Articles about Sickle Cell Disease
Did You Know Sickle Cell Has Many Faces?
Learn about the many faces of sickle cell disease and read Mimi’s story.
(Published: September 1, 2020)
World Sickle Cell Day
This World Sickle Cell Day (observed every year on June 19), find new stories and resources about sickle cell disease!
(Published: June 15, 2020)
Sickle Cell Disease Monitoring
CDC is working to raise awareness about sickle cell disease. You can help by reading and sharing our resources with friends and family.
(Published: January 21, 2020)
Taking Charge of Your Health and Health Care
Learn how young people with sickle cell disease can take a more active role in their health care.
(Published: January 21, 2020)
Caregivers and Sickle Cell Disease
Learn the effect sickle cell disease has on family members & caregivers.
(Published: September 16, 2019)
* These CDC scientific articles are listed in order of date published from 2014 to present.
Trends in sickle cell disease-related mortality in the United States, 1979-2017external icon
Payne AB, Mehal JM, Chapman C, Haberling DL, Richardson LC, Bean CJ, Hooper WC. Annals of Emergency Medicine. 2020; 76 (3S):S28-S36
Using surveillance to determine the number of individuals with sickle cell disease in California and Georgia, 2005-2016external icon
Aluc A, Zhou M, Paulukonis ST, Snyder AB, Wong D, Hulihan MM. [published online ahead of print, 2020 Aug 12]. Pediatr Hematol Oncol. 2020;1-5. doi:10.1080/08880018.2020.1779886
Impact of Medicaid expansion on access and healthcare among individuals with sickle cell diseaseexternal icon
Kayle M, Valle J, Paulukonis S, Holl JL, Tanabe P, French DD, Garg R, Liem RI, Badawy SM, Treadwell MJ. Pediatr Blood Cancer. 2020 May;67(5):e28152.
Acute Care Utilization at End of Life in Sickle Cell Disease: Highlighting the Need for a Palliative Approachexternal icon
Johnston EE, Adesina OO, Alvarez E, Amato H, Paulukonis S, Nichols A, Chamberlain LJ, Bhatia S. J Palliat Med. 2020 Jan;23(1):24-32.
Characterizing complication risk from multisite, intermittent transfusions for the treatment of sickle cell diseaseexternal icon
Tang A, Branscomb J, Zhou M, Snyder A, Eckman J. Pediatr Blood Cancer. 2019 Oct;66(10):e27921.
Health literacy and knowledge of chronic transfusion therapy in adolescents with sickle cell disease and caregiversexternal icon
Yee MEM, Meyer EK, Fasano, RM, Lane PA, Josephson CD, Brega AG. Pediatr Blood Cancer. 2019 Jul;66(7):e27733.
Understanding the Complications of Sickle Cell Diseaseexternal icon
Tanabe P, Spratling R, Smith D, Grissom P, Hulihan M. American Journal of Nursing 2019 June; 119 (6) 26-35. doi: 10.1097/01.NAJ.0000559779.40570.2c
Improving an Administrative Case Definition for Longitudinal Surveillance of Sickle Cell Diseaseexternal icon
Snyder AB, Zhou M, Theodore R, Quarmyne MO, Eckman J, Lane PA. Public Health Rep. 2019 May/Jun;134(3):274-281. doi: 10.1177/0033354919839072.
Transfusion service knowledge and immunohaematological practices related to sickle cell disease and thalassemiaexternal icon
Fasano RM, Branscomb J, Lane PA, Josephson CD, Snyder AB, Eckman JR. Transfus Med. 2019 Feb 10.
Facilitators and Barriers to Minority Blood Donations: A Systematic Reviewexternal icon
Spratling R, Lawrence RH. Nurs Res. 2019 Mar 1. [Epub ahead of print].
A Strategic Planning Tool for Increasing African American Blood Donationexternal icon
Singleton A, Spratling R. Health Promot Pract. 2018 May 1:1524839918775733. doi: 10.1177/1524839918775733.
Hemoglobin A clearance in children with sickle cell anemia on chronic transfusion therapyexternal icon
Yee MEM, Josephson CD, Winkler AM, Webb J, Luban NLC, Leong T, Stowell SR, Roback JD, Fasano RM. Transfusion. 2018 Apr 17. doi: 10.1111/trf.14610.
CDC Grand Rounds: Improving the Lives of Persons with Sickle Cell Diseaseexternal icon
Hulihan M, Hassell KL, Raphael JL, Smith-Whitley K, Thorpe P. MMWR Morb Mortal Wkly Rep. 2017 Nov 24;66(46):1269-1271. doi: 10.15585/mmwr.mm6646a2.
Red blood cell minor antigen mismatches during chronic transfusion therapy for sickle cell anemiaexternal icon
Yee MEM, Josephson CD, Winkler AM, Webb J, Luban NLC, Leong T, Stowell SR, Fasano RM. Transfusion. 2017 Nov;57(11):2738-2746. doi: 10.1111/trf.14282.
The accuracy of hospital ICD-9-CM codes for determining Sickle Cell Disease genotypeexternal icon
Snyder AB, Lane PA, Zhou M, Paulukonis ST, Hulihan MM. J Rare Dis Res Treat. 2017;2(4):39-45.
Emergency Department Utilization by Californians with Sickle Cell Disease, 2005-2014external icon
Paulukonis ST, Feuchtbaum L, Coates TD, Neumayr LD, Treadwell MJ, Vichinsky EP, Hulihan MM. Pediatric Blood & Cancer. 2016 Dec 21. Published online ahead of print.
Community engagement to inform the development of a sickle cell counselor training and certification program in Ghanaexternal icon
Anie KA, Treadwell MJ, Grant AM, Dennis-Antwi JA, Asafo MK, Lamptey ME, Ojodu J, Yusuf C, Otaigbe A, Ohene-Frempong K. J Community Genet. 2016 Jul;7(3):195-202. doi: 10.1007/s12687-016-0267-3.
Emergency Department Visits and Inpatient Admissions Associated with Priapism among Males with Sickle Cell Disease in the United States, 2006-2010external icon
Dupervil B, Grosse S, Burnett A, Parker C. PLoS One. 2016 Apr 14;11(4):e0153257. doi: 10.1371/journal.pone.0153257.
Defining Sickle Cell Disease Mortality Using a Population-Based Surveillance System, 2004 through 2008external icon
Paulukonis ST, Eckman JR, Snyder AB, Hagar W, Feuchtbaum LB, Zhou M, Grant AM, Hulihan MM. Public Health Rep. 2016 Mar-Apr;131(2):367-75.
Observed and expected frequencies of structural hemoglobin variants in newborn screening surveys in Africa and the Middle East: deviations from Hardy-Weinberg equilibriumexternal icon
Piel FB, Adamkiewicz TV, Amendah D, Williams TN, Gupta S, Grosse SD. Genet Med. 2016 Mar;18(3):265-74. doi: 10.1038/gim.2015.143.
Contribution of Sickle Cell Disease to the Pediatric Stroke Burden Among Hospital Discharges of African-Americans-United States, 1997-2012external icon
Baker C, Grant AM, George MG, Grosse SD, Adamkiewicz TV. Pediatr Blood Cancer. 2015 Dec;62(12):2076-81. doi: 10.1002/pbc.25655.
Mortality of New York children with sickle cell disease identified through newborn screeningexternal icon
Wang Y, Liu G, Caggana M, Kennedy J, Zimmerman R, Oyeku SO, Werner EM, Grant AM, Green NS, Grosse SD. Genet Med. 2015 Jun;17(6):452-9. doi: 10.1038/gim.2014.123.
Health policy for sickle cell disease in Africa: experience from Tanzania on interventions to reduce under-five mortalityexternal icon
Makani J, Soka D, Rwezaula S, Krag M, Mghamba J, Ramaiya K, Cox SE, Grosse SD. Trop Med Int Health. 2015 Feb;20(2):184-7. doi: 10.1111/tmi.12428.
State-based surveillance for selected hemoglobinopathiesexternal icon
Hulihan MM, Feuchtbaum L, Jordan L, Kirby RS, Snyder A, Young W, Greene Y, Telfair J, Wang Y, Cramer W, Werner EM, Kenney K, Creary M, Grant AM. Genet Med. 2015 Feb;17(2):125-30. doi: 10.1038/gim.2014.81.
Attitudes toward Management of Sickle Cell Disease and Its Complications: A National Survey of Academic Family Physiciansexternal icon
Mainous AG 3rd, Tanner RJ, Harle CA, Baker R, Shokar NK, Hulihan MM. Anemia. 2015;2015:853835. doi: 10.1155/2015/853835.
Population based surveillance in sickle cell disease: methods, findings and implications from the California registry and surveillance system in hemoglobinopathies project (RuSH). Pediatr Blood Cancerexternal icon
Paulukonis ST, Harris WT, Coates TD, Neumayr L, Treadwell M, Vichinsky E, Feuchtbaum LB. 2014 Dec;61(12):2271-6. doi: 10.1002/pbc.25208.
Incidence of sickle cell trait–United States, 2010external icon
Ojodu J, Hulihan MM, Pope SN, Grant AM; Centers for Disease Control and Prevention (CDC). MMWR Morb Mortal Wkly Rep. 2014 Dec 12;63(49):1155-8.
Obstetrician-gynecologists’ knowledge of sickle cell disease screening and managementexternal icon
Azonobi IC, Anderson BL, Byams VR, Grant AM, Schulkin J. BMC Pregnancy Childbirth. 2014 Oct 14;14:356. doi: 10.1186/1471-2393-14-356.
Discordance between self-report and genetic confirmation of sickle cell disease status in African-American adultsexternal icon
Bean CJ, Hooper WC, Ellingsen D, DeBaun MR, Sonderman J, Blot WJ. Public Health Genomics. 2014;17(3):169-72. doi: 10.1159/000360260.
Invasive pneumococcal disease among children with and without sickle cell disease in the United States, 1998 to 2009external icon
Payne AB, Link-Gelles R, Azonobi I, Hooper WC, Beall BW, Jorgensen JH, Juni B, Moore M; Active Bacterial Core Surveillance Team. Pediatr Infect Dis J. 2013 Dec;32(12):1308-12. doi: 10.1097/INF.0b013e3182a11808.
Acute chest syndrome is associated with single nucleotide polymorphism-defined beta globin cluster haplotype in children with sickle cell anaemiaexternal icon
Bean CJ, Boulet SL, Yang G, Payne AB, Ghaji N, Pyle ME, Hooper WC, Bhatnagar P, Keefer J, Barron-Casella EA, Casella JF, Debaun MR. Br J Haematol. 2013 Oct;163(2):268-76. doi: 10.1111/bjh.12507.
Hydroxyurea is associated with lower costs of care of young children with sickle cell anemiaexternal icon
Wang WC, Oyeku SO, Luo Z, Boulet SL, Miller ST, Casella JF, Fish B, Thompson BW, Grosse SD; BABY HUG Investigators. Pediatrics. 2013 Oct;132(4):677-83. doi: 10.1542/peds.2013-0333.
Sickle cell disease incidence among newborns in New York State by maternal race/ethnicity and nativityexternal icon
Wang Y, Kennedy J, Caggana M, Zimmerman R, Thomas S, Berninger J, Harris K, Green NS, Oyeku S, Hulihan M, Grant AM, Grosse SD. Genet Med. 2013 Mar;15(3):222-8. doi: 10.1038/gim.2012.128.
Sickle cell disease in pregnancy: maternal complications in a Medicaid-enrolled populationexternal icon
Boulet SL, Okoroh EM, Azonobi I, Grant A, Craig Hooper W. Matern Child Health J. 2013 Feb;17(2):200-7. doi: 10.1007/s10995-012-1216-3.