Building Capacity for Inclusion of People with Disabilities in Preparedness Planning and Response

In 2020, CDC funded the Association of State and Territorial Health Officials (ASTHOexternal icon) and the National Association of County and City Health Officials (NACCHOexternal icon) through a project titled Addressing Needs of People with Disabilities in COVID-19 Preparedness Planning, Mitigation, and Recovery Efforts in U.S. State, Territorial, City, and County Health Jurisdictions.

The purpose of this project is to ensure the inclusion of people with disabilities in state, territorial, and local health department preparedness and response efforts by embedding disability specialists, who serve as subject matter experts, in public health emergency preparedness planning and response programs. Disability specialists are embedded in 28 state, territorial, and local health departments across the United States and are working to assess, plan, implement, and evaluate disability inclusion efforts within these agencies.

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Assess

Disability specialists conducted baseline needs assessments to understand how state, territorial, and local health departments are addressing the needs of people with disabilities in their preparedness planning, mitigation, and recovery efforts. The assessment included a gap analysis to identify areas of improvement in COVID-19 response activities and partnerships with state and local organizations that serve people with disabilities.

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Plan

Using information collected from the baseline needs assessments, disability specialists developed individualized program implementation, evaluation, and sustainability plans to meet the needs of the health departments. Additionally, they identified promising practices from COVID-19 response efforts and other past emergency responses to develop recommendations for quality improvement in preparedness planning

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Implement

Disability specialists are working to update local emergency response plans to better serve the needs of people with disabilities during emergencies. They are also working to better engage with people with disabilities in their jurisdiction and to develop partnerships with local disability organizations. Disability specialists participate in monthly learning community calls, which provide an opportunity to engage with other specialists as peers and share best practices and lessons learned throughout the project period.

Additional activities disability specialists are engaged in include holding listening sessions with disability organizations and making recommendations to solve issues within the context of the local response; engaging and coordinating with Federal Emergency Management Agency (FEMA) regional disability integration specialists and other FEMA staff for disability service organizations to determine local needs; and collaborating with federal partners, community-based organizations, disability advocates, community members, local government, nonprofit agencies, and other relevant entities to coordinate efforts at the local level.

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Evaluate

ASTHO and NACCHO, in collaboration with CDC, developed an evaluation framework for the project. The framework includes process and outcome measures and a mixed-methods approach for data collection from health departments and disability specialists. Disability specialists are working with ASTHO and NACCHO to develop and implement individualized (at the health department level) evaluation plans in line with the overall evaluation framework.

Participating State, Territorial, and Local Health Agencies (as of February 2022)

Hex map figure showing Participating State, Territorial, and Local Health Agencies (as of February 2022) - see data table below.

Participating State, Territorial, and Local Health Agencies (as of February 2022) – Table
State Participation Status Local Agency Participating
Alabama Participating
Alaska Previously participated*
American Samoa Not participating
Arizona Participating Pima County
Arkansas Not participating
California Not participating
Colorado Not participating
Connecticut Not participating
Delaware Not participating
District Of Columbia Participating
Florida Not participating
Georgia Participating
Guam Participating
Hawaii Not participating
Idaho Not participating
Illinois Not participating
Indiana Not participating
Iowa Participating
Kansas Not participating
Kentucky Not participating
Louisiana Participating New Orleans
Maine Not participating
Marshall Islands Not participating
Maryland Not participating
Massachusetts Not participating
Michigan Participating Kent County
Micronesia Not participating
Minnesota Not participating
Mississippi Participating
Missouri Participating
Montana Not participating
Nebraska Not participating
Nevada Not participating
New Hampshire Not participating
New Jersey Not participating
New Mexico Participating
New York Not participating
North Carolina Not participating
North Dakota Not participating
Northern Marianas Not participating
Ohio Participating
Oklahoma Not participating
Oregon Local agency participating Marion County
Palau Not participating
Pennsylvania Local agency participating Philadelphia
Puerto Rico Participating
Rhode Island Participating
South Carolina Participating
South Dakota Previously participated*
Tennessee Participating
Texas Local agency participating Williamson County
Utah Local agency participating Utah County
Vermont Not participating
Virgin Islands Not participating
Virginia Local agency participating Three Rivers Health District
Washington Local agency participating Seattle & King County; Kittitas County
West Virginia Not participating
Wisconsin Not participating
Wyoming Participating

*Previously participated but do not currently have disability specialists embedded.