Links to Other Websites

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American Academy of Family Physicians
Tips for preventing a sickle cell crisis

American College of Emergency Physician’s SCD Coalition
Information about emergency care for people with SCD

American Sickle Cell Anemia Association
Information and support groups

American Society of Hematology’s SCD Initiative
SCD education, research, and policy resources

Children’s Hospital of Philadelphia Sickle Cell Center
Sickle cell school outreach tools and educational resources

Clinical Trials
Up-to-date information on sickle cell disease clinical research trials

Foundation for Women and Girls with Blood Disorders
The mission of the Foundation for Women and Girls with Blood Disorders is to ensure that all women and adolescent girls with blood disorders are correctly diagnosed and optimally treated and managed at every stage of life.

Gene Therapy Education Materials for the Sickle Cell Disease Community
In partnership with organizations, physicians, patients, and other experts, the National Human Genome Research Institute developed resources to help people living with SCD and their families learn more about gene therapy for SCD.

National Heart, Lung and Blood Institute
Sickle cell information, tips for healthy living, and resources

Sickle Cell Adult Providers Network
A network for healthcare providers who serve adults with sickle cell disease

Sickle Cell Disease Association of America
Information, news, research, and resources

Sickle Cell Information Center
Information about SCD; resources for patients, families, and health care providers; research; clinical trials; news; and books

Sickle Cell Reproductive Education Directive (SC RED)
Resources on reproductive health care for individuals living with all types of sickle cell disease

Society for Hospital Medicine
SCD resources for hospitalists