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Articles & Key Findings

Highlighted Articles

Key Findings: Sociodemographic Attributes and Spina Bifida Outcomes
Sociodemographic attributes and spina bifida outcomes
(Published: April 8, 2015)

Key Findings of Health Risk Behaviors among Young Adults with Spina Bifida in Arkansas.
Health Risk Behaviors Among Young Adults with Spina Bifida
(Published: January 3, 2013)

Key Findings: Hospital Use, Associated Costs, and Payer Status for Infants Born with Spina Bifida
About 18% of babies with spina bifida had more than three hospital stays initiated in their first year of life. The presence of other birth defects seemed to influence the length of stay in the hospital and hospital costs.
(Published: November 15, 2012)

Using Data to Help Babies Born with Spina Bifida
Learn how babies born with spina bifida are being protected.
(Published: October 17, 2016)

National Spina Bifida Patient Registry
CDC reports findings from the National Spina Bifida Patient Registry. CDC is the only organization in this country conducting broad research based on information from multiple spina bifida clinics.
(Published: October 20, 2014)

Living with a Birth Defect
Read about one family’s experience with a birth defect, spina bifida.
(Published: January 15, 2013)

Spina Bifida: Nancy’s Story
Read about a nurse and mother whose son has spina bifida.
(Published: October 15, 2012)

A Randomized Trial of Prenatal versus Postnatal Repair of Myelomeningocele
The New England Journal of Medicine; 2011 March 17; 364:993-1004 Adzick NS, et al
[Read summary]

Scientific Articles

Publications * These CDC-authored scientific articles are listed in order of date published, from present to 2007.

Design and Methodological Considerations of the National Spina Bifida Patient Registry Urologic and Renal Protocol for the Newborn and Young Child
Journal of Urology 2016 Jul 27.
Routh JC, Cheng EY, Austin JC, Baum MA, Gargollo PC, Grady RW, Herron AR, Kim SS, King SJ, Koh CJ, Paramsothy P, Raman L, Schechter MS, Smith KA, Tanaka ST, Thibadeau JK, Walker WO, Wallis MC, Wiener JS, Joseph DB.
[Read full article]

Factors associated with the timeliness of postnatal surgical repair of spina bifida
Child’s Nervous System 2016 May 14.
Radcliff E, Cassell CH, Laditka SB, Thibadeau JK, Correia J, Grosse SD, Kirby RS.
[Read full article]

Retrospective assessment of cost savings from prevention: folic ccid fortification and spina bifida in the U.S.
Am Jl Prev Med. 2016 May;50 (5):S74-80.
Grosse SD, Berry RJ, Tilford JM, Kucik JE, Waitzman NJ.
[Read full article] [Read summary] [Read key findings]

US women of childbearing age who are at possible increased risk of a neural tube defect‐affected pregnancy due to suboptimal red blood cell folate concentrations, National Health and Nutrition Examination Survey 2007 to 2012.
Birth Defects Res A Clin Mol Teratol. 2015 Jun;1 03(6):517-26.
Tinker SC, Hamner HC, Qi YP, Crider KS.
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Sociodemographic attributes and spina bifida outcomes
Pediatr. 2015;135(4):e957-e964.
Schechter MS, Liu T, Soe M, Swanson M, Ward E, Thibadeau J.
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The national spina bifida patient registry: profile of a large cohort of participants from the first 10 clinics   
J Pediatr. 2015 Feb; 166(2):444-50.e1.
Sawin K, Liu T, Ward E, Thibadeau J, Schechter M, Soe M, Walker W.
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Characteristics and survival of end stage renal disease (ESRD) patients with spina bifida in the United States Renal Data System (USRDS)
J Urol. 2015 Feb; 193(2):558-64.
Ouyang L, Bolen J, Valdez R, Joseph D, Baum MA, Thibadeau J.
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Updated estimates of neural tube defects prevented by mandatory folic Acid fortification – United States, 1995-2011.
MMWR Morb Mortal Wkly Rep. 2015 Jan; 64(1):1-5
Williams J, Mai CT, Mulinare J, Isenburg J, Flood TJ, Ethen M, Frohnert B, Kirby RS.
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Supplement use and other characteristics among pregnant women with a previous pregnancy affected by a neural tube defect – United States, 1997-2009.
MMWR Morb Mortal Wkly Rep. 2015 Jan; 64(1):6-9
Arth A, Tinker S, Moore C, Canfield M, Agopian A, Reefhuis J.
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Population red blood cell folate concentrations for prevention of neural tube defects: Bayesian model.
BMJ. 2014 July; 349:g4554.
Crider KS, Devine O, Hao L, Dowling NF, Li S, Molloy AM, Li Z, Zhu J, Berry RJ.
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