Real Stories from People Living with VWD

When Jennifer was diagnosed with hemophilia and VWD, there weren’t many resources for girls. Now she’s sharing her story to raise awareness.

Brandon

Read Brandon’s story to learn about the positive impact that having a bleeding disorder has had on his life.

Janine and Daniela

Janine and Daniela have both experienced challenges with treating their bleeding disorders. Despite their challenges, they find joy and resilience in giving back to their community.

Brandee Cookston

Brandee Cookston, a 34-year-old woman, learned she had von Willebrand disease (VWD) type 3 at age 12, after experiencing extremely heavy periods.

Brooke Connell

For Brooke Connell, von Willebrand disease (VWD) is a family affair. At 6 months old, Brooke was diagnosed with the most severe form of VWD: type 3.

If you would like to share your personal story, please contact us at Contact CDC-INFO

Page last reviewed: April 13, 2022

Content source: National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention