Community Counts Data Reports

Man writing on data charts.

Data Reports

The purpose of the data reports listed below is to make available the information collected through the Community Counts project to care providers and researchers in the bleeding disorders community.

The reports will summarize the following information about Community Counts participants:

  • Demographics (for example race, age, sex, insurance status)
  • Blood and factor product use
  • Bleeding events and complications
  • Inhibitor development
  • Occurrence and treatment of joint and infectious diseases
  • Diseases that occur as a result of aging, and conditions that often occur along with bleeding disorders
  • Use of health services
  • Treatment practices and patterns
  • Treatment-related complications
  • Mortality

Data reports are currently under development. Available reports are listed below.

Community Counts: The HTC Population Profile Data through September 2018
The HTC Population Profile is a set of twelve data items collected on patients with bleeding disorders or venous thromboembolism. Updated data tables describing patient characteristics from the HTC Population Profile through September 2018 are available in this report. Data tables are categorized by annual patient characteristics, factor VIII & factor IX, von Willebrand disease, rare factor deficiencies, platelet disorders and other disorders.

Community Counts: The HTC Population Profile Data through March 2018
The HTC Population Profile is a set of twelve data items collected on patients with bleeding disorders or venous thromboembolism. Updated data tables describing patient characteristics from the HTC Population Profile through March 2018 are available in this report. Data tables are categorized by annual patient characteristics, factor VIII & factor IX, von Willebrand disease, rare factor deficiencies, platelet disorders and other disorders.

2014 Community Counts Registry Report
The Division of Blood Disorders, National Center on Birth Defects and Development Disabilities, and the Centers for Disease Control and Prevention (CDC) in Atlanta, Georgia published the 2014 Community Counts Registry Report.

Community Counts: The HTC Population Profile Data through September 2017
The HTC Population Profile is a set of twelve data items collected on patients with bleeding disorders or venous thromboembolism. Updated data tables describing patient characteristics from the HTC Population Profile through September 2017 are available in this report. Data tables are categorized by annual patient characteristics, factor VIII & factor IX, von Willebrand disease, rare factor deficiencies, platelet disorders and other disorders.

Community Counts: The HTC Population Profile Data through March 31, 2017 pdf icon[PDF – 277 KB]
The HTC Population Profile is a set of twelve data items collected on patients with bleeding disorders or venous thromboembolism. Updated data tables describing patient characteristics from the HTC Population Profile through March 31st, 2017 are available in this report. Data tables are categorized by annual patient characteristics, factor VIII & factor IX, von Willebrand disease, rare factor deficiencies, platelet disorders and other disorders.

Community Counts: The HTC Population Profile Data through December 31, 2016 pdf icon[PDF – 250 KB]
The HTC Population Profile is a set of twelve data items collected on patients with bleeding disorders or venous thromboembolism. Updated data tables describing patient characteristics from the HTC Population Profile through December 31st, 2016 are available in this report. Data tables are categorized by annual patient characteristics, factor VIII & factor IX, von Willebrand disease and rare factor deficiencies.

Community Counts: The HTC Population Profile Data through September 30, 2016 pdf icon[PDF – 239 KB]
The HTC Population Profile is a set of twelve data items collected on patients with bleeding disorders or venous thromboembolism. Updated data tables describing patient characteristics from the HTC Population Profile through September 30th, 2016 are available in this report. Data tables are categorized by annual patient characteristics, factor VIII & factor IX, von Willebrand disease and rare factor deficiencies.

Community Counts: The HTC Population Profile Data through June 30, 2016 pdf icon[PDF – 244 KB]

Community Counts: The HTC Population Profile Data through March 31, 2016 pdf icon[PDF – 150 KB]

Community Counts: The HTC Population Profile Data through September 30, 2014 pdf icon[PDF – 391 KB]

Learn more about Community Counts

Browse data reports from Universal Data Collection System