Community Counts Data Reports

Man writing on data charts.

Data Reports

The purpose of the data reports listed below is to make available the information collected through the Community Counts project to care providers and researchers in the bleeding disorders community.

The reports will summarize the following information about Community Counts participants:

  • Demographics (for example race, age, sex, insurance status)
  • Blood and factor product use
  • Bleeding events and complications
  • Inhibitor development
  • Occurrence and treatment of joint and infectious diseases
  • Diseases that occur as a result of aging, and conditions that often occur along with bleeding disorders
  • Use of health services
  • Treatment practices and patterns
  • Treatment-related complications
  • Mortality

Data reports are currently under development. Available reports are listed below.

Registry for Bleeding Disorders Surveillance

Registry Report on Males with Hemophilia 2014-2017

Registry Report 2014

HTC Population Profile

The HTC Population Profile is a set of twelve data items collected on patients with bleeding disorders or venous thromboembolism. Data tables are categorized by annual patient characteristics, factor VIII & factor IX, von Willebrand disease, rare factor deficiencies, and, beginning with the March 31, 2017 report, platelet disorders and other disorders.

Community Counts: The HTC Population Profile Data through March 2022
Updated data tables describing patient characteristics from the HTC Population Profile through March 2022 are available in this report.

Past Reports

Community Counts: The HTC Population Profile Data through September 2021

Community Counts: The HTC Population Profile Data through March 2021

Community Counts: The HTC Population Profile Data through September 2020

Community Counts: The HTC Population Profile Data through March 2020

Community Counts: The HTC Population Profile Data through September 2019

Community Counts: The HTC Population Profile Data through March 2019

Community Counts: The HTC Population Profile Data through September 2018

Community Counts: The HTC Population Profile Data through March 2018

Community Counts: The HTC Population Profile Data through September 2017

Community Counts: The HTC Population Profile Data through March 31, 2017 [PDF – 277 KB]

Community Counts: The HTC Population Profile Data through December 31, 2016 [PDF – 250 KB]

Community Counts: The HTC Population Profile Data through September 30, 2016 [PDF – 239 KB]

Community Counts: The HTC Population Profile Data through June 30, 2016 [PDF – 244 KB]

Community Counts: The HTC Population Profile Data through March 31, 2016 [PDF – 150 KB]

Community Counts: The HTC Population Profile Data through September 30, 2014 [PDF – 391 KB]

More Information

Learn more about Community Counts

Browse data reports from Universal Data Collection System