Supporting Caregivers

An Emerging Public Health Issue
Young caregiving woman supporting and consoling older adult man.

Millions of older adults and people with disabilities could not maintain their independence without the help of unpaid caregivers. This care would cost nearly $470 billion a year if purchased. That’s one of the reasons that caregiving is an essential public health service and should be prioritized as an emerging public health issuepdf icon.1

Caregivers are family members or friends who typically provide unpaid, long-term, community-based care and assistance to older adults and people with chronic health conditions or disabilities.  Caregivers help with a variety of routine tasks such as shopping, paying bills, bathing, dressing, and managing medicines.  They are often a source of emotional support and companionship for care recipients.

Caregivers: A Snapshot

Increasing Demand for Caregivers

The need for caregivers is growing along with the aging of the US population. The number of caregivers increased from 43.5 million in 2015 to about 53 million in 2020, or more than 1 in 5 Americans.3 By 2030, an estimated 73 million people in the United States will be 65 years or older.4 Many will require daily assistance from at least one caregiver to maintain quality of life, independence, and physical and social well-being. More than two-thirds of the US population will likely need help with tasks at some point in their lifetime.5

Benefits of Caregiving for Recipients and Caregivers

Caregiving allows recipients to:

  • Retain their quality of life and independence.
  • Avoid living in a group setting (institutionalization).
  • Have less depression.
  • Self-manage their chronic conditions better.

Caregiving can also benefit caregivers by helping them:

  • Increase their self-confidence and fulfillment from helping others.
  • Start or add to social networks of friendships associated with caregiving.
  • Feel needed and useful.
  • Learn and develop new skills.

Caregiving Burdens and Stress

Adult woman sitting in chair appearing stressed or has a headache.

Caregiving is also a public health concern because it can lead to physical, emotional, psychological, and financial strain.  Providing personal care and helping with behavioral and cognitive issues can be stressful for caregivers and result in depression and anxiety. Nearly 1 in 5 caregivers reports fair or poor health.6 Caregivers often neglect their own health needs, increasing their risk of having multiple chronic conditions. Nearly 2 in 5 caregivers have at least two chronic diseases:

 

  • 1 in 7 caregivers has heart disease and/or stroke.
  • 1 in 5 caregivers aged 65 and older have coronary heart disease and/or stroke.

A recent study by the National Alliance for Caregiving and AARP found nearly 1 in 4 US caregivers says caregiving has made their health worse.3

Financial Strains of Caregiving

Caregiving can have a negative financial effect on caregivers. Many employed caregivers have had to leave work early or take time away from work, resulting in lost wages. Nearly 2 in 10 employed caregivers had to stop working, while 4 in 10 had to reduce their working hours to care for a loved one.7 Caregivers sometimes pay out-of-pocket for caregiving services, meals, medical supplies, and other expenses. Almost 80% of caregivers report paying out-of-pocket for routine expenses for care recipients. The average annual out-of-pocket cost for caregivers is $7,200, and this cost rises to nearly $9,000 per year for caregivers of someone with dementia. 8

How to Support Caregivers?

  • Help them with errands, chores, and other tasks.
  • Provide emotional and social support.
  • Negotiate times to check in on them.
  • Make sure they are managing their own health care needs.
  • Help them create and manage a care plan for the person they care for.
  • Encourage them to seek mental health services if necessary.

If you are a caregiver, read about respite care.

Citations
  1. Reinhard SC, Feinberg LF, Houser A, Choula R, Evans M. Valuing the Invaluable: 2019 Update. AARP Public Policy Institute; 2019. Accessed October 27, 2021. https://www.aarp.org/content/dam/aarp/ppi/2019/11/valuing-the-invaluable-2019-update-charting-a-path-forward.doi.10.26419-2Fppi.00082.001.pdfpdf iconexternal icon
  2. National Alliance for Caregiving and AARP. Caregiving in the U.S. 2020: A Focused Look at Family Caregivers of Adults Age 50+. AARP; 2020. https://doi.org/10.26419/ppi.00103.022external icon
  3. AARP and National Alliance for Caregiving. Caregiving in the United States 2020. AARP; 2020. Accessed October 14, 2021. https://doi.org/10.26419/ppi.00103.001external icon
  4. Projected Age Groups and Sex Composition of the Population: Main Projections Series for the United States, 2017-2060. U.S. Census Bureau, Population Division: 2020. Accessed October 28, 2021. https://www.census.gov/data/tables/2017/demo/popproj/2017-summary-tables.htmlexternal icon
  5. RAISE Family Caregiving Advisory Council. Recognize, Assist, Include, Support, & Engage (RAISE) Family Caregivers Act: Initial Report to Congress. Administration for Community Living; 2021. Accessed October 18, 2021. https://acl.gov/sites/default/files/RAISE-InitialReportToCongress2021_Final.pdfpdf iconexternal icon
  6. Edwards VJ, Bouldin ED, Taylor CA, Olivari BS, McGuire LC. Characteristics and health status of informal unpaid caregivers—44 states, District of Columbia, and Puerto Rico, 2015–2017. MMWR Morb Mortal Wkly Rep. 2020; 69:183–188. https://doi.org/10.15585/mmwr.mm6907a2external icon
  7. Rosalynn Carter Institute for Caregivers. Working While Caring: A National Survey of Caregiving Stress in the U.S Workforce. Accessed October 15, 2021. https://www.rosalynncarter.org/wp-content/uploads/2021/09/210140-RCI-National-Surveys-Executive-Summary-Update-9.22.21.pdfpdf iconexternal icon
  8. Skufca L, Rainville C. Caregiving Out-of-Pocket Costs Study 2021. AARP Research, 2021. Accessed October 28, 2021. https://doi.org/10.26419/res.00473.001external icon