Fact Sheets

Basic Information

Fact Sheet: Sickle Cell Disease [PDF – 1 MB] | French [PDF – 228 KB] | Spanish [PDF – 360 KB]
What you should know about sickle cell disease.

Living Well with Sickle Cell Disease

Do You Use The Emergency Department For Care Of Sickle Cell Disease? [PDF – 247 KB] | French [PDF – 498 KB] | Spanish [PDF – 688 KB]
What to Know Before You Go

3 Tips About Sickle Cell Disease Every Emergency Provider Needs To Know [PDF – 335 KB]
Treat pain of patients with SCD promptly.

Toolkit for Living Well with Sickle Cell Disease [PDF – 4 MB]
The toolkit is a collection of materials that can be used to help people living with sickle cell disease (SCD) to manage their health and keep track of important information regarding medical care and treatment.

Living Well With Sickle Cell Disease [PDF – 2 MB] | French [PDF – 2 MB] | Spanish [PDF – 290 KB]
People with sickle cell disease can live full lives and enjoy most of the activities that other people do. The following tips will help you, or someone you know with sickle cell disease, stay as healthy as possible.

Five Tips to Help Prevent Infection [PDF – 2 MB] | French [PDF – 2 MB] | Spanish [PDF – 324 KB]
Common illnesses, like the flu, can quickly become dangerous for a person with sickle cell disease. The best defense is to take simple steps to help prevent infections.

Emergency Guide: When to See the Doctor [PDF – 2 MB] | French [PDF – 2 MB] | Spanish [PDF – 275 KB]
It is very important that every person or family with a child with sickle cell disease has a plan for how to get help immediately, at any hour, if there’s a problem.

Fact Sheet: Sickle Cell Disease and College [PDF – 637 KB]
Nine steps to living well with sickle cell disease in college.

Sickle Cell Trait

Fact Sheet: Sickle Cell Trait [PDF – 236 KB] | French [PDF – 168 KB] | Spanish [PDF – 295 KB]
What you should know about sickle cell trait.

Fact Sheet: Get Screened to Know Your Sickle Cell Status [PDF – 997 KB] | French [PDF – 234 KB] | Spanish [PDF – 924 KB]
Learn why and how to get screened for sickle cell trait.

Sickle Cell Trait Toolkit
CDC, together with the American Society of Hematology (ASH) (http://www.hematology.org/) and the Sickle Cell Disease Association of America (SCDAA) (http://www.sicklecelldisease.org/), created the Sickle Cell Trait Toolkit. The toolkit is a collection of resources to increase understanding of sickle cell trait.

Pregnancy

Fact Sheet: Sickle Cell and Pregnancy [PDF – 1 MB] | French [PDF – 243 KB] | Spanish [PDF – 974 KB]
What you should know about sickle cell disease and pregnancy.

Supporting Students

Supporting Students with Sickle Cell Disease [PDF – 969 KB]
The purpose of this booklet is to inform people about sickle cell disease and describe the roles that teachers, school staff and parents/caregivers play in supporting students living with this condition.

 State Data

State-specific data on sickle cell disease:

Sickle Cell Disease in California [PDF – 425 KB]

Sickle Cell Disease in California (for Providers) [PDF – 516 KB]

Sickle Cell Disease in Georgia [PDF – 1 MB]

Sickle Cell Disease in Georgia (for Providers) [PDF – 1 MB]

Sickle Cell Disease in Michigan [PDF – 321 KB]

Sickle Cell Disease in North Carolina [PDF – 468 KB]

Sickle Cell Disease in North Carolina (for Providers) [PDF – 474 KB]

Sickle Cell Disease in New York [PDF – 420 KB]

Sickle Cell Disease in New York (for Providers) [PDF – 451 KB]

Best Practices

Hemoglobinopathies: Current Practices for Screening, Confirmation and Follow-up [PDF – 4 MB]
Best practices for hemoglobinopathy newborn screening and diagnostic testing.

Resources

Sickle Cell Disease National Resource Directory
A compilation of national agencies, state-based health providers, and community-based organizations that provide services and resources for individuals and families affected by sickle cell disease.