Understanding Health Literacy
Health Literacy Affects Everyone
Health literacy is important for everyone because, at some point in our lives, we all need to be able to find, understand, and use health information and services.
Taking care of our health is part of everyday life, not just when we visit a doctor, clinic, or hospital. Health literacy can help us prevent health problems, protect our health, and better manage health problems when they arise.
Even people who read well and are comfortable using numbers can face health literacy issues when
- They aren’t familiar with medical terms or how their bodies work.
- They have to interpret statistics and evaluate risks and benefits that affect their health and safety.
- They are diagnosed with a serious illness and are scared and confused.
- They have health conditions that require complicated self-care.
- They are voting on an issue affecting the community’s health and relying on unfamiliar technical information.
When organizations or people create and give others health information that is too difficult for them to understand, we create a health literacy problem. When we expect them to figure out health services with many unfamiliar, confusing or even conflicting steps, we also create a health literacy problem.
We can help people use the health literacy skills they have. How? We can do the following:
- Create and provide information and services people can understand and use most effectively with the skills they have. See Develop and Test Materials.
- Work with educators and others to help people become more familiar with health information and services and build their health literacy skills over time. See Collaborate.
- Build our own skills as communicators of health information. See Find Training for free, online options.
- Build health-literate organizations. See the following:
- Conduct community health literacy assessments or include them in community health assessments. See Community Health Literacy Assessment: A Systematic Frameworkexternal icon and The Value of Community Health Literacy Assessmentsexternal icon.
Several reports document that limited health literacy affects many types of health conditions, diseases, situations, and outcomes, including health status and costs.
- Improving Health Literacy Could Prevent Nearly 1 Million Hospital Visits and Save Over $25 Billion a Yearpdf iconexternal icon and methodology and citationspdf iconexternal icon (UnitedHealth Group 2020)
- A Health Literacy Report: Analysis of 2016 BRFSS Health Literacy Datapdf icon (Centers for Disease Control and Prevention 2018)
- Health Literacy Interventions and Outcomes: An Updated Systematic Reviewexternal icon (Agency for Healthcare Research and Quality 2011)
- National Action Plan to Improve Health Literacyexternal icon (U.S. Department of Health and Human Services 2010)
- Surgeon General’s Workshop on Improving Health Literacyexternal icon (U.S. Department of Health and Human Services 2006)
- Health Literacy: A Prescription to End Confusionexternal icon (Institute of Medicine 2004)
In 2006, the U.S. Department of Education published the only national data on health literacy skills. The study found that adults who self-report the worst health also have the most limited literacy, numeracy, and health literacy skills. See The Health Literacy Of America’s Adults: Results from the 2003 National Assessment of Adult Literacyexternal icon.
The U.S. Department of Education subsequently published 2012/14 and 2017 results on self-reported health status of U.S. adults using data from the Program for the International Assessment of Adult Competencies (PIAAC)external icon. These results reinforce the findings of their 2006 report.
European Union countries have found similar health literacy skill issues in the European Health Literacy Surveyexternal icon (Source: Maastricht University 2012).
The following two resources are regularly updated with health literacy research:
- PubMedexternal icon (National Library of Medicine)
- Roundtable on Health Literacy commissioned papersexternal icon (National Academies of Sciences, Engineering & Medicine)
Limited health literacy and limited literacy are not the same, but they are related. Strong literacy and numeracy skills do help people understand and use health information and services, but research shows that most people still say that information and services are unfamiliar, complicated, and too technical.
Listen to health literacy leaders describe their research and practice in podcastsexternal icon (Source: Health Literacy Out Loud).