Data Visualization Frequency Asked Questions (FAQs)

What will I be able to do with the new visualization tool? How can it help me?

The new Community Counts data visualization tool displays de-identified data on patients with bleeding disorders who are enrolled in Community Counts in a new interactive, visual format.

The tool can be used to:

  • Access real-time data
  • Identify the number of participants in Community Counts by bleeding disorder
  • Discover facts such as the proportion of people with a bleeding disorder
  • Break down specific relationships (for example, von Willebrand Disease by age)
  • Share new insights and findings

Who can use this new tool?

This new tool can be used by anyone. Clinicians, patients, and policymakers may use this tool to:

  • Assess characteristics of patients with bleeding disorders.
  • View demographics of patients with bleeding disorders.
  • Understand the burden of bleeding disorders in the United States.

How do I use this tool?

When you access the tool, you will see the following:

  • Community Counts: Click on this tab and it will take you to a description of the surveillance program.
  • HTC Population Profile: Click on this tab and it will take you to the HTC Population Profile reports.
  • The Registry:  Click on this tab to view patient demographics and clinical characteristics. Treatment views will be available at the end of the year.

To learn how to use the tool, watch these tutorials.

What if I have technical problems while using the tool?

Please contact: