Fact Sheets on Sickle Cell Disease
Fact Sheet: Sickle Cell Disease
What you should know about sickle cell disease.
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Do You Use The Emergency Department For Care Of Sickle Cell Disease?
What to Know Before You Go
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3 Tips About Sickle Cell Disease Every Emergency Provider Needs To Know
Treat pain of patients with SCD promptly.
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Toolkit for Living Well with Sickle Cell Disease
The toolkit is a collection of materials that can be used to help people living with sickle cell disease (SCD) to manage their health and keep track of important information regarding medical care and treatment.
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Living Well With Sickle Cell Disease
People with sickle cell disease can live full lives and enjoy most of the activities that other people do. The following tips will help you, or someone you know with sickle cell disease, stay as healthy as possible.
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Five Tips to Help Prevent Infection
Common illnesses, like the flu, can quickly become dangerous for a person with sickle cell disease. The best defense is to take simple steps to help prevent infections.
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Emergency Guide: When to See the Doctor
It is very important that every person or family with a child with sickle cell disease has a plan for how to get help immediately, at any hour, if there’s a problem.
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Fact Sheet: Sickle Cell Disease and College
Nine steps to living well with sickle cell disease in college.
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Fact Sheet: Sickle Cell Trait
What you should know about sickle cell trait.
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Fact Sheet: Get Screened to Know Your Sickle Cell Status
Learn why and how to get screened for sickle cell trait.
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Sickle Cell Trait Toolkit
CDC, together with the American Society of Hematology (ASH) (http://www.hematology.org/external icon) and the Sickle Cell Disease Association of America (SCDAA) (http://www.sicklecelldisease.org/external icon), created the Sickle Cell Trait Toolkit. The toolkit is a collection of resources to increase understanding of sickle cell trait.
Fact Sheet: Sickle Cell and Pregnancy
What you should know about sickle cell disease and pregnancy.
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Supporting Students with Sickle Cell Disease
The purpose of this booklet is to inform people about sickle cell disease and describe the roles that teachers, school staff and parents/caregivers play in supporting students living with this condition.
State-specific data on sickle cell disease:
Sickle Cell Disease in California pdf icon[PDF – 425 KB]
Sickle Cell Disease in California (for Providers) pdf icon[PDF – 516 KB]
Sickle Cell Disease in Georgia pdf icon[PDF – 1 MB]
Sickle Cell Disease in Georgia (for Providers) pdf icon[PDF – 1 MB]
Sickle Cell Disease in Michigan pdf icon[PDF – 321 KB]
Sickle Cell Disease in North Carolina pdf icon[PDF – 468 KB]
Sickle Cell Disease in North Carolina (for Providers) pdf icon[PDF – 474 KB]
Sickle Cell Disease in New York pdf icon[PDF – 420 KB]
Sickle Cell Disease in New York (for Providers) pdf icon[PDF – 451 KB]
Hemoglobinopathies: Current Practices for Screening, Confirmation and Follow-up
Best practices for hemoglobinopathy newborn screening and diagnostic testing.
Sickle Cell Disease National Resource Directory
A compilation of national agencies, state-based health providers, and community-based organizations that provide services and resources for individuals and families affected by sickle cell disease.
