Summary of NCHS Surveys and Data Collection Systems
- Summary of Current Surveys and Data Collection Systems pdf icon[PDF – 258 KB]
- Summary of Discontinued Surveys and Data Collection Systems pdf icon[PDF – 210 KB]
Summary of Current Surveys and Data Collection Systems National Center for Health Statistics, 2020
Name
Vital Records |
Data Source & Methods | Selected Data Items | Targeted Sample Size | Disparity Variables and data collection | Frequency | FY 2020-2021 plans | ||
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National Vital Statistics | •State vital registration •Births •Deaths •Fetal deaths •Linked Birth/Infant Death Program |
•Birth and death rates •Birthweight •Teen and nonmarital births •Pregnancy outcomes •Method of delivery •Preterm delivery/gestational age •Multiple births •Medicaid payment •WIC receipt •Prenatal care •Breastfeeding •Maternal weight and Body Mass Index •Infant mortality •Life expectancy •Causes of death, including fetal causes •Occupational mortality |
All births: About 4 million records annually All deaths: About 2.7 million records annually •Reported fetal deaths of 20 or more weeks gestation: About 26,000 annually •Counts of marriages and divorces |
For births, deaths, and fetal deaths:
For births and deaths:
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National Death Index |
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•Continue ongoing operations •Continue to improve timeliness of data availability for matching •Update NDI website •Expand outreach to health and medical research community •Pilot new funding model to improve and expand use of NDI for NIH funded projects |
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•Continue ongoing operations •Continue to improve timeliness of data availability for matching •Update NDI website •Expand outreach to health and medical research community •Pilot new funding model to improve and expand use of NDI for NIH funded projects |
State registration areas–death certificates | •Facilitates epidemiological follow-up studies from 1979–2019 •Verifies death for study participants for health and medical research purposes only •Optional release of coded causes of death available to users upon request •NCHS surveys can be linked to NDI |
All deaths | Semi-annual |
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National Health and Nutrition Examination Survey |
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National Survey of Family Growth |
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Name | Data Source & Methods | Selected Data Items | Targeted Sample Size | Disparity Variables | Frequency | FY 2014-2015 Plans |
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National Vital Statistics System |
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National Death Index (NDI) |
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Name | Data Source & Methods | Selected Data Items | Targeted Sample Size | Disparity Variables | Frequency | FY 2014-2015 Plans |
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National Ambulatory Medical Care Survey |
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National Electronic Health Records Survey (formerly National Ambulatory Medical Care Survey – Electronic Health Records) |
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National Ambulatory Medical Care Survey-Physician Workflow Survey |
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National Hospital Ambulatory Medical Care Survey |
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National Hospital Care Survey (replaced the National Hospital Discharge Survey, last conducted in 2010) |
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National Study of Long-Term Care Providers (replaced the National Nursing Home Survey, National Home and Hospice Care Survey, and National Survey of Residential Care Facilities) |
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Name | Data Source & Methods | Selected Data Items | Targeted Sample Size | Disparity Variables | Frequency | FY 2014-2015 Plans |
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State and Local Area Integrated Telephone Survey
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** OMB categories include white, black or African-American, Asian, Native Hawaiian and other Pacific Islanders, American Indian or Alaska Native. Hispanic origin is asked as a separate question.
Summary of Discontinued Surveys and Data Collection Systems National Center for Health Statistics, 2020
Aging
Supplement on Aging (SOA) 1984
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SOA was conducted as a supplement to the 1984 National Health Interview Survey. The study included participants aged 55 years and over to characterize the health and social status of the group, and to provide information on how psychosocial and environmental factors interact with health factors to influence the aging population. https://www.cdc.gov/nchs/lsoa/soa1.htm
Longitudinal Study of Aging (LSOA) 1984-1990
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SOA served as the baseline for LSOA, a prospective study with a nationally representative sample of persons aged 70 years and over at the time of their 1984 SOA interview. LSOA followed the cohort of older persons through three follow-up interviews conducted in 1986, 1988, and 1990. https://www.cdc.gov/nchs/lsoa/lsoa1.htm
Second Supplement on Aging (SOA II) 1994-1996
- SOA II replicated the first SOA roughly 10 years later with a new cohort of persons 70 years of age and older to determine whether there were changes in the level of disability among older persons between 1984 and the mid-1990s. https://www.cdc.gov/nchs/lsoa/soa2.htm
Second Longitudinal Study of Aging (LSOA II) 1994-1996
- LSOA II, a prospective study with a nationally representative sample from the SOA II, followed a cohort of older persons through two follow-up interviews, conducted in 1997-1998 and 1999-2000, to determine whether there had been changes in disability and impairment among older persons between the 1980s and 1990s. https://www.cdc.gov/nchs/lsoa/soa2.htm
Disability
National Health Interview Survey on Disability (NHIS-D) 1994-1995
- NHIS-D was conducted to meet overlapping data needs of four DHHS offices to provide a useful set of measures while maintaining a balance between the social, administrative, and medical considerations involved in disability measurement. The NHIS-D was not limited to one definition of disability; therefore, it allowed analysts from varying programs to combine data items in different ways to meet specific agency or program needs. https://www.cdc.gov/nchs/nhis/nhis_disability.htm
National Health and Nutrition Examination Survey
National Hispanic Health and Nutrition Examination Survey (HHANES) 1982-1984
- HHANES was a one-time health examination survey focused on three major subgroups of the Hispanic population – Mexican Americans in the southwest, Cubans in Miami (Dade County) Florida, and Puerto Ricans in the New York City area. Hispanics were included in past health and nutrition examinations, but not in sufficient numbers to produce estimates of the health of Hispanics in general, or specific data for subgroups. https://www.cdc.gov/nchs/nhanes/hhanes.htm
NHANES Epidemiologic Follow-up Study (NHEFS) 1982-1984; 1986, 1987, 1992
- NHEFS was designed to investigate the relationship between clinical, nutritional, and behavioral factors assessed in the first National Health and Nutrition Examination Survey (1971-1975), and subsequent morbidity, mortality, and hospital utilization, as well as changes in risk factors, functional limitation, and Institutionalization. https://www.cdc.gov/nchs/nhanes/nhefs/nhefs.htm
NHANES National Youth Fitness Survey (NNYFS) 2012
- NNYFS was conducted to collect data on physical activity and fitness levels in U.S. children aged 3-15. The survey provided an evaluation of their health and fitness levels through interviews and fitness tests. https://www.cdc.gov/nchs/nnyfs.htm
Provider Surveys
National Hospital Discharge Survey (NHDS) 1965-2008
- NHDS was a national probability survey designed to meet the need for information on characteristics of inpatients discharged from non-Federal short-stay hospitals in the United States. https://www.cdc.gov/nchs/nhds.htm
National Nursing Home Survey (NNHS) 1973-74, 1977, 1985, 1995, 1997, 1999 and 2004
- NNHS was a continuing series of national sample surveys of nursing homes, their residents, and staff. Although each of these surveys emphasized different topics, they all provided some common basic information about nursing homes, their residents, and staff. All nursing homes included in this survey had at least three beds and were either certified (by Medicare or Medicaid) or had a state license to operate as a nursing home. https://www.cdc.gov/nchs/nnhs.htm
National Health Provider Inventory (NHPI) 1991
- NHPI is a comprehensive national listing of health care facilities, including nursing homes, home health agencies, hospices, and licensed residential care facilities. Data in the inventory include information on the services, location, staff, and other characteristics of the facilities and provides a sampling frame of facilities for other health care provider surveys.
National Home and Hospice Care Survey (NHHCS) 1992-1994, 1996, 1998, 2000, and 2007
- The 2007 NHHCS was one in a continuing series of nationally representative sample surveys of U.S. home health and hospice agencies. It was designed to provide descriptive information on home health and hospice agencies, their staffs, services, and patients. https://www.cdc.gov/nchs/nhhcs.htm
National Survey of Ambulatory Surgery (NSAS) 1994-1996; 2006
- NSAS provided the only national data on ambulatory surgical care in hospital-based and freestanding ambulatory surgery centers. Efforts are now underway to include ambulatory surgery centers in the National Hospital Ambulatory Medical Care Survey. https://www.cdc.gov/nchs/nsas.htm
National Nursing Assistant Survey (NNAS) 2004
- NNAS was the first national study of nursing assistants working in nursing facilities in the U.S. The survey looked at the important role of nursing assistance in providing long-term care services for the growing elderly and chronically ill population, and provided new information needed to recruit, retain, and expand the paraprofessional long-term care workforce. https://www.cdc.gov/nchs/nnas.htm
National Home Health Aide Survey (NHHAS) 2007
- NHHAS was the first national probability survey of home health aides, designed to provide national estimates of home health aides employed by agencies that provide home health and/or hospice care. The survey was conducted as a supplement to the 2007 National Home and Hospice Care Survey. https://www.cdc.gov/nchs/nhhas.htm
National Survey of Residential Care Facilities (NSRCF) 2010
- NSRCF was a first time national data collection effort to gather information about the characteristics of residential care facilities, including assisted living residences, board and care homes, congregate care, enriched housing programs, homes for the aged, personal care homes, and shared housing establishments. https://www.cdc.gov/nchs/nsrcf.htm
Vital Records
National Maternal and Infant Health Survey (NMIHS) 1988; 1991
- NMIHS collected data needed by federal, state, and private researchers to study factors related to poor pregnancy outcomes, including low birthweight, stillbirth, infant illness, and infant death. The survey expanded on information available for birth, fetal death, and infant death vital records and was the first national survey that included data on the three pregnancy outcomes simultaneously. A longitudinal follow-up study was conducted in 1991 to obtain additional information about respondents from the 1988 survey. https://www.cdc.gov/nchs/nvss/nmihs.htm
National Mortality Follow-back Survey (NMFS) 1993
- NMFS was conducted using a sample of U.S. residents who died in a given year to supplement the death certificate with information from a person familiar with the decedent’s life history. The information, sometimes enhanced by administrative records, provided a unique opportunity to study the etiology of disease, demographic trends in mortality, and other health issues. https://www.cdc.gov/nchs/nvss/nmfs.htm
Population Survey
National Employer Health Insurance Survey (NEHIS) 1994
- NEHIS was the first federally sponsored survey designed to produce state estimates of employer-sponsored health insurance. The objective was to measure state and national levels of health insurance spending by employers, to provide baseline data at the state and national levels for monitoring trends in the employment-based health insurance system, and to provide data for prospective policy analysis of the effects of health care reform. https://www.cdc.gov/nchs/data/misc/employ2.pdf
National Health Interview Survey (NHIS)—Native Hawaiian and Pacific Islander Survey (NPHI NHIS), 2014
- The NPHI NHIS conducted in 2014 was patterned after the NHIS and surveyed about 3,000 households containing one or more NHPI residents. The survey
provided an opportunity to collect information on health status and conditions, disability, access to and use of health services, health insurance coverage,
immunizations, risk factors, and health-related behaviors from a large NHPI sample in all 50 states. https://www.cdc.gov/nchs/nhis/nhpi.html
State and Local Area Integrated Telephone Survey (SLAITS)
National Survey of Early Childhood Health (NSECH), 2000
- NSECH focused on the delivery of pediatric care to families with children under age 3 years and the promotion of young children’s health by families
in their homes. https://www.cdc.gov/nchs/slaits/nsech.htm
National Survey of Children with Special Health Care Needs (CSHCN), 2001, 2005–2006, and 2009–2010
- CSHCN assessed the prevalence and impact of special health care needs among children in the United States, and to evaluate change over time. The survey explored the extent to which children with special health care needs had medical homes, adequate health insurance, assess to needed services, and adequate care coordination. https://www.cdc.gov/nchs/slaits/cshcn.htm
State and Local Area Integrated Telephone Survey
National Survey of Early Childhood Health (NSECH) 2000
- NSECH survey focused on the delivery of pediatric care to families with children under 3 years of age and the promotion of young children’s health by families in their homes.
National Survey of Children with Special Health Care Needs (CSHCN) 2001, 2005-2006, 2009-2010
- CSHCN survey assessed the prevalence and impact of special health care needs among children in the U.S., and to evaluate change over time. The survey explored the extent to which children with special health care needs had medical homes, adequate health insurance, assess to needed services, and adequate care coordination.
National Asthma Survey (NAS) 2003
- NAS examined the health, socioeconomic, behavioral, and environmental predictors that relate to better control of asthma. The study explored the content of care and health care expenditures of persons with asthma.
National Survey of Children’s Health (NSCH) 2003, 2007, 2011-2012
- NSCH examined the physical and emotional health of children 0-17 years of age. Special emphasis was placed on factors that may relate to well-being of children, including medical homes, family interactions, parental health, school and after-school experiences, and safe neighborhoods.
Survey of Adult Transition and Health (SATH) 2007
- The NSATH was a nationwide survey looking at the health of young people who were 19 to 23 years old in 2007, whose parents were originally interviewed in 2001 in a previous SLAITS health survey when the subjects were 14 to 17 years old. The goal of the follow-up survey was to examine their current health care needs and transition from pediatric health care providers to adult health care providers.
National Survey of Adoptive Parents (NSAP) 2007
- The NSAP provided nationally representative estimates on the characteristics, pre-adoption experiences, and post-adoption support experiences of families of adopted children aged 0 to 17. These children were identified in other SLAITS surveys as being adopted through the U.S. foster care system, domestic private adoption agencies, or international adoption. .
National Survey of Adoptive Parents of Children with Special Health Care Needs (NSAPSN) 2008
- The NSAPSN survey focused on the delivery of pediatric care to families with children under 3 years of age and the promotion of young children’s health by families in their homes.
Survey of Pathways to Diagnosis and Services (SPDS) 2011
- The Pathways Survey was a nationally representative survey about children with special health care needs aged 6–17 years who were ever diagnosed with autism spectrum
disorder, intellectual disability, or developmental delay. Parents and guardians were asked about the emergence of symptoms, the context of the original diagnoses, the providers
who made the diagnoses, the child’s current diagnostic status, the types of clinical treatments/interventions and educational services used to address the developmental problems,
and other parental concerns or perspectives. https://www.cdc.gov/nchs/slaits/spds.htm
National Survey of Children in Non-Parental Care (NSCNC) 2013
- NSCNC provided nationally representative estimates on the characteristics, living arrangements, and service accessibility of non-institutionalized children who were living apart from their parents in the United States. Children in non-parental care were identified in the 2011-2012 National Survey of Children’s Health.
National Survey of the Diagnosis and Treatment of ADHD and Tourette Syndrome (NS-DATA) 2014
- NS-DATA assessed the diagnostic experiences as well as the service and treatment utilization of families raising children between 6 and 17 with Attention-Deficit/Hyperactivity Disorder and/or with Tourette Syndrome in the United States. The survey examined, among other items, the individuals involved in the diagnostic assessment, current medication and treatment, and school functioning and performance.