Articles about Von Willebrand Disease (VWD)
Higher Rates of Bleeding and Use of Treatment Products Found Among Young Boys Compared to Girls with VWD
(Published: March 24, 2021)
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(Published: March 1, 2022)
Occurrence rates of inherited bleeding disorders other than haemophilia and von Willebrand disease among people receiving care in specialized treatment centres in the United States.
Haemophilia 2022;28(3): e75-e78. https://doi.org/10.1111/hae.14529
Miller CH, Soucie MJ, Byams VR, Payne AB, Abe K, Lewandowska M, Shapiro AD
Characteristics, complications, and sites of bleeding among infants and toddlers less than 2 years of age with VWD.
Blood Advances 2021;5(8): 2079-2086. https://doi.org/10.1182/bloodadvances.2020004141
Dupervil B, Abe K, O’Brien SH, Oakley M, Kulkarni R, Thornburg CD, Byams VR, Soucie JM.
Occurrence rates of von Willebrand disease among people receiving care in specialized treatment centers in the United States.
Haemophilia 2021; https://doi.org/10.1111/hae.14263 [ePub ahead of print]
Soucie JM, Miller CH, Byams, VB, Payne AB, Abe K, Sidonio RF Jr, Kouides PA.
Higher rates of bleeding and use of treatment products among young boys compared to girls with von Willebrand disease.
Am J Hematol 2020;95(1):10–17. https://doi.org/10.1002/ajh.25656
Abe K, Dupervil B, O’Brien SH, Oakley M, Kulkarni R, Gill JC, Byams V, Soucie MJ.
Differences in bleeding phenotype and provider interventions in postmenarchal adolescents when compared to adult women with bleeding disorders and heavy menstrual bleeding.
Haemophilia 2018;24(1):63-69. https://doi.org/10.1111/hae.13330
Srivaths LV, Zhang QC, Byams VR, Dietrich JE, James AH, Kouides PA, Kulkarni R; Hemophilia Treatment Centers Network Investigators.
These CDC scientific articles are listed in order of date published, from present to 2001.
The link will take you to a short summary of the article. The full article is available to subscribers of the publication’s service.
Evaluation of von Willebrand factor phenotypes and genotypes in Hemophilia A patients with and without identified F8 mutations.
J Thromb Haemost 2015;13(6):1036-1042. https://doi.org/10.1111/jth.12902
Boylan B, Rice AS, De Staercke C, Eyster ME, Yaish HM, Knoll CM, Bean CJ, Miller CH; Hemophilia Inhibitor Research Study Investigators.
High factor VIII, von Willebrand factor, and fibrinogen levels and risk of venous thromboembolism in blacks and whites.
Ethn Dis 2014;24(2):169-174.
Payne AB, Miller CH, Hooper WC, Lally C, Austin HD.
Similarity in joint function limitation in Type 3 von Willebrand’s disease and moderate haemophilia A.
Haemophilia 2013;19(4):595–601. https://doi.org/10.1111/hae.12119
Sood SL, Cuker A, Wang C, Metjian AD, Chiang EY, Soucie JM, Konkle BA; Hemophilia Treatment Centers Network Investigators.
Surveillance of female patients with inherited bleeding disorders in United States Haemophilia Treatment Centres.
Haemophilia 2011;17(Suppl. 1):6–13. https://doi.org/10.1111/j.1365-2516.2011.02558.x
Byams VR, Kouides PA, Kulkarni R, Baker JR, Brown DL, Gill JC, Grant AM, James AH, Konkle BA, Maahs J, Dumas MM, McAlister S, Nance D, Nugent D, Philipp CS, Soucie JM, Stang E; Hemophilia Treatment Centers Network Investigators.
The spectrum of haemostatic characteristics of women with unexplained menorrhagia.
Haemophilia 2011;17(1):e223-229. https://doi.org/10.1111/j.1365-2516.2010.02382.x
Miller CH, Philipp CS, Stein SF, Kouides PA, Lukes AS, Heit JA, Byams VR, Dowling NF, Kulkarni R.
Multisite management study of menorrhagia with abnormal laboratory hemostasis: a prospective crossover study of intranasal desmopressin and oral tranexamic acid.
Br J of Haematol 2009;145(2):212-220. https://doi.org/10.1111/j.1365-2141.2009.07610.x
Kouides P, Byams VR, Phillip CS, Stein SF, Heit JA, Lukes AS, Skerette NI, Dowling NF, Evatt BL, Miller CH, Owens S, Kulkarni R.
Bleeding symptoms and laboratory correlation in patients with severe von Willebrand disease.
Haemophilia 2009;15(4):918–925. https://doi.org/10.1111/j.1365-2516.2009.02025.x
Metjian AD, Wang C, Sood SL, Cuker A, Peterson SM, Soucie JM, Konkle BA, Hemophilia Treatment Centers Network Investigators.
Screening women with menorrhagia for underlying bleeding disorders: The utility of the platelet function analyzer and bleeding time.
Haemophilia 2005:11(5):497-503. https://doi.org/10.1111/j.1365-2516.2005.01129.x
Philipp CS, Miller CH, Faiz A, Dilley A, Michaels LA, Ayers C, Bachmann G, Dowling N, Saidi P.
Age and the prevalence of bleeding disorders in women with menorrhagia.
Obstet Gynecol 2005;105(1):61-66. https://doi.org/10.1097/01.AOG.0000148889.15061.fb
Philipp CS, Faiz A, Dowling N, Dilley A, Michaels LA, Ayers C, Miller CH, Bachmann G, Evatt B, Saidi P.
Trends in clinical management of women with von Willebrand disease: A survey of 75 women enrolled in haemophilia treatment centres in the United States.
Haemophilia 2004;10(2):158-161. https://doi.org/10.1046/j.1351-8216.2003.00832.x
Kirtava A, Crudder S, Dilley A, Lally C, Evatt B.
Measurement of von Willebrand factor activity: Relative effects of ABO blood type and race.
J Thromb Haemost 2003;1(10):2191-2197. https://doi.org/10.1046/j.1538-7836.2003.00367.x
Miller CH, Haff E, Platt SJ, Rawlins P, Drews CD, Dilley AB, and Evatt B.
Medical, reproductive and psychosocial experiences of women diagnosed with von Willebrand’s disease receiving care in haemophilia treatment centres: A case-control study.
Haemophilia 2003;9(3):292-297. https://doi.org/10.1046/j.1365-2516.2003.00756.x
Kirtava A, Drews C, Lally C, Dilley A, Evatt B.
Screening questions to identify women with von Willebrand disease.
J Am Med Womens Assoc 2002;57(4):217-218.
Drews CD, Dilley AB, Lally C, Beckman MG, Evatt B.
Changes in von Willebrand Factor and factor VIII levels during the menstrual cycle.
Thromb and Haemost 2002;87(6):1082-1083.
Miller CH, Dilley AB, Drews CD, Richardson L, Evatt B.
Population differences in von Willebrand factor levels affect the diagnosis of von Willebrand disease in African-American women.
Am J Hematol 2001;67(2):125-129. https://doi.org/10.1002/ajh.1090
Miller CH, Dilley A, Richardson L, Hooper WC, Evatt B.
Von Willebrand disease and other inherited bleeding disorders in women with diagnosed menorrhagia.
Obstet Gynecol 2001;97(4):630-636. https://doi.org/10.1016/s0029-7844(00)01224-2
Dilley A, Drews C, Miller CH, Lally C, Austin H, Ramaswamy D, Lurye D, Evatt B.
Search a database of articles that have been published by CDC authors within the National Center on Birth Defects and Developmental Disabilities from 1990 to present.