SCDC Materials and Multimedia

Fact Sheets

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CDC’s Sickle Cell Data Collection (SCDC) Program

The Centers for Disease Control and Prevention (CDC) estimates that sickle cell disease (SCD) affects more than 100,000 people in the United States, but the exact number of people with SCD is unknown. CDC’s Sickle Cell Data Collection (SCDC) program gathers health information from multiple sources to determine how many people live with the disease in a particular state.

Understanding Sickle Cell Disease

The Sickle Cell Data Collection (SCDC) program collects information about people with SCD to help communities, healthcare providers, policy makers, researchers, and federal, state, and local health agencies better understand who has SCD, what their healthcare needs are, and what barriers prevent them from receiving all their needed healthcare services. These data are used to target and develop strategies to improve access to the healthcare system and, ultimately, to improve health for people with SCD.

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Do you use the emergency department for care of sickle cell disease?pdf icon

What to know before you go. Children and adults with sickle cell disease (SCD) often require care in the emergency department (ED) of hospitals or clinics for health issues related to SCD. The ED may be your only option for health care when symptoms, such as pain crises, cannot be managed at home or when you do not have access to a healthcare provider who specializes in treating SCD.

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3 Tips about sickle cell diseasepdf icon

Every emergency provider needs to know. Children and adults with sickle cell disease (SCD) often require care in the emergency department (ED) of hospitals and clinics for health issues related to SCD. The ED may be a patient’s only option for health care when symptoms, such as pain crises, cannot be managed at home or when a patient does not have access to a healthcare provider who specializes in treating SCD.

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CDC’s Sickle Cell Disease Surveillance History

The Centers for Disease Control and Prevention (CDC) and participating states began sickle cell disease (SCD) surveillance (monitoring) in 2010. SCD surveillance involves collecting information on diagnoses, treatment, and healthcare access for people with SCD in the United States. CDC and participating states developed many educational materials based on this information.


Reports

Sickle Cell Data Collection Program Report - Data To Action

Sickle Cell Data Collection Program Report: Data to Action Introduction

The Sickle Cell Data Collection (SCDC) program gathers health data from multiple sources to determine how many people live with sickle cell disease (SCD) in the United States and to learn about their use of healthcare services and health outcomes over time. The SCDC program shares this information with audiences who can drive improvements in SCD health care, treatment, and policy.


Webinars

An older gentleman

The SCDC program in CaliforniaExternalexternal icon hosts quarterly webinars presented by experts who share the latest about sickle cell disease. The webinars are free and open to the public. Join the email listExternalexternal icon to receive announcements about upcoming webinars.

Tune in to recordings of previous webinars.