Fact Sheets on Sickle Cell Disease
3 Tips About Sickle Cell Disease Every Emergency Provider Needs To Know
Treat pain of patients with SCD promptly.
Download in: English
Toolkit for Living Well with Sickle Cell Disease
The toolkit is a collection of materials that can be used to help people living with sickle cell disease (SCD) to manage their health and keep track of important information regarding medical care and treatment.
Download in: English
Living Well With Sickle Cell Disease
People with sickle cell disease can live full lives and enjoy most of the activities that other people do. The following tips will help you, or someone you know with sickle cell disease, stay as healthy as possible.
Five Tips to Help Prevent Infection
Common illnesses, like the flu, can quickly become dangerous for a person with sickle cell disease. The best defense is to take simple steps to help prevent infections.
Emergency Guide: When to See the Doctor
It is very important that every person or family with a child with sickle cell disease has a plan for how to get help immediately, at any hour, if there’s a problem.
Fact Sheet: Sickle Cell Disease and College
Nine steps to living well with sickle cell disease in college.
Download in: English
Women with Sickle Cell Disease and Preconception Care
What to know before getting pregnant
Download in: English [500 KB, 3 Pages, 508]
Women with Sickle Cell Disease and Prenatal Care
What to know during pregnancy
Download in: English [986 KB, 4 Pages, 508]
Women with Sickle Cell Disease and Postpartum Care
What to know after delivering your baby
Download in: English [711 KB, 3 Pages, 508]
Sickle Cell Trait Toolkit
CDC, together with the American Society of Hematology (ASH) (http://www.hematology.org/) and the Sickle Cell Disease Association of America (SCDAA) (http://www.sicklecelldisease.org/), created the Sickle Cell Trait Toolkit. The toolkit is a collection of resources to increase understanding of sickle cell trait.
Supporting Students with Sickle Cell Disease
The purpose of this booklet is to inform people about sickle cell disease and describe the roles that teachers, school staff and parents/caregivers play in supporting students living with this condition.
State-specific data on sickle cell disease:
Sickle Cell Disease in California [PDF – 425 KB]
Sickle Cell Disease in California (for Providers) [PDF – 516 KB]
Sickle Cell Disease in Georgia [PDF – 1 MB]
Sickle Cell Disease in Georgia (for Providers) [PDF – 1 MB]
Sickle Cell Disease in Michigan [PDF – 321 KB]
Sickle Cell Disease in North Carolina [PDF – 468 KB]
Sickle Cell Disease in North Carolina (for Providers) [PDF – 474 KB]
Sickle Cell Disease in New York [PDF – 420 KB]
Sickle Cell Disease in New York (for Providers) [PDF – 451 KB]
Hemoglobinopathies: Current Practices for Screening, Confirmation and Follow-up
Best practices for hemoglobinopathy newborn screening and diagnostic testing.
