Long-Term Health Outcomes of People Living With Spina Bifida (NOFO)

NOFO Purpose

The Centers for Disease Control and Prevention (CDC)'s National Center on Birth Defects and Developmental Disabilities (NCBDDD) has released a funding opportunity: CDC-RFA-DD-26-0222 Long-term health outcomes of people living with spina bifida

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR).

The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB.

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Long-term health outcomes of people living with spina bifida

CDC-RFA-DD-26-0222

Funding opportunity to research health outcomes for people living with spina bifida.

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For more information on this funding opportunity, visit https://simpler.grants.gov and search for: CDC-RFA-DD-26-0222