National Amyotrophic Lateral Sclerosis (ALS) Registry
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Amyotrophic lateral sclerosis (ALS), sometimes called Lou Gehrig’s disease, is a progressive disease that attacks the nerve cells that control voluntary movement. The National ALS Registry is a congressionally mandated registry for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes. No one knows for sure what causes ALS and currently there is no cure. If you have the disease, consider joining the Registry and completing the brief risk-factor surveys because your answers could help scientists defeat ALS. Learn more about the National ALS Registry Video Cdc-media[MP4 – 30 MB]
Log in to your account and take risk factor surveys and help researchers learn more about ALS.
Get the latest news from the Registry such as research notifications, new publications, and events.
- ALS Association Video Cdc-media[MP4 - 4 MB]
- About the National ALS Registry Cdc-media[MP4 - 24 MB]
- "Why join the Registry" - PALS testimonial
- Add ALS Registry Button to Your Website
- The National ALS Registry Photos
- CDC PHGR – National ALS Registry
- Beyond the Data -- Living with ALS
- Article ready for newspaper or online Cdc-word[DOC - 14 KB]
- Agency for Toxic Substances and Disease Registry
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