Table 2 - Health System Registries

Purpose

Data from this table can be used to compare program impact and outcomes with those of other states and the nation.

Health system registries

Resource name Purpose Heart disease/stroke prevention topics addressed Sampling frame Data ownership/
primary contact organization
Cost Methodology Start date Frequency
Cardiac Arrest Registry to Enhance Survival Assist communities, measure performance, and identify how to improve cardiac arrest survival rates
  • Patient demographics and the details of cardiac events
  • System quality and treatment information
  • Emergency room and hospital outcomes
Not applicable Each participating hospital has access to its data and only its data. No cost
  • Uses Health Insurance Portability and Accountability Act (HIPAA)–compliant methodology to protect confidentiality
  • Allows for longitudinal, internal benchmarking of key performance indicators
2004 Continuously
Get With the Guidelines
  • Heart failure: Promote consistent adherence to the latest scientific treatment guidelines and monitor the quality of heart failure care in the United States
  • Atrial fibrillation: Assist hospital care teams in consistently providing the latest evidence-based treatment for their atrial fibrillation patients
  • Monitor the quality of atrial fibrillation care in U.S. hospitals and build a database for continued research and further quality improvement
  • COVID-19 CVD registry: Monitor patient clinical characteristics, medications, treatments, labs, vitals, biomarkers, and outcomes in adult patients hospitalized with COVID-19
  • Collect hospital COVID-19 cardiac data to assist quality improvement
  • Provide performance comparisons with other hospitals regarding resuscitation
  • Reduce non-compliance and medical errors through data-driven peer review
  • Provide access to the most up-to-date research and scientific publications
  • Stroke: Promote quality improvements in stroke care
  • Serve as an in-hospital program for improving stroke care by promoting consistent adherence to the latest scientific treatment guidelines
  • Heart failure and stroke achievement measures, quality measures, reporting measures, and descriptive measures
  • Hospital arrival and admission information, medications, labs, and discharge information
  • Cardiovascular and hospital outcomes
Not applicable American Heart Association (AHA, in partnership with American Stroke Association) Cost associated with the data Data submitted by health system, American Heart Association’s patient management tool 1999 Continuously
National Cardiovascular Data Registry The National Cardiovascular Data Registry (NDCR) displays the American College of Cardiology’s (ACC) suite of cardiovascular data registries helping hospitals and private practices measure and improve the quality of care they provide
  • Data on health outcomes and chronic conditions, including coronary artery disease, hypertension, heart failure, and atrial fibrillation
  • Practice, provider, and patient characteristics
  • Program metrics endorsed by the ACC and the AHA for performance improvement
Select participation by health systems ACC Quality Improvement for Institutions Program Cost associated with the data Outpatient registries (electronic data submission) 1997 Continuously