At a glance
- Learn more about the reports from the National ALS Registry Annual Meeting. The meeting shares the findings of the Registry data and its implications and to discuss strategies to further improve the Registry. Attendees include neurologists who specialize in the diagnosis and treatment of ALS, researchers, patients, members of ALS advocacy groups, the National ALS Registry staff, and others interested in ALS research.
2026 Annual Meeting
The National ALS Registry successfully hosted its 2026 Annual Meeting on August 19–20, 2026. The two-day meeting was moderated by Danielle Boyce, MPH, DPA, of Johns Hopkins University and the ALS Therapy Development Institute.
The meeting featured updates from the National ALS Registry team, partner organizations, and Registry-funded research grantees. Members of the ALS community also shared their experiences and perspectives and discussed opportunities for the Registry to better serve people affected by ALS.
More than 250 people attended the meeting over the two days. The continued growth of the meeting audience underscores the value of this annual gathering as an important forum for connection, collaboration, and dialogue between the National ALS Registry and the broader ALS community. The strong participation also reflects the community’s ongoing engagement in shaping the Registry’s work and advancing efforts to better understand and address ALS.
Selected reports
Older Reports
- 2020 ALS-Annual-Meeting-Summary-Report-Executive-Summary
- 2020 ALS-Annual-Meeting-Summary-Report
- 2019 ALS-Annual-Meeting-Summary-Report-Executive-Summary
- 2019 ALS-Annual-Meeting-Summary-Report
- 2018-ALS-Annual-Meeting-Summary-Report-Executive-Summary
- 2018 ALS Annual Meeting Summary Report
- 2017-ALS-Annual-Meeting-Summary-Report-Executive-Summary
- 2017 ALS Annual Meeting Summary Report
- 2016 ALS Annual Meeting Summary Report Executive Summary
- 2016 ALS Annual Meeting Summary Report
- 2015 ALS Annual Meeting Summary Report Executive Summary
- 2015 ALS Annual Meeting Summary Report
- 2014 ALS Annual Meeting Summary Report
- 2014 ALS Annual Meeting Summary Report Executive Summary
- 2013 ALS Annual Meeting Summary Report
- 2013 ALS Annual Meeting Summary Report Executive Summary
- 2012 ALS Annual Meeting Summary Report
- 2011 ALS Annual Meeting Summary Report
- 2010 ALS Annual Meeting Summary Report
- 2009 ALS-MS Annual Meeting Summary Report
- 2008 ALS-MS Annual Meeting Summary Report
- 2007 ALS-MS Annual Meeting Summary Report
- 2006 ALS-MS Annual Meeting Summary Report
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