Data Hosting: United States Cancer Statistics
The United States Cancer Statistics (USCS) are the official federal statistics on cancer, providing cancer information on the entire U.S. population. They combine cancer registry data from CDC’s National Program of Cancer Registries (NPCR) and the National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program. The restricted access USCS dataset provides researchers access to cancer incidence and population data for all 50 states, the District of Columbia, and Puerto Rico.
USCS Data Documentation
Comparative Effectiveness Research (CER) Data
In response to the need for data to support comparative effectiveness research (CER), or patient-centered outcomes research, the Agency for Healthcare Research and Quality (AHRQ) and CDC’s National Program of Cancer Registries (NPCR) developed a special data collection enhancement project to help answer specific CER questions through the development of analytic datasets. This cancer specific CER dataset includes unique detailed treatment and biomarker data for 2011 breast, colon, and rectal cancers as well as chronic myeloid leukemia cases collected from ten geographically diverse registries.
CER Data and Documentation
Location of Access:
Your request for access to restricted-use data is captured within the RDC proposal. In the proposal, please thoroughly explain your research need for access to restricted-use variables, your analytic plan, how you intend to report your results, and the exact output you need for your near final product (e.g., paper, journal article or presentation). All sections of the proposal must be filled-out and clearly stated. Submit your proposal as one document to firstname.lastname@example.org.
Proposal amendments, including changes to the research team or minor adjustments to research questions or output, require an updated proposal and full review by Review Committee. Revisions in the proposal must be highlighted; please do not use track changes.
The standard RDC fees are waived for these data because NPCR has contributed funds to cover them. Please indicate “not applicable – NPCR” on the Funding line in the proposal format.
Confidentiality and Disclosure
After the proposal is approved, all members of the research team are required to complete the Confidentiality Training. Please submit your Confidentiality Training certificate and signed, notarized non-disclosure affidavit to your RDC Analyst along with the Data Use Agreement. For more information, see: Confidentiality and Disclosure
Review Output for Disclosure Risk
All output submitted for a disclosure review must be the near final product and it must match the output described in your approved proposal. We will not review frequency distributions or other large volumes of output. For more information, see: Output Policies and Procedures (hyperlink to https://www.cdc.gov/rdc/b1datatype/rdc-Output.htm)