Muscular Dystrophy Articles and Key Findings
Key Findings
Mental health and DBMD
Mental health concerns among males with Duchenne and Becker muscular dystrophy.
(Published: June 4, 2015)
DBMD prevalence by race/ethnicity
Proportion of Duchenne and Becker muscular dystrophy in the United States among certain races and ethnicities.
(Published: February 17, 2015)
Featured Articles
New Tool for Parents Helps Address Concerns
A tool to help parents concerned about their child’s physical development.
The link will take you to a short summary of the article. The full article is available to subscribers of the publication’s service.
MD STARnet
The following selected articles are from the Muscular Dystrophy Surveillance, Tracking and Research Network (MD STARnet). To read more about MD STARnet, click here.
A Review of MD STARnet’s Research Contributions to Pediatric-Onset Dystropinpathy in the United States; 2002–2017.
Journal of Child Neurology, 2019 Jan;34(1):44-53.
Sahay K, Smith T, Conway K, et al.
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Diagnostic Accuracy of Phenotype Classification in Duchenne and Becker Muscular Dystrophy Using Medical Record Data.
Journal of Neuromuscular Diseases, 2018 Oct;5(4):481–495.
Andrews JG, Lamb M, Conway K, et al.
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Health Care Transition Experiences of Males with Childhood-onset Duchenne and Becker Muscular Dystrophy: Findings from the Muscular Dystrophy Surveillance Tracking and Research Network (MD STARnet) Health Care Transitions and Other Life Experiences Survey.
PLOS Currents: Muscular Dystrophy. 2018 Aug 21 (epub).
Paramsothy P, Herron A, Lamb M, et al.
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Health Profile of a Cohort of Adults with Duchenne Muscular Dystrophy.
Muscle Nerve. 2018 Aug;58(2):219-223.
Pandya S, James KA, Westfield C, et al.
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Prevalence of Duchenne and Becker Muscular Dystrophies in the United States
Pediatrics, 2015 March; 135(3):2014-44
Romitti P, Zhu Y, Puzhankara S, et al.
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Delayed Diagnosis in Duchenne Muscular Dystrophy: Data from the Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)
Journal of Pediatrics, 2009 Sep;155(3):380-5
Ciafaloni E, Fox DJ, Pandya S, et al.
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Care Considerations
These articles outline the latest in clinical care to help families and healthcare professionals manage Duchenne muscular dystrophy.
