DHDD Newsletter - July 2020
A Note from the DHDD Director:
Dear colleagues –
I hope you are all doing well. I was recently deployed to assist the White Mountain Apache Tribe in Arizona where I supported testing, assisted with reviewing and writing guidance, performed needs assessments in select communities and strategized how the tribe can support their most vulnerable tribal members. There is much to be done, and I am grateful to have the opportunity to be a part.
This month, CDC and DHDD have celebrated the 30th Anniversary of the Americans with Disabilities Act (ADA) and in the newsletter, you’ll see some of the resources we have developed in recognition of this important event. We are grateful to you, our partners, for all the work you do to ensure that the goals of the ADA become a reality for so many people with disabilities.
Take care and stay well,
In the Spotlight
30th Anniversary of the Americans with Disabilities Act
July 26th marks the 30th anniversary of the Americans with Disabilities Act (ADA). The ADA is a civil rights law that prohibits discrimination against people with disabilities across many aspects of society such as employment, education, transportation, and housing. In recognition of this important milestone, please view CDC’s commemorative message from Dr. Redfield along with a video montageexternal icon, a CDC Feature in both English and Spanish, social media posts and a podcast.
Also, CDC Healthy Schools released a new research brief on inclusion in physical education and physical activity that defines inclusion, identifies relevant federal policies, describes the current status of inclusion in US schools and school districts, and suggests 6 actions state leaders can take to promote inclusion.
CDC continues to strive toward achieving the intent of the ADA as a critical piece of civil rights legislation to ensure people with disabilities receive essential healthcare services and programs, enjoy a high quality of life, experience independence in their communities, and reach their full potential.
Newly Funded Early Hearing Detection and Intervention (EHDI) programs
CDC recently awarded new funding to 38 states and 1 territory to advance efforts to identify all infants with hearing loss early by optimizing each jurisdiction’s current EHDI Information Systems and expanding their ability to report, analyze, and use patient-level data. DHDD is excited about this innovative four-year award called “Improving Timely Documentation, Reporting, and Analysis of Diagnostic and Intervention Data through Optimization of EHDI Surveillance Practices and Information Systems.”
ASL videos – Learn the Signs, Act Early
DHDD’s Learn the Signs. Act Early. program developed a videoexternal icon that provides information in American Sign Language (ASL) on what to do if you have concerns about your child’s development. Learn the Signs. Act Early. reminds parents to speak with their child’s doctor, share their concerns and ask about developmental screening and services that may help. It’s important not to wait. Acting early can make a real difference! Please share this link widely!
Fragile X Syndrome: Learning What Families Need, One Person at a Time
On July 22nd , Fragile X syndrome (FXS) awareness day, CDC joined other researchers in presenting new research findings from the Fragile X Online Registry With Accessible Research Database (FORWARDexternal icon) in the National Fragile X Foundation’s Research Roundupexternal icon.
FORWARD is a large source of clinical and demographic information on people with Fragile X syndrome in the United States. FORWARD data can be used to
- better understand the many unanswered questions about FXS, and
- develop and deliver interventions that improve the health and quality of life of people with FXS, their families, and their caregivers.
SEED Forecast Announcement (CDC-RFA-DD-21-001)
On September 3, 2020, CDC will publish a new Notice of Funding Opportunity (NOFO), CDC-RFA-DD-21-001, Study to Explore Early Development (SEED) Follow-up Studies. CDC plans to fund up to 6 recipients to participate in epidemiological follow-up studies of children previously enrolled in SEED. This project will add knowledge about autism spectrum disorder (ASD), including risk factors for ASD and the expression of ASD, from childhood through early adulthood, and information that can be used to improve the health and functioning of individuals with ASD as they mature.
The application period opens September 3, 2020 and closes November 10, 2020.
A Qualitative Evaluation of Parenting to Support Early Development among Spanish-speaking Legacy for Children™ Participants
Researchers from DHDD’s Child Development and Disability Branch along with colleagues at Oklahoma University Health Sciences Center and Oklahoma State University published a studyexternal icon in the Journal of Child and Family Studies looking at how Legacy for ChildrenTM – a group-based parenting intervention that has been culturally adapted for Spanish-speaking mothers (Legacy Spanish) – informed parenting knowledge and practices related to early development.
To explore their experiences with Legacy Spanish, researchers conducted focus groups with 14 Legacy Spanish participants (Spanish-speaking Latina mothers from low-income households with children aged 21–31 months).
- described gaining new knowledge about parenting and child development from Legacy Spanish and
- attributed positive changes in their parenting and self-efficacy to the program.
Findings from this study demonstrate that a culturally adapted parenting intervention has the potential to support nurturing parent-child relationships among low-income Spanish-speaking Latino families.
DHDD’S mission is to lead inclusive programs to optimize the health and development of children and adults with, or at risk for, disabilities.