Use of Healthcare Services and Absenteeism

Among the 3,161 participants in the Registry, 94% (n = 2,974) received care at a primary HTC location, 8% (n= 246) received care at an HTC outreach clinic, and 1% (n=34) received care at an HTC telemedicine session or clinic (Table 5A).

Table 5A: Healthcare utilization: location of HTC care among the Registry participants, 2014

Healthcare utilization: location of HTC care among the Registry participants, 2014
Location of HTC Care N = 3161* (%)
HTC  Primary Location 2974 (94)
HTC  Outreach Clinic 246 (8)
HTC Telemedicine Session or Telemedicine Clinic 34 (1)

In 2014, the mean number of days missed from school or work due to the bleeding disorder was approximately three days (range 0-220 days) among the 59% (n=1863) of the Registry participants eligible for this question (Table 5B).  The mean number of emergency room (ER) visits was two (range 1-30); 23.4% (n=741) of the Registry participants reported ER visits in the last 12 months. The mean number of inpatient admissions due to the bleeding disorder was 1.6 (range 1-20) with an approximate mean stay of seven days (range 1-90) in the hospital once admitted.

Table 5B: Use of healthcare services and absenteeism: hospitalizations, ER visits, and days missed from school or work among the Registry participants, 2014

Use of healthcare services and absenteeism: hospitalizations, ER visits, and days missed from school or work among the Registry participants, 2014
No. of patients
providing information
No. of
days/nights/visits
Mean Median Range
Days missed school or work due to bleeding disorder 1863 5566 2.99 0 0–220
ER visits due to bleeding disorder 741 1509 2.04 1 1–30
Inpatient admissions due to bleeding disorder 359 577 1.61 1 1–20
Nights as inpatient due to bleeding disorder 337 2339 6.94 3 1–90