DHDD Newsletter – March 2019

This time of year usually brings lots of travel and partner meetings for us at DHDD. I am encouraged by the relationships we have fostered so far, and am looking forward to upcoming meetings to continue to grow with our partners. And hopefully spring weather is right around the corner!

– Dr. Georgina Peacock, Director, DHDD
dhdddirector@cdc.gov

Rare Disease Day 2019

On the last day of February every year, the world celebrates Rare Disease Day to raise awareness about rare diseases and the impact they have on patients’ lives. Many rare diseases do not have a cure and may go undiagnosed, so it is important for health care professionals and policy makers to understand the needs of individuals living with rare diseases. Click on the links below to check out the rare diseases that DHDD studies, and our work towards giving individuals with rare diseases better health and brighter futures:

• Fragile X Syndrome
• Muscular Dystrophy
• Spina Bifida

Check out some of our Rare Disorders and Health Outcomes team members at DHDD supporting the #ShowYourRare for Rare Disease Day!

2018 Annual Disability Statistics Compendium

DHDD scientist, Dr. Catherine Okoro, attended the 2018 Annual Disability Statistics Compendium event at the National Academy of Sciences in February. She attended the intellectual and developmental disabilities data panel while at the Compendium, and also presented the latest data activity updates from the Disability and Health program on the “Latest on Federal Data Collection” panel. Click here to see her presentation, or check out some of these updates by clicking the links below:

• Disability Prevalence and Health Care Access
• Updated: Disability and Health Data System

ADHD Publications

Want to learn more about what CDC is doing to support children with attention-deficit/hyperactivity disorder (ADHD)? Check out DHDD’s latest ADHD publications:

• Look at treatment patterns and costs among children with ADHD in NY state Medicaid. Read the summary here.
• Learn about what predicts the receipt of school services in a sample of children with ADHD across the country. Read the summary here.

Visit our website if you are interested in seeing DHDD’s ADHD-related articles!