Links to Other Von Willebrand disease (VWD) Resources
American Congress of Obstetricians and Gynecologists
The Committee on Adolescent Health Care of the American Congress of Obstetricians and Gynecologists released a Committee Opinion on von Willebrand disease in women. This opinion focuses the attention of healthcare providers on the important issues of increasing proper diagnosis and care of von Willebrand disease in women.
Blood the Vital Connection (American Society of Hematology)
The American Society of Hematology (ASH) is the world’s largest professional society concerned with the causes and treatments of blood disorders. ASH provides hematologist-approved information on von Willebrand disease.
Canadian Hemophilia Society
The Canadian Hemophilia Society provides information and educational materials on bleeding disorders such as von Willebrand disease.
Foundation for Women and Girls with Blood Disorders
The Foundation is dedicated to achieving correct diagnosis and treatment of blood disorders and accompanying reproductive problems in women and girls with von Willebrand Disease (VWD), other factor deficiencies, thrombophilias, sickle cell disease (SCD), hemoglobinopathies, immune thrombocytopenic purpura (ITP) and anemias.
Health Resources and Services Administration
The Health Resources and Services Administration (HRSA) provides information on the increase of women treated for bleeding disorders at hemophilia treatment centers from 1991 through 2007.
Hemophilia Federation of America
Hemophilia Federation of America assists and advocates for the bleeding disorders community. They provide community-based programs including a wide range of adult outreach, as well as broad-based support for families.
Hemophilia of Georgia
Hemophilia of Georgia has a new, easy-to-read resource guide covering von Willebrand disease and other platelet disorders. The resource guide provides up-to-date information on testing, treating and preventing bleeding, comprehensive care, genetics, financial topics, and others.
National Hemophilia Foundation
The National Hemophilia Foundation (NHF) provides information for people affected by von Willebrand disease as well as for healthcare providers and researchers. A free, confidential information resource center called HANDI, can answer questions, make referrals, provide literature on VWD. HANDI also maintains an extensive library collection on VWD disease and other bleeding disorders. Information includes fact sheets, care guides, discussion groups, locations of local chapters, and more. CDC is a partner in the National Hemophilia Foundation’s public awareness campaign, Victory For Women with Blood Disorders, to help women recognize the symptoms of bleeding disorders.
National Institutes of Health
The National Institutes of Health provides guidelines on diagnosing, evaluating, and treating von Willebrand disease.