Newborn Screening (NBS) Data, Wisconsin, 2016–2020
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The Sickle Cell Data Collection (SCDC) program monitors and reports on the health of people with sickle cell disease (SCD) over time. Data from the state’s newborn screening (NBS) program are an important part of the SCDC program because they provide information about the SCD births that occur every year. Wisconsin’s most recent NBS data, 2016–2020, are presented below.
The data provide the number of babies born with SCD in the state, their demographics, and their type of SCD. The people included in these data were born in Wisconsin during 2016–2020 and reported by the state NBS program with a confirmed diagnosis of SCD.
The individuals in the NBS data are also included in the Wisconsin SCDC program data for the years during which they were living in the state.
Map 1: About 14% of the counties in Wisconsin had at least one SCD birth during 2016–2020. Almost 75% of the SCD births in Wisconsin occurred in Milwaukee County.
Figure 1. There was an average of 23 SCD births per year in Wisconsin during 2016–2020.
Figure 2: There was a total of 117 SCD births in Wisconsin during 2016–2020. There were 61 male births (52%) and 56 female births (48%).
*NOTE: The sum of all categories may be less than the total number of births if there are individuals with missing data.
Fifty-eight percent of the SCD births in Wisconsin during 2016–2020 were babies with hemoglobin (Hb) S/S or S/β0 thalassemia, 25% were Hb S/C, and 5% were Hb S/β+ thalassemia. The remaining babies had other or unknown types of SCD.
*NOTE: The sum of all categories may not total to 100% due to rounding errors.
