Links to Other Muscular Dystrophy Resources

Resources for Patients and Families

National Institutes of Health Genetics Home Reference
Learn about the signs and symptoms, genetic causes, and inheritance patterns of the different muscular dystrophies.

Muscular Dystrophy Association
A national nonprofit health agency that works to cure muscular dystrophy through research and provides health care, support services, advocacy and education.

A toddler playing with a laptop computer

Parent Project Muscular Dystrophy (PPMD)
A nonprofit organization focusing on Duchenne muscular dystrophy. PPMD funds research, raises awareness, promotes advocacy, connects the community, and broadens treatment options.

Cure Duchenne
An organization which provides the financial bridge to take the most promising research from the lab to human trials.

Facioscapulohumeral Muscular Dystrophy Society
A network of facioscapulohumeral muscular dystrophy patients, their families and researcher activists.

Myotonic Dystrophy Foundation
A national advocacy organization for people living with myotonic dystrophy.

Cure CMD
A research and advocacy organization for people living with congenital muscular dystrophy.

TREAT-NMD Neuromuscular Network
This European Union network for the neuromuscular field develops the tools that clinicians and scientists need to ensure that the most promising new therapies reach patients as quickly as possible.

National Society of Genetic Counselors
A professional association of genetic counselors. The website includes a searchable directory of genetic counselors.