren JR, et al. A randomized prospective pilot trial of Web-delivered epilepsy stigma reduction communications in young adults. Epilepsia. 2017;58(11):1946-1954. doi: 10.1111/epi.13911

Hermann LK, Welter E, Berg AT, Perzynski AT, VanDoren JR, Sajatovic M. Epilepsy misconceptions and stigma reduction: Current status in Western countries. Epilepsy Behav. 2016;60(7):165–173. doi: 10.1016/j.yebeh.2016.04.003

Buelow J, Gattone P, Giles W, Kobau R. Epilepsy Foundation public awareness campaigns, 2001 – 2013. Epilepsy Behav. 2015, ePub available before print. doi:10.1016/j.yebeh.2014.12.045.

Cui W, Kobau R, Zack MM, Buelow JM, Austin JK. Recent changes in attitudes of US adults toward people withepilepsy — Results from the 2005 SummerStyles and 2013 FallStyles surveys. Epilepsy Behav. 2015;52:108-18. doi:10.1016/j.yebeh.2015.08.040

Kobau R, DiIorio C, Thompson N, St. Louis E, Bamps Y. Epilepsy, comorbidities, and consequences: implications for understanding and combating stigma. St Louis, E, Ficker D, O’Brien, T eds. Epilepsy and the Interictal State: Co-morbidities and Quality of Life. Wiley- Blackwell. 2015. 15-28. Print.

Price P, Kobau R, Austin J, Buelow J, Lowenberg K. Improving understanding, promoting social inclusion and fostering empowerment related to epilepsy: Epilepsy Foundation public awareness campaigns – 2001 through 2013. Epilepsy Behav. 2015;44;239-44. doi: 10.1016/j.yebeh.2014.12.044

Leaffer EB, Hesdorffer D, Begley C. Psychosocial and sociodemographic associates of felt stigma in epilepsy. Epilepsy Behav. 2014;37:104-9. doi: 10.1016/j.yebeh.2014.06.006

Leaffer EB, Jacoby A, Benn E, et al. Associates of stigma in an incident epilepsy population from northern Manhattan, New York City. Epilepsy Behav. 2011;21(1):60-4. doi: 10.1016/j.yebeh.2011.03.007

Smith G, Ferguson PL, Saunders LL, Wagner JL, Wannamaker BB, Selassie AW. Psychosocial factors associated with stigma in adults with epilepsy. Epilepsy Behav. 2009;16(3):484-490. doi: 10.1016/j.yebeh.2009.08.028

Centers for Disease Control and Prevention. Announcement: National epilepsy awareness month — November 2009. MMWR. 2009;58(42):1183. html. Accessed October 10, 2014

Vogtle LK, Martin RC, Foushee HR, Faught RE. A comparison of physicians’ attitudes and beliefs regarding driving for persons with epilepsy. Epilepsy Behav. 2007;10(1) 55–62. Abstractexternal icon. Accessed October 10, 2014.

Kobau R, DiIorio CA, Anderson LA, Price PH. Further validation and reliability testing of the Attitudes and Beliefs about Living with Epilepsy (ABLE) components of the CDC Epilepsy Program Instrument on Stigma. Epilepsy Behav. 2006;8(3):552–559. Epub 2006. Abstract.external icon Accessed October 10, 2014.

Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P. Que es la epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy Behav. 2005;7:259–265. Abstract.external icon Accessed October 10, 2014.

DiIorio CA, Kobau R, Holden EW, Berkowitz JM, et al. Developing a measure to assess attitudes toward epilepsy in the US population. Epilepsy Behav. 2004;5:965–975. Abstract.external icon Accessed October 10, 2014.

Kobau R, DiIiorio CA, Price PH, et al. Prevalence of epilepsy and health status of adults with epilepsy in Georgia and Tennessee: Behavioral Risk Factor Surveillance System, 2002. Epilepsy Behav. 2004;5:358–366. Abstract.external icon Accessed October 10, 2014.

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Mental Health

Tian N, Zack MM, Hesdorffer DC. Timing of suicide in people with epilepsy: A population-based study from 18 states of the United States, 2003-2014. Epilepsy Behav. 2019; 99:106421. doi: 10.1016/j.yebeh.2019.07.022

Kobau R, Sapkota S, Zack MM. Serious psychological distress among adults with active epilepsy in all racial/ethnic groups and among adults with inactive epilepsy in non-Hispanic whites is significantly higher than among adults without epilepsy-U.S. National Health Interview Survey, 2010, 2013, 2015, and 2017. Epilepsy Behav. 2019; 95:192-194. doi: 10.1016/j.yebeh.2019.01.043

Kobau R, Manderscheid R, Owens S, LaFrance WC Jr, Sajatovic M. Bridging the divide between epilepsy and mental health to drive solutions. Epilepsy Behav. 2019; 101(Pt A):106576. doi: 10.1016/j.yebeh.2019.106576

Sajatovic M, Needham K, Colón-Zimmermann K, et al. The Community-targeted Self-management of Epilepsy and Mental Illness (C-TIME) initiative: A research, community, and healthcare administration partnership to reduce epilepsy burden. Epilepsy Behav. 2018;89:175-180. doi: 10.1016/j.yebeh.2018.10.004

Jamal-Omidi S, Collins C, Fulchiero E, et al. Assessing depression severity with a self-rated vs. rater-administered instrument in patients with epilepsy. Epilepsy Behav. 2018;85:52-57. doi: 10.1016/j.yebeh.2018.05.018

Baldin E, Hauser WA, Pack A, Hesdorffer DC.  Stress is associated with an increased risk of recurrent seizures in adults. Epilepsia. 2017;58(6):1037-1046. doi: 10.1111/epi.13741

Thompson, NJ, Patel A, Selwa LM, et al. The efficacy of Project UPLIFT for prevention: Distance delivery of mindfulness-based depression prevention. J Consult Clin Psych. 2015;83(2):304-13.

Walker ER, Engelhard Jr. G, Thompson NJ. Using Rasch measurement theory to assess three depression scales among adults with epilepsy. Seizure. 2012;21(6):437-443. doi: 10.1016/j.seizure.2012.04.009

Chaytor N, Ciechanowski P, Miller JW, Fraser R, Russo J, Unutzer J, Gilliam F. Long-term outcomes from the PEARLS randomized trial for the treatment of depression in patients with epilepsy. Epilepsy Behav. 2011;20(3):545-549. doi: 10.1016/j.yebeh.2011.01.017

Ciechanowski P, Chaytor N, Miller J, Fraser R, Russo J, Unutzer J, Gilliam F. PEARLS depression treatment for individuals with epilepsy: a randomized controlled trial. Epilepsy Behav. 2010;19(3):225-231. doi: 10.1016/j.yebeh.2010.06.003

Thompson NJ, Walker ER, Obolensky N, Winning A, Barmon C, DiIorio C, Compton M. Distance Delivery of Mindfulness-based Cognitive Therapy for Depression: Project UPLIFT. Epilepsy Behav. 2010;19(3):247-254. doi: 10.1016/j.yebeh.2010.07.031

Walker ER, Obolensky N, Dini S, Thompson, NJ. Formative and process evaluations of a CBT and mindfulness intervention for people with epilepsy and depression. Epilepsy Behav. 2010;19(3):239-246. doi: 10.1016/j.yebeh.2010.07.032

Kobau R, Gilliam F, Thurman DJ. Prevalence of self-reported epilepsy or seizure disorder, and its associations with depression and anxiety—results from the 2004 HealthStyles Survey. Epilepsia 2006. Abstract.external icon Accessed October 10, 2014.

Strine TW, Kobau R, Chapman DP, Thurman DJ, Price PH, Balluz L. Psychological distress, comorbidities, and health behaviors among US adults with seizures: results from the 2002 National Health Interview Survey. Epilepsia. 2005:46(7):1133–1139. Abstract. external iconAccessed October 10, 2014.

Thompson AW, Kobau R, Park R, Grant D. Epilepsy care and mental health care for people with epilepsy: California Health Interview Survey, 2005. Prev Chronic Dis. 2012;9:110140. http://dx.doi.org/10.5888/pcd9.110140external icon. Accessed October 10, 2014.

Ciechanowski P, Wagner E, Schmaling K, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA. 2004;291(13):1569-77. Abstractexternal icon. htmlexternal icon. pdf [PDF 190K]external icon Accessed October 10, 2014.

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National Efforts

Koh HK, Kobau R, Whittemore VH, et al. Toward an integrated public health approach for epilepsy in the 21st century. Prev Chronic Dis. 2014;11:E146.

Austin JK, Carr DA, Hermann BP. Living Well II: a review of progress since 2003. Epilepsy Behav. 2006;9(3):386-93. Abstractexternal icon. Accessed October 10, 2014.

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Quality of Care

Bensken W, Suparna N, Angeline A, Jobst B, Sajatovic M, Koroukian S. Markers of quality care for newly diagnosed people with epilepsy on Medicaid. Med Care. 2021;59(7):588-596. doi:10.1097/MLR.0000000000001541

Kobau R, Zack MM, Sapkota S, Sajatovic M, Kiriakopoulos E. When and why US primary care providers do and do not refer their patients with new-onset seizures or existing epilepsy or seizure disorders to neurologists-2018 DocStyles. Epilepsy Behav. 2021;125:108385.

Bokhour BG, Pugh MJ, Rao JK, et al. Identifying patient-centered indicators for quality epilepsy care. Med Care Res Rev. 2009;66(2):147-166. doi: 10.1177/1077558708327174.

Pugh MJ, Berlowitz DR, Montouris G, Bokhour B, Cramer JA, et al. What constitutes high quality of care for adults with epilepsy? Neurology. 2007;69:2020–2027. abstractexternal icon Accessed October 10, 2014.

Caplin DA, Rao JK, Filloux F, Bale JF, van Orman C. Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus recommendations based on the available evidence. Epilepsia 2006;47:2011–2019. Abstractexternal icon. Accessed October 10, 2014.

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Self-management

Briggs FBS, Wilson BK, Pyatka N, Colon-Zimmermann K, Sajatovic MM. Effects of a remotely delivered group-format epilepsy self-management program on adverse health outcomes in vulnerable people with epilepsy: A causal mediation analysis. Epilepsy Res. doi: 10.1016/j.eplepsyres.2020.106303

Escoffery, C., Johnson, L., McGee, R., et al., Epilepsy self-management behaviors among African Americans with epilepsy.  Epilepsy Behav. 2020;109 (107098). doi: 10.1016/j.yebeh.2020.107098

Johnson EK, Fraser RT, Lashley S, et al.  Program of Active Consumer Engagement in Self-Management in Epilepsy: Replication and extension of a self-management randomized controlled trial. Epilepsia. 2020;61(6):1129-1141. doi: 10.1111/epi.16530

Shegog R, Begley C, Chong J, et al. MINDSET: Clinic-based decision support demonstrates longitudinal efficacy for increased epilepsy self-management adherence among Spanish speaking patients. Epilepsy Behav. 2020;113:107552. doi: 10.1016/j.yebeh.2020.107552

Sudhakar S, Aebi M, Burant C, et al. Health literacy and education level correlates of participation and outcome in a remotely delivered epilepsy self-management program. Epilepsy Behav. 2020;107:107026. doi:10.1016/j.yebeh.2020.107026

Blixen C, Ghearing G, Wade O, Colon-Zimmerman K, Tyrrell M, Sajatovic M. Engaging stakeholders in the refinement of an evidence-based remotely delivered epilepsy self-management program for rural populations. Epilepsy Behav. 2021;118:107942. doi: 10.1016/j.yebeh.2021.107942

Moncrief GG, Aita SL, Tyson BT, et al. Self-rated executive dysfunction in adults with epilepsy and effects of a cognitive-behavioral intervention (HOBSCOTCH). Epilepsy Behav. 2021;121(Pt A):108042. doi: 10.1016/j.yebeh.2021.108042

Kottapalli I, Needham K, Colon-Zimmermann K, et al. A community-targeted implementation of Self-MAnagement for people with epilepsy and a histoRy of negative health evenTs (SMART): A research and community partnership to reduce epilepsy burden. Epilepsy Behav. 2022;108440. doi: 10.1016/j.yebeh.2021.108440

Chen E, Sajatovic M, Liu H, Bukach A, Tatsuoka C, Welter E, Schmidt SS, Bamps YA, Stoll SC, Spruill TM, Friedman D, Begley CE, Shegog R, Fraser RT, Johnson EK, Jobst BC. Demographic and clinical correlates of seizure frequency: Findings from the Managing Epilepsy Well Network Database. J Clin Neurol. 2018 ;14(2):206-211. doi: 10.3988/jcn.2018.14.2.206

Khalid Z, Momotaz H, Briggs F, Cassidy KA, Chaytor NS, Fraser RT, Janevic MR, Jobst B, Johnson EK, Scal P, Spruill TM, Wilson BK, Sajatovic M. Depressive Symptoms in Older versus Younger People with Epilepsy: Findings from an integrated epilepsy self-management clinical research dataset. J Multidiscip Healthc. 2019;12:981-988. doi: 10.2147/JMDH.S227184

McGee RE, Sajatovic M, Quarells RC, Johnson EK, Liu H, Spruill TM, Fraser RT, Janevic M, Escoffery C, Thompson NJ. Depression and quality of life among African Americans with epilepsy: Findings from the Managing Epilepsy Well (MEW) Network integrated database. Epilepsy Behav. 2019; 94:301-306. doi: 10.1016/j.yebeh.2019.02.026

Sajatovic M, Johnson EK, Fraser RT, Cassidy KA, Liu H, Pandey DK, Quarells RC, Scal P, Schmidt S, Shegog R, Spruill TM, Janevic MR, Tatsuoka C, Jobst BC. Self-management for adults with epilepsy: Aggregate Managing Epilepsy Well Network findings on depressive symptoms. Epilepsia. 2019; 60(9):1921-1931. doi: 10.1111/epi.16322. Epub 2019 Sep 5.

Thompson NJ, McGee RE, Garcia-Williams A, Selwa LM, Stoll SC, Johnson EK, Fraser RT. The impact of a depression self-management intervention on seizure activity. Epilepsy Behav. 2020; 103(Pt A):106504. doi: 10.1016/j.yebeh.2019.106504

Johnson EK, Fraser RT, Lashley S, Barber J, Brandling-Bennett EM, Vossler DG, Miller JW, Caylor L, Warheit-Niemi T. Program of Active Consumer Engagement in Self-Management in Epilepsy: Replication and extension of a self-management randomized controlled trial. Epilepsia. 2020; 61(6):1129-1141.doi: 10.1111/epi.16530

Ross S, Charles B, Jenny C, Refugio S, Robert A, Kimberly M, Omar R, Noelia H, David L. MINDSET: Clinic-based decision support demonstrates longitudinal efficacy for increased epilepsy self-management adherence among Spanish speaking patients. Epilepsy & Behaviorexternal icon. 2020, 107552.

Sajatovic M, Needham K, Colón-Zimmermann K, et al. The Community-targeted Self-management of Epilepsy and Mental Illness (C-TIME) initiative: A research, community, and healthcare administration partnership to reduce epilepsy burden. Epilepsy Behav. 2018;89:175-180. doi: 10.1016/j.yebeh.2018.10.004

Begley C, Chong J, Shegog R, et al. MINDSET: Clinical feasibility of utilizing the revised epilepsy self-management tool for Spanish speaking patients. Epilepsy Behav. 2018;88:218-226. doi: 10.1016/j.yebeh.2018.09.021

Begley C, Shegog R, Liu H, et al. Correlates of epilepsy self-management in MEW Network participants: From the Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy Behav. 2018;85:243-347. doi: 10.1016/j.yebeh.2018.04.011

Jamal-Omidi S, Collins C, Fulchiero E, et al. Assessing depression severity with a self-rated vs. rater-administered instrument in patients with epilepsy. Epilepsy Behav. 2018;85:52-57. doi: 10.1016/j.yebeh.2018.05.018

Kumar N, Colon-Zimmermann K, Fuentes-Casiano E, et al. Clinical correlates of negative health events in a research sample with epilepsy. Epilepsy Behav. 2018;79:225-229. doi: 10.1016/j.yebeh.2017.11.037

Shegog R, Begley CE. Clinic-based mobile health decision support to enhance adult epilepsy self-management: An intervention mapping approach. Front Public Health. 2017;5:256. doi: 10.3389/fpubh.2017.00256

Friedman D, Spruill TM, Liu H. Depressive symptoms and suicidality among individuals with epilepsy enrolled in self-management studies: Results from the US Centers for Disease Control and Prevention Managing Epilepsy Well (MEW) Network. Epilepsy Behav. [published online August 13, 2018] doi: 10.1016/j.yebeh.2018.06.024

Sajatovic M, Colon-Zimmermann K, Kahriman M, et al. A 6‐month prospective randomized controlled trial of remotely delivered group format epilepsy self‐management versus waitlist control for high‐risk people with epilepsy. Epilepsia. 2018; 00: 1-12. doi: 10.1111/epi.14527

Tian N, Boring M, Kobau R, Zack M, Croft J. Active Epilepsy and Seizure Control in Adults — United States, 2013 and 2015. MMWR. 2018;67(15):437-442.doi: 10.15585/mmwr.mm6715a1. html

Escoffery C, McGee R, Bidwell J, et al. A review of mobile apps for epilepsy self-management. Epilepsy Behav. 2018; 81: 62-69. doi: 10.1016/j.yebeh.2017.12.010

Kumar N, Colon-Zimmermann K, Fuentes-Casiano E, et al. Clinical correlates of negative health events in a research sample with epilepsy. Epilepsy Behavior. 2018;79:225-229. doi: https://doi.org/10.1016/j.yebeh.2017.11.037

Sajatovic M, Tatsuoka C, Welter E, et al. Correlates of quality of life among individuals with epilepsy enrolled in self-management research. Epilepsy Behav. 2017;69:177–180. doi: 10.1016/j.yebeh.2016.12.005

Sajatovic M, Jobst BC, Shegog R, et al. The Managing Epilepsy Well Network: Advancing epilepsy self-management. Am J Prev Med. 2017;52(3S3):S241–S245.

Helmers SL, Kobau R, Sajatovic M, et al. Self-management in epilepsy: Why and how you should incorporate self-management in your practice. Epilepsy Behav. 2016.

Sajatovic M, Tatsuoka C, Welter E, et al. Targeted Self-Management of Epilepsy and Mental Illness for individuals with epilepsy and psychiatric comorbidity. Epilepsy Behav. 2016;64(Pt A):152-9. doi: 10.1016/j.yebeh.2016.08.012

Sahoo SS, Ramesh P, Welter E, Bukach A, Valdeza J, Tatsuoka C, Bamps Y, Stoll S, Jobst BC, Sajatovic M. Insight: An ontology-based integrated database and analysis platform for epilepsy self-management research. Int J Med Inform. 2016;94:21-30. doi:10.1016/j.ijmedinf.2016.06.009

Escoffery C, McGee RE, Bamps Y, Helmers SL. Differences in epilepsy self-management behaviors among young and older adults. Austin J Neurol Disord Epilepsy. 2016;3(1): 1015.

Caller TA, Ferguson RJ, Roth RM, Secore KL, Alexandre FP, Zhao W, et al. A cognitive behavioral intervention (HOBSCOTCH) improves quality of life and attention in epilepsy. Epilepsy Behav. 2016;57(Pt A):111-7. doi: 10.1016/j.yebeh.2016.01.024

Centers For Disease Control And Prevention Epilepsy Program. Internet use and looking up information online in adults with epilepsy varies by epilepsy status – 2013 National Health Interview Survey. Epilepsy Behav. 2016;54:47-9. doi: 10.1016/j.yebeh.2015.10.019

Begley C, Shegog R, Harding A, Goldsmith C, Hope O, Newmark M. Longitudinal feasibility of MINDSET: A clinic decision aid for epilepsy self-management. Epilepsy Behav. 2015;44C:143-150. doi: 10.1016/j.yebeh.2014.12.031

Brady TJ, Anderson LA, Kobau R. Chronic disease self-management support: public health perspectives. Front Public Health. 2015. 2:234. doi: 10.3389/fpubh.2014.00234

Caller TA, Secore KL, Ferguson RJ, Roth RM, Alexandre FP, Henegan PL, Harrington JJ, Jobst BC. Design and feasibility of a memory intervention with focus on self-management for cognitive impairment in epilepsy. Epilepsy Behav. 2015;44:192–194. doi: 10.1016/j.yebeh.2014.12.036

Cui W, Zack MM, Kobau R, Helmers SL. Health behaviors among people with epilepsy—Results from the 2010 National Health Interview Survey. Epilepsy Behav. 2015;44:121–126. doi: 10.1016/j.yebeh.2015.01.011

Escoffery C, Bamps YA, LaFrance W, et al. Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy Behav. 2015. 2015;50:172-183. doi: 10.1016/j.yebeh.2015.07.025

Escoffery C, Bamps YA, LaFrance W, et al. Factor analyses of an Adult Epilepsy Self-Management Measurement Instrument (AESMMI). Epilepsy Behav. 2015. ePub available before print. doi: 10.1016/j.yebeh.2015.07.026

Fraser RT, Johnson EK, Lashley S, et al. PACES in epilepsy: Results of a self-management randomized controlled trial. Epilepsia. 2015. doi:10.1111/epi.13052.

LaFrance W, Ranieri R, Bamps Y, et al. Comparison of common data elements from the Managing Epilepsy Well (MEW) Network integrated database and a well-characterized sample with nonepileptic seizures. Epilepsy Behav. 2015;45:136-41. doi:10.1016/j.yebeh.2015.02.021

Sahoo S, Zhang GQ, Bamps Y, et al. Managing Information Well: Towards an Ontology-driven Informatics Platform for Data Sharing and Secondary Use in Epilepsy Self-Management Research Centers. Health Informatics Journal. 2015, ePub available before print. doi: 10.1177/1460458215572924

Thompson, NJ, Patel A, Selwa LM, et al. The efficacy of Project UPLIFT for prevention: Distance delivery of mindfulness-based depression prevention. J Consult Clin Psych. 2015;83(2):304-13.

Caller TA, Secore K, Ferguson R, Roth R, Alexandre F, Jobst BC. A pilot study of a self-management intervention for cognitive impairment in epilepsy. Clinical Neurophys. 2014;125(11)e50. doi: 10.1016/j.clinph.2014.06.039

Shegog R, Bamps YA, Patel A, Kakacek J, Escoffery C, Johnson EK, Ilozumba UO. Managing Epilepsy Well: Emerging e-Tools for epilepsy self-management. Epilepsy Behav. 2013;29:133-140. doi: 10.1016/j.yebeh.2013.07.002

Johnson EK, Fraser RT, Miller JW, Temkin N, Barber J, Caylor L, Ciechanowski P. A comparison of epilepsy self-management needs: provider and patient perspectives. Epilepsy Behav. 2012;25(2):150-5. doi: 10.1016/j.yebeh.2012.07.020

Kobau R, Price P, Hawkins NA. News from the CDC: Translating epilepsy self-management research to practice. Transl Behav Med: Practice, Policy and Research. 2012;2(2):124–125. doi: 10.1007/s13142-012-0122-y

Walker ER, Bamps Y, Burdett A, DiIorio C, Rothkopf J. Social support for self-management behaviors among people with epilepsy: a content analysis of the WebEase program. Epilepsy Behav. 2012;23(3):285-90. doi: 10.1016/j.yebeh.2012.01.006

Fraser RT, Johnson EK, Miller JW, et al. Managing Epilepsy Well: a self-management needs assessment. Epilepsy Behav. 2011;20(2):291-298. 10.1016/j.yebeh.2010.10.010

Begley CE, Shegog R, Iyagba B, Chen V, Dubinsky S, Newmark M, Ojukwu N, Friedman D. Socioeconomic status and self-management in epilepsy: comparison of diverse clinical populations in Houston, TX. Epilepsy Behav. 2010;19(3):232-238. doi: 10.1016/j.yebeh.2010.08.020

Clark NM, Stoll S, Sweetman M, Youatt EJ, Derry R, Gorelick A. Fostering epilepsy self-management: the perspectives of professionals. Epilepsy Behav. 2010;19(3):255-263. doi: 10.1016/j.yebeh.2010.08.033

DiIorio C, Bamps Y, Edwards AL, Escoffery C, Thompson NJ, Begley CE, Shegog R, Clark NM, Selwa L, Stoll S, Fraser RT, Ciechanowski P, Johnson EK, Kobau R, Price PH. (2010) The Prevention Research Centers’ Managing Epilepsy Well Network. Epilepsy Behav. 2010;19(3):218-224. doi: 10.1016/j.yebeh.2010.07.027

Kobau R, Price P, Giles HW, Pennell P, Hargis E. Forward/editorial: Centers for Disease Control and Prevention Managing Epilepsy Well Network. Epilepsy Behav. 2010;19(3):216-217. 10.1016/j.yebeh.2010.08.016

DiIorio C, Escoffery C, Yeager KA, McCarty F, Henry TR, Koganti A, et al. WebEase: development of a Web-based epilepsy self-management intervention. Prev Chronic Dis 2009;6(1). html. Accessed October 10, 2014.

DiIorio C, Escoffery C, McCarty F, et al. Evaluation of WebEase: an epilepsy self-management website. Health Educ Res. 2009 24(2):185:97. doi: 10.1093/her/cyn012

Pramuka M, Hendrickson R, Zinski A, Van Cott AC. A psychosocial self-management program for epilepsy: A randomized pilot study in adults. Epilepsy Behav. 2007;11(4):533–545. Abstractexternal icon. Accessed August 30, 2018.

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Specific Populations

Begley C, Chong J, Shegog R, et al. MINDSET: Clinical feasibility of utilizing the revised epilepsy self-management tool for Spanish speaking patients. Epilepsy Behav. 2018;88:218-226. doi: 10.1016/j.yebeh.2018.09.021

Cui W, Kobau R, Zack MM, Helmers S. Marshalyn Yeargin-Allsopp M. Seizures in children and adolescents aged 6–17 years – United States, 2010–2014. MMWR. 2015;64(43):1209-14. html. Accessed January 14, 2016.

Hawley SR, Ablah E, Hesdorffer D, et al. Prevalence of pediatric epilepsy in low-income rural Midwestern counties. Epilepsy Behav. 2015;53:190-6. doi: 10.1016/j.yebeh.2015.09.014

Manacheril R, Faheem U, Labiner D, et al. Psychosocial Impact of Epilepsy in Older Adults. Healthcare. 2015;3(4):1271-83. doi: 10.3390/healthcare3041271.

Tang DH, Malone DC, Warholak TL, et al. Prevalence and incidence of epilepsy in an elderly and low-income population in the United States. J Clin Neurol. 2015;11(3):252-61. doi: dx.doi.org/10.3988/jcn.2015.11.3.252.

Wagner JL, Sample PL, Ferguson PL, Pickelsimer EE, Smith GM, Selassie AW. Impact of pediatric epilepsy: Voices from a focus group and implications for public policy change. Epilepsy Behav. 2009;16(1):161-165. doi: 10.1016/j.yebeh.2009.07.008

Bambara JK, Griffith HR, Martin RC, Faught E, Wadley VG, Marson DC. Medical decision-making abilities in older adults with chronic partial epilepsy. Epilepsy Behav. 2007;10(1): 63–68. Abstract.external icon Accessed October 10, 2014.

Ciechanowski P, Wagner E, Schmaling K, et al. Community-integrated home-based depression treatment in older adults: a randomized controlled trial. JAMA. 2004;291(13):1569-77. Abstractexternal icon. htmlexternal icon. pdf [PDF 190K]external icon Accessed October 10, 2014.

Martin R, Griffith HR, Faught E, et al. Cognitive functioning in community dwelling older adults with intractable partial epilepsy. Epilepsia. 2005:46(2):298-303. Abstractexternal icon. Accessed October 10, 2014.

Martin R, Vogtle L, Gilliam F, Faught E. What are the concerns of older adults living with epilepsy? Epilepsy Behav. 2005:7:297–300. Abstract.external icon Accessed October 10, 2014.

Martin R, Vogtle L, Gilliam F, Faught E. Health-related quality of life in seniors: What we know from clinical trials and directions for future research. Epilepsy Behav. 2003:4:626–634. Abstract.external icon Accessed October 10, 2014.

Sirven JI, Lopez RA, Vazquez B, Van Haverbeke P. Que es la epilepsia? Attitudes and knowledge of epilepsy by Spanish-speaking adults in the United States. Epilepsy Behav. 2005;7:259–265. Abstract.external icon Accessed October 10, 2014.

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Traumatic Brain Injury

Ferguson PL, Smith GM, Wannamaker BB, Thurman DJ, Pickelsimer EE, Selassie AW. A population-based study of risk of epilepsy after hospitalization for traumatic brain injury. Epilepsia. 2010;51(5):891-8. doi: 10.1111/j.1528-1167.2009.02384.x

Wilson DA, Selassie AW. Risk of severe and repetitive traumatic brain injury in persons with epilepsy: A population-based case-control study. Epilepsy Behav. 2014;32:42-48. doi: 10.1016/j.yebeh.2013.12.035

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