National Level Data
Below are the disease estimates for ALS at the national level in the United States. These estimates include both prevalence and incidence of ALS.
The National ALS Registry publishes estimates of prevalence (patients living with the disease) in the United States. The reports below are prevalence estimates for calendar years 2010-2018 and projections out to 2030. The Registry will publish additional years prevalence data as they become available.
The National ALS Registry publishes estimates of incidence (patients newly diagnosed with the disease) in the United States. The report below are incidence estimates for calendar years 2014-2016. The Registry will publish additional years of incidence data as they become available.
State Level Data
Below are the disease estimates for ALS at the state level for all 50 states in the US and the District of Columbia.
Mortality
The National ALS Registry publishes estimates of mortality (patients who have died from this disease) in the United States. The Registry will publish additional years of mortality data as they become available.
State and Metropolitan Surveillance Project
The National ALS Registry publishes estimates of incidence and prevalence in select states and cities in the United States. The Registry will publish additional years of data as they become available.