Information for Partners
To help increase education, awareness, and research about sickle cell disease (SCD), we partner with many organizations, professionals, and other individuals in these efforts.
National Heart, Lung and Blood Institute
CDC joined forces with the National Heart, Lung and Blood Institute to develop a registry and surveillance system for hemoglobinopathies, called RuSH. The two agencies are working collaboratively to ensure successful implementation of the program.
Interagency Federal Partners Group
A group of agencies within the U.S. Department of Health and Human Services (National Institutes of Health, Health Resources and Services Administration, Centers for Medicare and Medicaid Services, Agency for Healthcare Research and Quality, Food and Drug Administration, Centers for Disease Control and Prevention) aims to improve hemoglobinopathies research and care delivery. Strategic coordination will set a standard for working together to benefit all people with hemoglobinopathies. This group of agencies will collaborate to ensure that programmatic and research activities are coordinated and will work to identify opportunities for dramatic improvements in the quality of care and lives of patients.
CDC has free fact sheets that you can view, download, and print, including tips for living well, how to prevent infections, and when to see the doctor.
Sickle Cell Awareness Month
Every September community organizations, families, and others join together to spread the word about SCD.
For educational materials to display during Sickle Cell Awareness Month or information on activities in your area, visit the Sickle Cell Disease Association of America (SCDAA).
There are a lot of ways to help raise awareness about this important public health issue. Following are some ideas to get started:
Add a Button or Badge to Your Site
CDC has created a button and badge to promote action and awareness of SCD. You can help get the word out by posting them to your website, blog, or social networking site (e.g., MySpace, Facebook).
Link Your Website to Ours
A great way to help people in your community learn more about sickle cell disease is to link our Website to yours. We have developed a “website linking kit” that provides a description, graphic, and Web address to help you put a link on your site.
Linking Graphic and Description:
An estimated 70,000 to 100,000 people in the U.S. have sickle cell disease. Learn more about this disease, including tips for healthy living.
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External Partners Group at the National Center on Birth Defects and Developmental Disabilities
The External Partners Group is a coalition of government and private sector organizations who work together to enhance the mission and activities of the National Center on Birth Defects and Developmental Disabilities. If you would like to become a partner and receive the newsletter, email updates, and other information, please visit the External Partners Group website.
- Page last reviewed: August 31, 2016
- Page last updated: September 14, 2015
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