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Our History

The 2010’s

  • 2010

    • NCBDDD works with many state and local health departments to investigate pandemic flu among pregnant women, children, and people with disabilities. This work leads to swift action to develop guidance and recommendations for these vulnerable populations.
    • The Duchenne muscular dystrophy (DMD) Care Considerations guide is published.
    • NCBDDD and the National Heart Lung and Blood Institute establish a pilot surveillance system for sickle cell disease and thalassemia called the Registry and Surveillance for Hemoglobinopathies (RuSH).
  • 2011

    Colleen Boyle, Director NCBDDD
    • Dr. Coleen A. Boyle is named director of NCBDDD.
  • 2012

    • NCBDDD conducted the first study to look at the costs and health outcomes (cost-effectiveness) of newborn screening for early identification of children with a critical congenital heart defect (CCHD).
  • 2013

    • NCBDDD launches Birth Defects COUNT, a global initiative to reduce death and disability due to neural tube defects.
    • The Birth Defects Study To Evaluate Pregnancy exposureS (BD-STEPS) is announced. This study further examines findings from the National Birth Defects Prevention Study and follows up on leads to understand more about what causes birth defects and how to prevent them.
  • 2014

    • NCBDDD’s Autism and Developmental Disabilities Monitoring Network finds an average of 1 in 68 children are affected by autism spectrum disorder.
    • Launched a nationwide report on adults with disabilities and physical activity. CDC’s Vital Signs™ : “Adults with Disabilities – Physical Activity is for Everybody” presented data showing that 1 in 2 adults with a disability get no aerobic physical activity and that people with disabilities who had a recommendation from a doctor or health professional were more likely to be physically active.
  • 2015

    Doctor examining toddler's ear with mom smiling
    • Closed the gap in the early identification of deaf and hard of hearing infants by launching EHDI-DASH (Early Hearing Detection & Intervention Data Analysis and Statistical Hub), an interactive dashboard that presents a range of data about the early identification of deaf and hard of hearing infants across the United States.
  • 2016

    Zika and Pregnancy
    • CDC published evidence concluding that Zika virus infection during pregnancy is a cause of microcephaly (small head and brain) and other severe fetal brain defects. CDC and partners developed and implemented a multifaceted communication campaign called “This is How We Stop Zika.” This campaign was aimed at educating pregnant women and communities in U.S. territories about Zika prevention.
    • Provided new data on alcohol use during pregnancy, which estimated more than 3 million U.S. women are at risk for an alcohol-exposed pregnancy.
  • 2017

    Milestone Tracker App Icon
    • Confirmed the link between maternal fever during early pregnancy and an increased chance for having a baby with a neural tube defect (NTD).
    • Launched the “Learn the Signs. Act Early.” Milestones Tracker App.
  • 2018

    Collage of children
    • NCBDDD’s Autism and Developmental Disabilities Monitoring Network finds about 1.7% or 1 in 59 children were identified with ASD based on data reported from 11 communities across the United States in 2014.
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